Mesh Will I Get Complications in the Future

As I have stated in the blogs I have written this month I am on a mission! My mission is to inform women BEFORE they have pelvic mesh related surgeries which can include hysterectomy or prolapse repairs. This is because as I maintain this blog after four years of being injured myself, I read constant comments about women’s mesh related complications and they don’t know what to do, after years of suffering.

If doctors out there were doing their jobs, this blog would be unnecessary, I would not be disabled and I would be continuing on with the life I had before I was damaged by mesh. I should not have to be spending so much time digging for information to prove what is and has happened to women all around the world. Instead I could be using my time doing the things I love and enjoy and have a vastly different life and so could thousands of women who were not informed of the complications of mesh implants.

So I designated April 2014 as a month to dedicate my time to research to find answers and give women the information they need BEFORE they contemplate any pelvic surgery and to allow them to recognize the symptoms of mesh complications BEFORE their health diminishes to a point of no return.

Yesterday was Easter Sunday and for many a significant religious holiday where they enjoy church services and spending time with their families. However, many women miss all the significant memorable passages of their lives, due to serious mesh complications. Young mothers do not get to do the fun things I did with my daughter when she was a toddler. Thankfully this happened to me later in life and I have many photos and wonderful memories of making my little girl her Easter dresses. Filling a basket with special little goodies and watching her enjoy it with wonder on her face. Preparing egg hunts around our home and outside in our garden. I loved every moment of that time and still do special things for my grown daughter for a holiday I have always enjoyed and have shared with her as adults. When I was young, Easter was also a time to recognize spring is in the air and summer would soon be on the way. A precious and exciting time for all young children. Now I see photographs of children without their mothers being taken to see the Easter Bunny with a loving family member who take photos so that their mothers can see the joy on their children’s faces, while she lays in bed in terrible pain. That is why I am doing this! To stop this from happening to healthy young women because they are so unaware.

When I got up this morning I checked the comments on this blog and found this one.
“I am 31 with three kids I just had a partial hysterectomy 4 days ago with a bladder sling!! I’m not having any complications so far but I am reading all these posts and I will admit I’m a lil scared”

It truly is not my intention of scaring women and stopping them from living their lives and enjoying every day with their children. I am not crazy! I am not a scare monger with nothing else to do but get attention for myself. I am a women who reads everything said and I feel other women’s pain and take it personally.

I answered that comment with this.
“Candace I have met many young women like you and most were fine for a few years. Live your life without fear and enjoy those children but keep an eye on things as there are many side effects no one speaks of. This month I am writing about mesh awareness in hopes that women will learn the truth before surgery. Just watch your health.”

Then I read the following comment and this is why I fight so hard to create awareness of the serious complications of mesh in women, that are being ignored.
“I had a hysterectomy done in 2008. I wasn’t aware of bladder sling until after surgery. Sling came loose in 2012. Which had to be repaired. This cause my bladder to have a pocket so I wasn’t able to empty my bladder completely. This caused my infections. As of today I have constant bladder pain. I’ve seen numerous doctors. One urologist said I had bowel problems that was causing my pain. He gave me meds to help me become regular. As of today I’m still in constant pain and I can’t find any answers. I just want to feel normal again. Any suggest would be appreciate on what I should do now.”

This woman really doesn’t know what kind of repairs were done but I do. More than likely another sling was put OVER the first one and it is too tight. I know this because so many women found out after they got their hospital records for their surgeries. This lady’s comment is so NORMAL for this blog and that is what is so scary. Who will tell them the truth of what has happened to them? All I can say to her and any other woman is please go out to UCLA and get tests done and see a doctor who will tell you the truth. This is when the translabial ultrasound is so important to find the mesh. First though she needs to get the operative reports of both surgeries to find out the implant products that are in her body. I have no doubt she will be shocked at what she reads. That more than one mesh was used. Please understand your doctor’s office will not have the information you need to move forward. You need to go to the hospital(s) to get those records. You don’t need to buy everything in your file and you can ask to view them before you leave the building to make sure you have the right information. Definitely buy the operative report but if the information is not there you may need another. Read this to help you understand if it isn’t. http://meshangels.com/2011/01/report-to-the-fda/

So once again this morning I went to work on research because there is a surprising amount of new information and studies on the Internet that were not there four years ago. This takes me many hours to open links and read so that I can bring you the best information out there. My persistence always pays off and now I will share with you.

