Understanding Pelvic Pain

There are so many women who struggle with pelvic pain even after all mesh has been removed. I also do from time to time and like everything else we have had to learn it is time to understand what our issues are and what can be done to help. The reason why I was so pleased to read this from one of the ladies who help me is because so many women suffer extreme back and joint problems once mesh has been placed into their bodies and the complications begin and go on for a long time even after removal.

I am very fortunate to have met this bright young woman because she has studied a great deal and she is the same lady who wrote the post about nerve pain and if you missed it click here. You are now the benefactor of not only her knowledge but her experience trying to work on a better life for herself and her family while enduring the complications of mesh injuries. I truly thank her for helping me understand and for helping so many other women while sharing her own experience.

This was her note.

“I wanted to share with you some of what I have been learning in my pelvic Physical Therapist sessions.  I have the best PT ever…and she is very well rounded with understanding the pelvis inside and out.  As you all could guess, not all pelvic PTs are good ones just like not all surgeons are good ones.  I thought some of this information would be interesting to you all as well as to ladies who have had their mesh removed with continued pain.  As I have been learning, much of the pain comes from this pelvic floor dysfunction.  Much like any other muscle group in the body, if the muscle system is off balance then pain can be one of the consequences.  For us, part of this stems from instability that happens when mesh is inserted into the supportive ligaments of the pelvis.  This instability is not only an internal instability but an external one as well.  A good pelvic PT will do a full assessment of the pelvis inside and out full with orthopedic and neurological exams.  In doing this, I found that my whole SI joint system is unstable.  She reminded me of my SI belt that I had worn prior to removal and we are using that again until the whole system gets stronger.  I have found that wearing the SI belt takes alot of internal pain away as it isn’t trying to be the stabilizers and hold the whole pelvis stable.  I wonder very much if this is possibly a cause for a lot of us who know all…,or what we think is all…of our mesh has been removed who still have pain.  I have talked to alot of women and know for a fact that all pelvic PTs don’t do this extensive of exam and maybe with a simple incontinence patient they don’t need to, but with those of us who have had so many invasive surgeries, this is a must.  I am going to include some of the youtube videos my PT recommended to me to watch by a PT named Julie Wiebe.  They are short but explain so much what happens with many of us and gives simple things to start doing that may help.  I thought you ladies would be particularly interested so thought I would share.”

Youtube: search Julie Wiebe, PT channel.  Click on the first one that comes up.
-Fit Floor Part 1 https://www.youtube.com/watch?v=2Egyo34omQU
-Fit Floor Part 2 https://www.youtube.com/watch?v=GZqrh7inioo
-Fit Floor Part 3 https://www.youtube.com/watch?v=tLO9Drm#Xt6I
-Core Machine: Gears Gotta Move: https://www.youtube.com/watch?v=sGykBblgTgU
-The Diaphragm and Our Internal Pressure System: https://www.youtube.com/watch?v=cW9mwfy-6-I
-Blog Untucking https://www.juliewiebept.com/alignment/the-junkless-trunk-and-not-in-a-good-way/
-Diastasis Recti  https://www.juliewiebept.com/diastasis/diastasis-zip-it-up/
Hope this information can be helpful to others.  I found it extremely helpful!

The first thing I wondered was what an SI belt was. I was totally clueless but you can read all about it here.

Here is a paragraph from that link.

Like all joints, the sacroiliac joints are encased in strong ligaments. Healthy ligaments prevent the SI joints from moving too much. But if the ligaments become diseased (from osteoarthritis, for instance), injured, or worn down by age, they allow the SI joints to move more than they should. This can cause pain in your pelvis and low back. A condition called sacroiliac joint dysfunction can also cause low back pain. A sacroiliac belt provides compression around the hip to prevent the SI joints from moving excessively. The belt is wrapped around the pelvis and may be tightened using laces on the side or back of the brace.

So perhaps you now have the tools to help you move forward. The first step is to study and learn. The second step is to find a good Pelvic Physical Therapist. If you know one in your area pleas leave a comment here to share with others who still struggle every day.

I was aware of pelvic floor specialists and did write a blog some time ago and gave a link. I kept in touch with women who had removal surgery soon after I did. One I met at UCLA and she has pudendal nerve damage and had found some relief by using a good therapist. There are the names of some therapists is on this blog.

 

2 Comments

  1. Dianna Reis

    Thank you so much for sharing this information! I had surgery 2 yrs ago and had the mesh removed last week. Waiting on the healing process, to see how much pain relief and improvement I may have. I wore an SI belt at work for awhile and had pelvic floor physical therapy, but an orthopedic surgeon said it wouldn’t help. I had developed osteitis pubis (inflammation in the pubic bone). Now that the mesh is out, I will ask to try the physical therapy again. Thank you so much.

    Reply
    1. lavalinda

      Dianna give yourself 8 weeks before you do any new pelvic work. Nothing will work while the mesh is in you, but now you have hope.

      Reply

Leave a Comment

Your email address will not be published. Required fields are marked *