One Woman’s War on Mesh
This morning I woke up and thought about a woman in England who is a one woman show and I thought it is time to honor her. You see not everyone in the mesh world has a personal agenda. There are good people who regardless of what they go through in their own mesh struggle, they pick themselves back up and try to get the word out. They continue the fight to remove mesh off the market.
Before I honor Teresa Hughes I want to talk about the press. There is good press and bad press. There is press used for a cause and there is press used for a hidden agenda. But I want you to know that the best kind of press is the kind done by a mesh injured woman without the backing of any outside organization. Yes it is tough to get the press to listen but there are good reporters who will pick up on something simple and they run with it. Not because they work for an organization. They write because they see something deeper in a story that could help other people recognize a danger. Now that is GOOD press.
Most of these reporters won’t have a fancy website unless that have someone like my daughter who will build one for free. Websites cost a lot of money to hire someone to build and maintain. If someone has a huge fancy website you may want to search deeper for clues in how they are making a living. Usually the clues are there although often hidden with all the good things this person says they are doing.
Many independent reporters will have a blog where they write about things they see and are not right with the world. They usually don’t concentrate on one things they write stories about many bad things. Their blogs can give you a hint of who the person behind the blog is and you have to learn how to read all the hidden signs. Most reporters work for a news group somewhere. The news groups pays them for their articles and that is how these reporters make a living. Here’s what I say to the folks who make a living from injured women. “Go out and get a legitimate job!”
There is such a thing as over exposure when it comes to the press. When I wrote about Estelle yesterday all I could think about is how overexposed she had made herself by doing so many stories, videos and radio interviews. She may think all this is good press but she needs to look at those behind it. I tried to tell her about drugwatch and gave her a link to read about them. I am going to give you a link at the bottom of this blog so that you understand how we are marketed to. When you are overexposed by doing many stories with different groups because you think you are getting the word out, please remember the lawyers will read, listen or watch every one of them and pick out all those flaws. You think it is just other mesh women? You would be so wrong. So be careful.
Once a story is up, it is up to the discretion of anyone writing it whether or not they will take it down. I want to give you a heads up about Medical Mesh News Desk. I sent Jane Akre a private email two weeks ago asking her to remove both stories about me. The one she originally wrote and the one Aaron Horton wrote without my awareness of what she was doing. Yes, that slipped by me too I am afraid. I gave Jane Akre my story a long time ago, because nothing was out there on the Internet. So I thought doing it with Jane was a good thing. But now I know she has her own agenda, I asked her to remove both stories. She came right back with one word. “Why”. I answered I did not think explanations were necessary. Nothing happened. So I left comments on both stories telling her why and how I felt. But the stories remain and I am sure she will keep them there because to her I am ‘good press’ on her site. I reach thousands of women through this blog so it will help her cause, or so she thinks. But I no longer want to be part of her ‘good’ cause now that I have figured out how she is going to profit from me and all mesh injured women. But there is nothing I can do about it because it is up to her.
Lawyers often set someone up to be a wonderful representative for their Hearts and Minds campaign. Someone who seems to be just like you. So a female is a great representative for mesh. She doesn’t have to be a mesh injured woman, but if she has anything in her past that says she has been a right fighter, then she is a great candidate. So I ask women to be independent of thought and decisions. Don’t base your decisions on group thinking. Don’t follow the crowd. Don’t think a large group of women meeting up in Washington will generate getting mesh off the market. No, what it will do is cause fifteen minutes of media fame for those who have their own profit making agenda.
I will give you links at the bottom of this blog so that you can read and learn. But now it is time to honor a woman who works independently to get mesh off the market in England.
So you think you need an army of women? Think again.
Note the wheelchair beside this woman. I have never met Teresa Hughes in person but we have spoken on the phone several times. At times when I spoke to her she was lying in bed not knowing how long she would live. She suffered a rare infection that almost took her life. I have seen photos of her with the deep pain etched on her face. You can’t see where the mesh is in her body, but you can see how it has ravished her when you look at her face.
Take a look at her approach to mesh injuries. This sign says it all about the damage done to her bladder by medical mesh. The scaring. A normal bladder changed forever because there is no repairing it.
If your bladder is not yet injured by mesh, then you have no clue how painful it is. So go and sit out on a public bench and try to raise awareness is huge when you live in pain. But this woman doesn’t care about groups. You see it is so hard to gather a group of women together unless you begin a campaign to rile them up. People who gather women together, do this in a big way will make you believe, that they, the heroes will get the mesh off the market because they know what they are doing and large numbers are the answer.
Teresa Hughes is a one woman Hero. Regardless of what has happened to her because of medical mesh, she wants to save other women the same fate as hers.
You may think did she get any press from this? Is press the only thing that works? Press is five minutes of fame and then it’s gone. But…. There are thousands of women out there who have no clue what mesh can do to a woman’s body. So how do you show them? She found a way to reach the woman herself. Maybe by reaching one woman at a time, women will say “No to mesh!”
So if you are planning on joining a large group headed out to Washington, look at more than the hype. Will you really be doing what you think you’ll be doing or will you be giving others what they want? More money in their pockets.
This woman, Teresa Hughes has been fighting for a long time. Using her and her husband’s own money to raise awareness in England. The photos above were ones I received from her less than two weeks ago. She did not ask me to write about her, she just wanted me to know that even after last year’s bed ridden battle, she continues to raise awareness. I say “Thank you Teresa. I wish there were more women who took this simplified approach to raising awareness.” We need more women like her.
This is her mesh awareness site. Please read and start helping Teresa to continue to get the word out. Being a one woman show is hard when you struggle with pain but that is who this woman is. A good woman.
Learn about the people behind drugwatch.com not everything is how it is portrayed. It may look tempting to do a story with them but I recognized what they are up to and I warned Estelle and gave her the link. But we all have to figure things out for ourselves.