I found a link with nine pages of a study on some patients with mesh complications. However, all I can give you here are some highlights. I have given the link at the end of this so that you can continue to read.

Mesh-related complications include mainly mesh exposure [12] into the vagina or even the bladder or bowel, infection, granuloma, pain syndrome, dyspareunia, and voiding problems. Pelvic abscesses and rectovaginal or vesicovaginal fistula are also reported [1317]. These complications occur in approximately 10% of patients and may lead to a significant decrease in quality of life [811, 1820]. The extent of impact of mesh-related complications on quality of life has so far not been investigated thoroughly. Complications can be treated noninvasively in selected cases. However, with more severe mesh-related complications, partial or complete mesh excision is most of the time unavoidable. A recent review reported a higher rate of repeat surgery due to complications after vaginal mesh procedure compared to the rate of repeat surgery due to recurrent prolapse after conventional vaginal prolapse surgery [21].

Proof that all mesh products cause complications.
Patient demographics and characteristics before mesh excision are summarized in Table 1. A variety of mesh materials were excised in our population: Gynemesh™, Mersilene™, Prolift™, Ultrapro™, TVT™, TVT-O™ (Ethicon, Somerville, NJ, USA), IVS™ (Tyco Healthcare LP, Norwalk, CT, USA), Avaulta™ (CR Bard, Covington, GA, USA), Apogee™ (American Medical Systems, Minnetonka, MN, USA), EndoFast Reliant™ (Endogun Medical Systems, Kibbutz Haogen, Israel), Gore-Tex™, Mycromesh™ (WL Gore, Flagstaff, AZ, USA), Teflon™ (Davol/Bard, Cranston, RI, USA). Prolift™ was the most removed mesh material in our patients (40%). The mesh insertion surgery was performed at our center in 41% of patients; in 59%, mesh was inserted at other hospitals.

The following is important for all those women who were handed creams to take care of their problems.
Mesh-related complications were unsuccessfully treated conservatively with estrogen cream, antibiotics, and/or physiotherapy prior to mesh excision in 63% of patients. Previous mesh excision procedures were performed in 22 patients (29%). Five patients had two or more previous excisions. Three patients had undergone an earlier attempted complete excision.

Here is a paragraph that discusses how well women did after partial removals (excision) but they do not follow up after a few months. We do, because we ask women to get back to us in time just to let us know how they are doing. Sadly their symptoms come back with a vengeance and they then decide it all has to come out.
Outcomes are shown in Table 4. The majority of patients had relief, either complete relief or improvement, of mesh-related symptoms (92%). No difference was found between groups with regard to symptom relief, although five of six patients with no relief of symptoms had undergone a partial excision.

Six patients (8%) needed re-excision of mesh; all had undergone a partial excision before. Four had persistent exposure of mesh in the vagina, one had a new exposure of mesh in the bladder, while she earlier had an exposure of mesh in the vagina, and one had persistent pain. Three patients underwent additional complete excision and three had partial excision. Eventually, after this re-excision, five patients had complete relief and one had improvement of symptoms, none had exposure, none had recurrence of POP, one had de novo SUI, and one had de novo OAB.

Postoperative complications occurred after 13 surgical procedures, including hematoma (n=2), substantial bleeding (n=1), ileus (n=1), urinary tract infection (n=5), urinary retention (n=3), fever (n=2), wound infection (n=1), subcutaneous abscess (n=1), fistula from cervix to sigmoid (n=1), obstruction of a unilateral ureter and consequently blow-out of the kidney (n=1). The latter serious complication occurred in a patient who appeared to have a bilateral relative ureteropelvic junction stenosis, which probably was aggravated by the surgery. She was treated by temporary insertion of a nephrostomy catheter.

This is huge!
However, late complications may arise after a long period of time. We found mesh-related complications even up to 18 years after mesh insertion and, in 36% of mesh excisions, the time between mesh insertion and removal was more than 2 years, mostly after sacrocolpopexy. Marcus-Braun et al. found mesh-related complications up to 8 years after mesh placement; in 56%, the delay from the primary operation was more than 2 years [13]. Time between mesh insertion and excision was longer in the group of patients who underwent complete mesh excision, probably because they have undergone more minor interventions (former partial mesh excision) to treat their complications in this period.

