The Power of a Blog
If anyone had told me four years ago that this blog would reach thousands of women around the world, I would have thought they were crazy. Even the word blog was foreign to me at that time, in fact the word seemed downright weird. But I was desperate. I couldn’t sleep for leg pain. I could not lay on my right side or serious pain would envelope me and send me out of the bed to try to find a way to ease the pain. When I couldn’t sleep I researched just to stop the pain from making me lose my mind. Then I began writing what I was going through, on something new to me called a blog. I never expected anyone to read it, but all I was doing it for was to stop me from immersing myself in my own pain. It was my distraction.
It took a couple of months and a few blogs, before I received emails from other women who were going through the same thing. I was quite surprised to find more women like me because I had been told this never happened to anyone else but me, by the doctor who put the sling in me. I didn’t know how to researched mesh injuries because at first I didn’t even understand that mesh was put into me. I did not know at that time there were implants used in every aspect of gynecological surgeries. I was totally bind as to all that was going on.
At that time there were no TV ads about mesh injuries to women. There was very little information on the web and no one to answer my question. Why was this happening to me?
It doesn’t seem possible that it was such a short time ago and yet everything has changed since that time. When the FDA report came out in July 2011 with a warning of mesh complications, I at last felt vindicated and excited that all this would change quickly. How foolish and naive was I? I did not know that it would make women everywhere come out of the woodwork to recognize why they had so much pain but they still couldn’t find a doctor locally to remove their mesh. However, it took time and I finally got it through my head that this was going to be a very LONG battle and thousands more women would be injured by mesh. And it hasn’t slowed down even now, four years later. So I keep writing and sharing.
A couple of days ago my daughter decided to look at the specs of how this blog is reaching others. It had been a long time since she had done so because she now does everything I can’t do. I was resting after a long day of writing and beating away all the negatives out there that could interfere with the life of this blog. I had been feeling quite down and also sick and tired of all the negatives that happen when there is a chance of others who can make money from women who are down and out. I guess my daughter saw it was taking a toll on me and she wanted to give me good news. This is good news she shared with me.
There are around 2.000 visits every day to this blog and anywhere between 50.000 and 60.000 visits during any month. A visit is any time someone logs onto the blog regardless of how much time they spend here and how much they read on any blogs.
Not only that but she told me something I would never have thought possible. The page with the most visits is the one about alternatives to having mesh in pelvic surgeries. This means this blog and the TV ads are raising awareness in a huge way and women are searching for what to do BEFORE they are injured by mesh. I just said “Wow” when she told me that news. But then I realized somehow I need to do more research and give more and better answers for women for want to know what to do. It also makes me realize that although the blog is primarily a self-help blog for mesh injured women, there just aren’t the resources out there to help women who want answers as to what to do to get fixed BEFORE they wind up with mesh.
I did say before that mesh is a world catastrophe right now and if this continues there will be an epidemic of disabled women.
So as hard as it is for me to do this, I will continue to research and write and ask questions of those who may know the answers.
WHAT WOMEN DO WANT TO READ
First of all a blog is about freedom of speech. That freedom allows women everywhere to learn what they can do to better their lives. It also allows them to learn things that could change their lives for the worse.
Women everywhere are being mesh injured. IF they were not, this blog would have NO visits at all. None. Zero.
Women want to hear from another woman who is also mesh injured and understands what she is going through.
Women want the truth.
Women want to know how to help themselves move forward and get better or live a better life.
Women want hope.
Women want to feel there is a light at the end of the tunnel and that means they want to know which doctor I went to and what happened when I went there for mesh removal.
Women want to know which supplements they can take to stop them from going downhill before and after surgery.
Women want to know what it is like to travel far from home to have a surgery and how it feels to be mesh injured and take that long journey.
Women want to know what to take with them when traveling. Where the food places, hotels and other things are that she may need when she travels far from home.
Women want to know how they can raise the funds to travel and what it will cost.
Women want to know what it is like and what to do when they travel home again with a catheter in place.
Women want to know what to do when they get home and every doctor in their neighborhood wants nothing to do with them.
Women want to know what to do after surgery and she is at home with stitches in her body and she feels afraid.
Women want to read stories about other women who are dealing with the same issues and they DON’T care if they if they are kept anonymous because they feel the same about keeping their information private.
Women want to read what other women do or feel like when their family and friends abandon them.
Women who cannot urinate, want to know what to do when they need to self cath.
Women want to know about others who lay in bed because they are in so much pain, and yet their families do not get it, because they are doing the same.
Women want to know that I do not accept money
from anyone to support this blog and therefore I am not biased or owe anyone air time.
Women want to know the truth about the loans they are being offered.
Women want to know if they are being scammed and what to do if they are approached by someone who has that intention.
Women want to know that I am not seeking fame or fortune from writing this blog. That my intentions ARE to help women through a difficult time of their lives, not to use them for a step up to fame.
Women want answers
Women want to come here, read what they want to read, get out of it what they want to and then leave with no one the wiser. And I respect their wishes.
WHAT WOMEN DO NOT WANT TO READ!
Women don’t want fluffy, useless blogs or written articles that do not help them move forward.
Women do not want me running all over the country and the world getting or giving interviews with any Tom, Dick or Harry who wants the limelight.
Women do not want crappy, sugar coated blogs/articles.
Women do not care about all my personal problems or issues, they want to read about mesh related issues and how I or other women deal with them.
Women do not want to read interviews with doctors who do not know what they are doing and leave them worse off just because I want to fill up my blog.
Women do not want me or anyone else to hoard their email addresses and use them for any illicit purpose such as giving them to a shyster loan company or to keep them as ‘member’ of anything.
Women do not want to read testimonies written by others who say I do what I do. They want me to just do it and prove it.
Women do NOT want me to put a price on the information I give them. They are strapped for cash and they are in pain. Only a mesh injured woman who has been through mesh removal and the subsequent surgeries following it can understand what this costs.
I am sure the list could go on and on, but I have more research to do that could help women try to get their lives back.
Here is why I do this now
There are days when this all gets to me, but when I read something like the following, I feel wonderful for the woman who did NOT go through any partial removals and she is doing so much better and she WILL regain her life. And she did this without taking a loan with HUGE interest rates from a shyster loan lawyer.
As I have said many times throughout this blog I do not do this alone. My small band of mesh injured helpers take up a lot of the slack and they stay in touch with some of the women that I don’t, so that we cover a larger field of injured women. So we all felt so happy when one of the ladies wrote about how she was doing now, to one of my helpers. This is what she wrote.
“I am doing SO well! I cannot wait to fill you in. Going to Dr. Raz will go down as one of my top 10 decisions I’ve made in my life. It has been a brutal recovery. However I’m reaping the reward as of the last week or so. My mind keeps getting sharper. My body is healing I think very fast after what I had done. I will never be able to think you enough for that last final push over the edge to becoming mesh free. As seemingly unimportant as this sounds. I can finally sit square on my bottom, for the first time in over two years. I have started back walking. I did three and a half miles today. Slow and steady progress is amazing!!! As long as I’m headed in the right direction lol! I’m getting closer to starting to think about how I can be of service to other woman who have found themselves in similar circumstances as I did over the last two years. I will let you know as soon as I can do something. From the bottom of my heart thank you for all that you, Linda and the other ladies who emailed me have done to help me change my life for the better.”
Now THAT’s the power of this blog and a blog can only have power if there is a huge need for it.