2nd World Mesh Awareness Day
May 1st is the second annual mesh awareness day and to recognize all that mesh injured women have gone through and to raise awareness so that it does not happen to other women for lack of knowledge. Last year I decided that we needed a day and I named a day to honor all the women who are injured by medical mesh. No there was no permission, nor proclamation. The medical industry is ignoring what is happening to women around the world and I decided it was high time we had our own day. There is a day for other illnesses such as breast cancer, but what other women may not know is that many mesh injured women also go through cancer after mesh has been placed into their bodies. Why? Well the only place that is keeping records of what is happening to women is at UCLA in California and they are seeing so many issues with immune disorders. Could this be that plastic placed inside women’s bodies is causing their immune systems to crash and as a result, other illnesses follow? Well UCLA believes so and so do we injured women.
Before I continue, I sent a note to Dr. Raz thanking him for his wonderful care of mesh injured women and I told him that no other doctor will leave behind such a long lasting legacy. I also said that every day I wonder what women will do without him as he truly is the best in the world. He answered with a thank you for my kind words. I hope those of you who have had removal by him will also let him know how grateful you are.
The day before I had my mesh removal I participated in a video while out at UCLA. By that time it had been two years and seven months until Dr. Raz removed it all including the anchors that held it in place. However much of the damage done was permanent and my body although better than before, still suffers from many maladies. I work hard at trying to stay as well as possible, but it is often disheartening to have many days when I don’t feel well and I have had several falls from my nerve injury. This is why I keep fighting to raise awareness of the serious side effects of mesh. I will give you a link to that video at the bottom of this blog. However it has been two and a half years since I spoke about what has happened to women and sadly I know so much more about continuing complications after mesh removal because I live it and I listen to other women who live it too.
I know many women have stayed silent because of what their lawyers have told them. I understand why. Mesh complications take everything away from us and our families and money is a constant struggle, and trying to find funds to travel to have it removed far from home is difficult and stressful. But this is why I continue to choose to speak out. I can’t stay silence and allow women to go through a long and painful struggle that can lead to death because of implant products that is doing damage in their bodies.
Many of us suffer from medical PTSD because of constant surgeries and visits to doctors who treat us like we are liars and drug addicts. The very doctors who put it into our bodies turn their backs on us because they want to make money. We know doctors go to school for many years and have huge loans. We know they have to find ways to pay for these loans and it is a struggle. But why don’t they recognize that we are struggling every day, not just financially because of these implants but with constant pain. Is it too much to ask that doctors open their eyes and recognize that hundreds of thousands of women can’t all be liars and drug addicts?
How can these products not be removed from the market when the results are that 30% of all women who have mesh implanted, will remain with permanent nerve damage. 30% is huge! If any prescription drug was causing this much long term damage to men and women, it would be removed from the market and yet our health issues are ignored. WHY? We don’t get any answers and hundreds of thousands of people will continue to be injured unless they stop using it.
If you are a doctor and you read this blog, please stand up and be counted. Say NO to mesh until more long term data has been collected by ALL doctors who put these products into women’s bodies and the results openly and honestly declared. Ten years of data on every women implanted with mesh needs to be collected and examined by outsiders who do not make money from these products. We need GOOD doctors to take the wheel to stop the debilitating injuries being done to women of all ages. We need brave and honest doctors to speak out and say that the seriousness of what is happening to the women of the world, is true. Surely there are other ways you can make money, than by injuring thousands of women.
I know many women believe mesh should be removed from the market, based on their terrible injuries. I always felt that way too until I began to rationalize why our governments won’t do it. They can’t! The reason being is that the pharmaceutical companies have grown into giants and are powerful voices. They have the funds to stop it from being removed. They can pay lobbyists to make sure our voices will stay silent. But the money they make won’t be used to help injured women have these products removed and make sure they have funds to pursue future medical treatment and aftercare for their constant illnesses. It will be used to continue making more products that will be injuring more women and to make sure they can use them.
Mesh can kill!
Medical mesh is being used in other areas of surgeries such as hernia repair and I am not discounting the voices of thousands of men and women who remain suffering long term disabilities. However, I understand the effects of pelvic floor mesh and can only guess at the suffering of hernia mesh victims. I hope they too will continue to speak out and tell what is happening to themselves and others because I can’t do this alone and neither can they. IN the meantime I will share anonymously any story of injury done because of mesh as I have done in the past. This is the story of a young woman and mother who lost her battle to live
The financial losses of injured women must now be in the millions. This is because many have suffered longer than ten years and lost their careers and financial stability because they can no longer work. I know so many bright and intelligent women who are left to suffer in bed without any financial assistance and they spend three years fighting to get disability. It is a long hard fight because our own government refuses to recognize that mesh injuries are a very serious disability. But don’t give up ladies. Keep fighting and work hard to move forward and not just accept what has happened.
I know what a struggle this is to keep fighting when you are in pain. But I also want to recognize and honor those family members who hang in when they too suffer from the effects of all that has happened to us. They miss the people we were. Partners. Mothers, sisters and daughters are all affected by what has happened to us. They want to get us back the way we were and yet they can’t do it any more than we can. They try to do what they can financially and yet there is never enough money. It takes a huge toll on them as well as on us and we have to be aware how lucky we are when some stick around. I thank God they do and how much I appreciate they care so much to walk the long walk with us.
Today is a day to share with ALL women about these products and try to save at least one woman’s future. I hope you will share this blog and let women know how much you care.
This video is long but I hope it will help other women understand what happens after mesh. Please watch
I still suffer every day and my life is a challenge. Another video to show the mess made to any life after mesh. There are many days that I cannot attempt to go up any steps because of leg pain and the fear of falling. Here it is
I saw an artistic version of a woman suffering in anguish and I thought the artist depicted exactly what women are going through because of medical mesh. This is the link to her work if you want to purchase this and send it to a mesh injured woman. You can read about this artist here and see all her work
To all mesh injured people, today is the day to say to you that I truly care about what has happened to you and I send you my love. Once again I want to thank my own daughter Kim for helping me when I struggle. I love you with all my heart.