Prolift™ was the most removed mesh material in our patients (40%). This could be explained by the fact that, in this region, Prolift™ is the most used mesh material in prolapse repairs. Since it is impossible to generate a denominator for each mesh type and patients referred from other centers, no inference can be made on the overall incidence of mesh complications in the population or the relative complication rates related to individual mesh kits. Different types of mesh may be more likely to erode and others may be easier to excise.

You can read everything from this article here.

I hope this will answer some questions as to whether you may have complications in time, but be assured if you do not report your complications to the FDA, the numbers they report will be far lower than they truly are and justice for women will never be done. If you do not wish to speak out openly that is fine but doing this will ensure the truth is out, without any other effort on your part.

I wrote earlier than it had been ten years since my husband’s death on Easter Sunday 2004. This year I wanted to make something unique and special for my daughter as a commemorative but also to thank her for being there for me through thick and thin. I am very fortunate to have such a wonderful daughter and I do tell her so. So I made her some Minion egg ornaments that she can use year after year, because she loves the Minion movies. Without my knowledge she entered a photo of them to the Martha Stewart site for their egg decorating contest. I was so excited when she told me that I had become a finalist in their contest. We don’t know the winner as yet as it has not been announced but these is the entrances.  You can scroll through the ten characters that were chosen of which mine were included. This was such a lovely surprise for me and it made my own Easter Holiday.

I did write a blog about how I made them with step by step instructions.

55 Comments

  1. a meshed-up nurse

    Very informative blog that all women considering transvaginal mesh surgery should read. Where was this information years ago? Paucity of data and information led to lack of informed consent for most women who did not have a choice because this information was not available. You have a choice now- arm yourselves with the knowledge that Linda has provided for you. BEFORE it’s too late….

    Reply
    1. lavalinda

      This comment is from a woman who knows what this is like. Thank you meshed-up nurse for leaving a comment.

      Reply
  2. Donna

    I am a a 54 year old woman who had a sling put in 2009. 5 year’s later and 7 additional surgeries I now have had 3 slings and many other problems. Being told it is in your head is an unacceptable answer. Struggling every day. Lousy and alone is what I have left. Please of any of you are considering this surgical procedure please do your homework.

    Reply
    1. lavalinda

      Donna you are like thousands of women who have lost hope and their livelihood. I wish I could help you but I have had such a hard time raising awareness let alone raising any funds. I keep trying hard to inform and that is all I can do. I feel for you.

      Reply
  3. Peggy

    I hear about these doctors and happy for those women that have got help, but so may of us haven’t got funds to get to them, after states they live in and cotors and politicians covering mesh up in states. I am worn out of trying to get governor and cong, sen, reps and more to do something. as we know some were given money by companies for campaigns and some invested money back, as the merry go round goes around and round as women lied to, medical boards and more do nothing about money that doctors and nurses lied to women , so may years and much more damaged and pain and suffering and scarring. I AM 1 THAT IS TRYING TO KICK THAT DOOR OPEN IN THIS STATE , TO MAKE CHEMICAL COMPANIES PAY AND SET UP FUNDS FOR ALL WOMEN TO GET HELP FROM THOSE DOCTORS OTHERS FOUND TRUTHFUL, EVEN ALLOWING A FEDERAL DOCTORS AND NURSES , WITH A WITTNESS OF WOMEN DAMAGED BY MESH THAT WILL NOT LIE, , IT WOULD ALSO SHOW PROOF TO JUDGES SCARRING DAMAGES AND MORE WOMEN HAVE SUFFERED, AND MOVE MESH CASES THROUGH FASTER SINCE THE CHEMICAL COMPANIES SHOW NO MERCY LIKE DOCTORS AND NURSES, TO AT LEAST GET WOMEN HELP FUNDS FOR ALL WOMEN TO GET TO THESE DOCTORS . NAD THEN COURTS MOVE ON TRUTH AND NOT LIES. ALL CAUGHT IN LIES , SEEMS SIMPLE LIFE IN PRISON WITHOUT PAROLE.

    LISA HAPPY FOR YOU TO NOT SUFFER ANYMORE OF INFECTIONS , SCARRING, MORE DAMAGE FROM SURGERY AND PAIN , YOU ARE THE FIRST i HAVE HEARD TO SAY THAT. MAYBE HOPE FOR MORE. BUT YEARS OF SUFFERING ,HAS BEEN HARD AND BATTLES HAVING TO FIGHT. how long was your mesh implanted, years like some of us?

    Reply
    1. lavalinda

      Peggy I will let Lisa answer that question. All I can do is keep trying to inform what is going on and how women are suffering a life sentence of pain.

      Reply
    2. Annonymous

      I had the Mentor bladder sling placed in 2004. Within a couple weeks I started feeling pain and it felt like something let loose. I contacted the surgeon and he said that it was nothing and all was fine. I continued on for years with pain in my vagina, abdomen and hip. I had to push on my abdomen to help myself urinate. During this time I was also diagnosed with a painful condition in my leg along with infections. I was eventually put on Cipro everyday for months. Every time I would stop the medication I would get an infection. I was embarrassed to go back to the surgeon as you had to stand in a room with several people and see if you leaked and other awful things. I was unaware of the complications that were going on with the slings and other mesh products. I received a call one day from ——– and they were telling me that my symptoms that I have had for many years could be caused by the sling I had placed. They offered to fly me to Florida to have the sling removal done by a Dr. who was trained in removing all of the material. They also provided me with attorney’s that handle this type of case. I kept putting it off for months and then decided I had enough and was going to bite the bullet and go and have it removed. I had the sling removed three weeks ago along with a partial vaginectomy due to the damage from the sling. I have just recently had my post-op appointment. I would recommend having the mesh removed if done by a good Dr. My symptoms have improved but are not gone as of yet. I still have pain in my vagina, abdomen and hip at random times. As for during sexual intercourse I do not know due to not being able to do any of that for 5 more weeks. As of right now I do have an open case against the manufacturer and I am hopeful that the pain will eventually go away. I was told however that there is a chance even after removal that the pain will continue. I am very nervous right now with owing —– $31,000 dollars. I was unaware that they also compensate you for having to have the device removed. I pray that the case pays the medical bills off and my attorney fee’s as well. As for any extra it would be wonderful if the pain went away and hopefully some extra money left over to rebuild my life to what it once was. The surgery itself was done vaginally and was moderately painful. The improvement that I have seen so far has made it worth the trip and the surgery. If anyone is interested in later updates as to how things are going feel free to email me. I pray that all women who are struggling with this get the treatment they need. For those of you who have recently had one or more placed I would highly recommend having them removed prior to the problems starting. Once you start having complications the Dr’s are saying that there is no guarantee that the pain will ever go away again. I wouldn’t wait for the complications. There is a list of mesh products that you can Google and if you have one of the one’s that have caused complications then it may be beneficial to have it removed sooner than later. Praying that we all gain back our lives in a pain free way. God Bless

      Reply
      1. lavalinda

        Anonymous. There are many problems with your comment. First you did not leave your name which means YOU could be trying to sell to women. Second I hope you are mesh injured and if so 3 weeks later this is not enough time to know how you will do. First you need to read your operative report to see what was done and then ask this doctor if he/she has removed the arms/anchors. More than likely you will have a nasty surprise. You also mentioned being contacted by this loan shark (Yes shark) which means someone passed on your information for them to find you. If your lawyer is trustworthy he/she would NEVER do this to you. Mine is and I received letters stating to report anyone who offered these loans because they are shyster lawyers and loans. I hope you are a mesh injured woman and if so please read the following blog so help you and any other woman who thinks these loans are good deals. By the way I removed the details you gave about this shark. #1 http://teapapers.com/bladdersling/2014/05/loan-sharks-snake-oil/ #2 http://teapapers.com/bladdersling/2014/05/warning-taking-loans/ #3 http://teapapers.com/bladdersling/2014/05/scams-snake-oil-part-two/ And there is a better way to raise money. http://teapapers.com/bladdersling/2014/05/raising-funds/ I am on these people’s case and I am trying to stop this from happening to other women.

        Reply
  4. kelli

    I have overactive bladder and a tilted bladder.I am on pills for the inconteance and recommended for a sling surgery to position bladder…I was so scared I refused…but gosh im tired of peeling at night sometimes or when I cough…if this is a bad alternative…what are my other options? Im only 34years old…I dont want to screw my body up nor continue to pee myself at night (not every night but quite a few) as well I have a nervous bladder….what are my options?? I need help..but im scared. Never had surgery and u mention pain in this blog…but I already get pain..I dont need more..help. please

    Reply
    1. lavalinda

      Kelli there are non mesh options but finding a doctor who will do it this way is difficult and they will be older. It is called the Burch Procedure, so call around and hunt till you find one. They are out there but you may have to travel.

      Reply
    2. lavalinda

      Kelli if I had no heard/read all the terrible stories I would not fear for your future. What you may not know is that even when a sling is put into a woman these symptoms can reoccur and when they do, they will put a second and even third mesh sling over the others and then you will be in serious trouble. UCLA can do your surgery without using mesh and there are other surgeons who will do it. But most who do are old school who were trained to do it without mesh. I know this is not an instant answer, but give yourself time to research and call doctors and ask if anyone can do your surgery mesh free in your area. Read this blog. http://teapapers.com/bladdersling/2014/04/world-mesh-awareness-day/

      Reply
    3. Ruth

      Kelli, I want to let you know that there are many non-surgical options to help both an overactive bladder and SUI! Find a good pelvic floor physiotherapist, who can evaluate you and get you started with the proper exercises (not just Kegels) which actually help you to both calm the bladder and strengthen the muscles. For starters, you can order the book “The Bathroom Key: Put an End to Incontinence” by Perelli and Kassai, which will explain how it works. Armed with that information, you can go on and make a PT appointment. Don’t think that surgery is your only option!

      Reply
      1. lavalinda

        Thank you Ruth. Great advice.

        Reply
    4. joan h.

      ask your gyno if there is a physical therepist that works with pelvic floor issues.most practices have one but are not sometimes told so. wish i would of known there was such a field before i had sling surgery. which was and still is a night mare. i truely believe i would not have needed sling.

      Reply
      1. lavalinda

        I do know about this and I will do a blog when I can fit it in. My blog reaches between 50.000 and 60.000 people every month and the biggest page is how to get repaired without mesh. It will happen but I have so much going on. IF you know of any therapist who would like to write about this issue, let me know and I will contact them.

        Reply
  5. Sandra D

    Linda. Your blog was the first that I came upon while researching mesh complications about 18 months ago.That lead me to a wealth of information on several facebook pages and some wonderful supportive ladies. Thank you so much for all you do. I think you a truly wonderful person.

    Reply
    1. lavalinda

      Thank you Sandra.

      Reply
  6. Susan

    I had a complete hysterectomy along with rectum and bladder repair in 1992. I heard the doctor mention “sling” after the surgery. I have had problems ever since. For 22 years I have had terrible pain having intercourse which was bad enough but 7 years ago after a car accident I was seeing a chiropractor. He became very aggressive toward my pelvis and “crashed down” on it causing terrible pain. I have had incredible pain and aching sitting, lying in certain positions and even walking or standing too long ever since then. I have developed 3 autoimmune (2 neurological) since all of this which I now believe is due to so much inflammation in my body. I contacted the hospital where I had the surgery and have been told my records have been destroyed. I am in so much pain so much of the time. However, I am greatly concerned about having additional pain if I were to have surgery. My body has been put through so much. Do you know of anyone else who had the sling put in 22 years ago or so? Did they always use mesh with the sling?

    Reply
    1. lavalinda

      Susan hospitals are only required to keep records for 10 years, and there is only one way you can find out if mesh was used. Please go to UCLA and have the translabial ultrasound done. When you make an appointment, ask if you can have this test done at the same time. I asked Dr. Raz about if this was possible and he said yes.

      Reply
  7. Mindy

    In December 2012 I had a LAVH/BSO, A & P repair, and a TVT sling put in. I was out of work for 4 months with complications. When going back after my surgery , telling her that i had constant pain and discomfort in the left side, I was told that the sutures had not held on the left side and she was very surprised ! She just never saw this with the surgery. The vaginal wall and bladder had fallen down somewhat.She said the tissue was just to soft to hold the sutures. ?? She wanted me to go to one of the other Dr’s in her group and let him do surgery and attach it all to my spine. I got scared and didn’t go back. The pain and discomfort is now interfering with my ability to work . I can’t stand or walk or sit for that matter long at a time before it starts hurting in my pelvic area. I have been married for 33 years and can no longer have sexual relations with my husband because of the discomfort. I went back last week and she said everything had fallen completely down again! She now is saying that she thinks I need to be seen by a specialist that she thinks is very good and can maybe fix my problem.?? She doesn’t understand why I have the pain !! I asked about the TVT and she said it’s still positioned where I put it and I don’t think it’s a problem but here again she says ” I don’t understand the pain you have ” At this point I’m very confused about what I should do. I’m wondering even if the sling is still positioned, can it be causing the pain and discomfort ?? Sad to say, I’m beginning to feel like I can’t trust what I’m being told !

    Reply
    1. lavalinda

      Mindy everything you describe points to mesh complications and you need to trust no one but UCLA. Read all these blogs through this link and they do everything you can to go out there. The translabial ultrasound is the only test that can tell where the sling is. I don’t know any other test and it is hard to find anyone else to do this test, but even then admit you have a major problem. Let me know how things go. http://teapapers.com/bladdersling/2013/02/mesh-is-a-journey

      Reply
      1. Mindy

        I would love to be able to go for this ultrasound but cannot afford a trip to Ca. I believe the Dr truly knows that it’s a mesh problem. Even if it is just pain from recurrent prolapse I don’t feel I should have to pay for more surgery to correct a Dr’s possible badly performed surgery. However, here again she says she stunned at the discomfort I have !! Thanks for giving me someone to talk with about my problem !

        Reply
        1. lavalinda

          Mindy, you may be able to afford to go. Read this and then think about it. http://teapapers.com/bladdersling/2012/11/mesh-removal-no-money

          Reply
  8. Claudia

    I was just told the mesh I had in 2008 has eroded and has to be removed, to many complicaitions to get into, you all know them , they are the same as everyone elses, My question is……what are the complications and recovery time from have the removal . cant seem to find any answers that make me feel good about the surgery, maybe there is no “good” but would still like to have more answers. PLEASE!!!

    Reply
    1. lavalinda

      Claudia because all these slings and other mesh pieces are so different no one can say. If you have not had a partial removal and you do not have any serious nerve damage already, I have seen women go back to work after 6 weeks when Dr. Raz removes a sling. But everything depends on your mesh and how original surgery was done.

      Reply
      1. Claudia

        I see the Dr. that placed the sling on the 28th of May for a consultation and will know more then as to what kind of sling , ect. My obgyn says that it is definatly eroded and has to be taken out as soon as possible. I have been complaining about issues for a few yrs now, but Have not had a partical removal yet and don’t know if he will do a partical one or not until the 28th. I am feeling sense I have had this sling since 2008, that it has definitely done a lot of damage at this point, I am feeling like I don’t want a partical removal, I want it all out. I am just getting more and more scared about the whole thing the more I read and hear about all the complications and since I have had if for 6 yrs now, it has had plenty of time to do damage. Called me paranoid I guess, just haven’t heard anything good about any of all this related with the sling or the removal of.

        Reply
      2. Claudia

        Just found out that my mesh is eroded and protruding from the urologist yesterday and they are going to do a “revision” of the sling on the 9th of June. He says its a urtheral sling. any comments will help me greatly, im freaking out reading everything about this whole procedure and what info I was given from Dr.

        Reply
        1. lavalinda

          Claudia read the questions to the right of this blog and use them. I doubt if he is going to remove it all and the anchors.

          Reply
  9. Claudia

    I am also located in Panama City Fla, so don’t have a lot of options on Drs.

    Reply
  10. Claudia

    Are the Drs, that did the sling surgery the best one to take it out?? I have been reading about the horrors and complications of the removal surgery,

    Reply
  11. Charlene Rogers

    My sister Betty had a bladder sling put in eight years ago. She is extreme pain. How can I find a surgeon who will listen to us. She has Fibromyalgia and a touch of Fibro Fog. We saw her urologist two days ago and I wasn’t impressed. I was told by her gastrointernolgist that the sling could be a problem and she might have to see a surgeron. He said that she might have adhesions. Her urologist said that she might be eating some foods that are causing her pain. Baloney. I don’t believe him. Plus he said if she was going to get adhesions she would have got them the first year. I know adhesions can come years after surgery. In other words he lied. Thanks for all your information and the questions to ask a surgeon. I wouldn’t have known what to ask. Thanks for your help.

    Reply
    1. lavalinda

      Charlene take her out to UCLA. I will send you a note.

      Reply
  12. connie

    I had a a mini sling placed less than two years ago by my gynecologist. It has cause me pain every since. It always felt tight and very painful during intercourse. My doctor didn’t seem too concerned with my complaints. Over time the tightness eased, but occasionally I would have bleeding after intercourse. A few months ago, my husband complained of something cutting him during intercourse. Upon examination, by my gynecologist, he discovered that the sling had eroded through my vagina. He wanted to “snip off”(in his office) the part of the sling that was poking through and for me to use Premarin cream to close the exposed area. I was scared and crying, lying on that examination table. Lucky for me, he couldn’t reach the area. He said I would need to be put to sleep for the procedure. I decided to get a second opinion, because to me, this would only cause further problems. I went to a urologist, who informed me that it needed to be removed. Only he wouldn’t remove the anchors, only the mesh. Again, my mind told me that leaving the anchors would still cause problems. After a little digging, I found this very informative site. Dr. Raz sounds like the perfect doctor to do the surgery, but he is so very far away from Louisiana. Does anyone know of a closer doctor that performs the total removal surgery?

    Reply
    1. lavalinda

      Connie I am hearing from women who are far worse off by going to local doctors in your State and mine in Texas. Do the best you can to help yourself and go there. I just heard from a woman who did not have the anchors removed by a local doctors and now they are hurting her. I was trying to find out about your sling and came across this. Is this the one because did you know there is a reimbursement program. I would be curious to find out how it works, so contact me when you find out. Read this blog http://meshangelnetwork.com/2014/06/mini-arc-system/

      Reply
  13. Ruth Collins

    This is my story.I had surgery 2006,I dont know what type of sling I had put in,but I had that done plus a erectalseal done at same time.Ever since I had it done,my sex life has been awlful,its been so painful plus urinary track infection at lease twice a year,blood in my urin,and I would bleed after intercourse,the first year after i kept going back getting check,and the dr said i might of got it to tight.well here it is 2014 still having problems my female dr didnt say anything more,with pelvic exsame he didnt see anything wrong.I just went to my primary dr.now hes sent me to a kidney and blaader specialist.Well I went to her and shes telling me i have scar tissue,she felt another screen in there.So now got to have another test done a telescope.That I might have this removed.After reading everything about this.Im scared,you put your trust into the doctors.they dont tell you everything.I cant afford to be out of work plus I have 10,000 deductable.I dont know what to do.

    Reply
    1. lavalinda

      Ruth, I wish I could tell you how to deal with the financial consequences of what mesh has done to you, but I have no idea. But just by writing your comment you are sharing with someone who may not have had the surgery yet and you will save someone else from going through what you are now. Thank you for leaving your comment.

      Reply
      1. Ruth Collins

        Thanks I wish I had went and ask a lot of question before I had this done . If had to do it again I wouldn’t .now I have to worry on how many surgeries I will have.had a another visit at ER Sunday all they did shoot me up with pain meds . Who knows a good dr in Delaware . That can removed all this stuff?

        Reply
        1. lavalinda

          Ruth the problem is most cannot remove it all and anything that holds it in place. That is why I personally went to Dr. Raz at UCLA. He removed everything in me. You need to Google your type of mesh and add patent on the end and then see exactly how it is made and anchored. Knowledge is your power to getting your life back.

          Reply
  14. Lachelle Marshall

    Hi I’m 37 years old and I had a partial hysterectomy on May 22,2013 due to the fact that I had been having a period since December of 2012 and they could not find any medical reasons why. I had no cysts is or fibroids.I just simply would not quit bleeding even after taking medications that have been known to help with prolonged bleeding. At the time my doctor and I decided a partial hysterectomy was the best course for me he suggested I get a bladder tack at the same time due to the fact that when the bladder is removed and the uterus is no longer there for the bladder to rest on some women develop incontinence issues. So I went to a urologist and he suggested since I wasn’t currently having incontinence issues other than when I sneezed occasionally that he would not do a bladder tack but he suggested a bladder sling. I questioned him at that time about the stuff I had been seeing on the news and he assured me that those brands of slings had been taken off the market and I wouldn’t have any of the issues I had heard about on the news. That there was nothing for me to worry about. So unfortunately I didn’t listen to my gut and I went ahead with the bladder sling operation on the same day as my partial hysterectomy so that I wouldn’t have to undergo separate surgeries at different times. I noticed almost immediately after coming home from the hospital that I was having leakage that I didn’t have before surgery (except occasionally when I sneezed as I stated earlier). It seemed every time I went to the bathroom after wiping when I would stand up urine would run down my leg. As you can imagine this was very upsetting for me but I thought maybe it’s just because I’m still healing. When I went in for my two week check up with my urologist I let them know what was happening and my concern. They told me to do Kegel exercises and to practice starting and stopping my urine flow while going to the bathroom that this was more than likely just part of my recovery process. When I went back in for my six week check up even after following their advice I was still having the same problem. This time I was told to decrease my walking and water intake along with continuing the Kegel exercises and that the fact that I walked five miles every day and drank a gallon of water a day was probably what was causing the problem (even though I done these things before my surgery with no problems) At this point I was feeling more discouraged and embarrassed that now I had to take extra panties woth me places,or wear panty liners (I should add here panty liners were not something that I ever wanted to see again considering I had developed an allergy to them after wearing pads for almost six months straight). I was also told at this visit that my next visit I would be meeting a new doctor because my doctor was retiring just six weeks after my operation. So I came back for a ten week check up with the same symptoms only now I was aware of new symptoms the fact that intercourse was painful and that my sensitivity while being intimate with my husband was greatly diminished.I was devastated and for the first time in my life I didn’t feel like a woman, I felt like my femininity was gone somehow. I was hoping a new doctor might be the best thing, only to be examined by a man I had never laid eyes on before, before he ever even introduced himself. Afterwards he told me to get dressed and he would be back to talk to me after. I felt violated and hopeless at this point. I will admit when he came back in he was nice and listened to my concerns but his only new suggestion was for me to go to physical therapy. At this point I just felt like I was being brushed off again just like I had been from the beginning. I never have gone to the physical therapy because my insurance changed and it meant a new detectable to meet which I didn’t have the money for but also I didn’t think it was going to help me. It has been almost sixteen months since my surgery and I still have the same symptoms plus I get up four to six times a night to go to the bathroom and it is like I can feel the sling a lot of the time, I have discomfort often but no severe pain as of yet. It worries me that more severe symptoms will follow as time goes on but I’m also so scared to have surgery to remove the bladder sling because of all the horror stories of multiple surgeries and complications. It’s like trading one nightmare for another. I feel like having a bladder sling was the worst decision of my life. Maybe sharing this will help other’s with their decision.
    Seriously
    Lachelle

    Reply
    1. lavalinda

      Lachelle thank you for leaving a really good comment. You are very young and should not have been left this way. Please be very careful as often these doctors will suggest doing surgery yet again and they will put a second sling over the top of this one. I know women who had three slings and as time went on things became worse with pain and infections. Only you can decide when to have it removed and where. Plenty of doctors will tell you that they can remove it when they cannot do it without multiple surgeries. My best suggestions right now is to get your hospital records now so that you know what is in you, because over time your records may be difficult to get. Place them in a safety deposit or with your important papers. I do not know how long it will take for you to have other symptoms but more than liked it will happen within a few years and you will be ready to do something. Watch out for infections and back pain in case of kidney issues. I truly wish you do not have any further complications.

      Reply
  15. SHARON ROCZYNSKI

    MY DR. RECOMMENDED I HAVE A MESH SLING INSERTED IN *05. YEARS AND YEARS OF COMPLAINING TO UROLOGISTS DID NO GOOD AS THEY WOULD DO A CYSTOSCOPY AND SAY THE MESH HAD NOT PUNCTURED MY BLADDER. THE PAIN GOT SO SEVERE, THEY FINALLY AFTER 9 YEARS DID X RAYS AND SAW THE MESH HAS EMBEDDED ITSELF IN MY PUBIC BONE. THE DR SAID IT WOULD BE IMPOSSIBLE TO REMOVE, I AM BEING TREATED WITH PAIN MEDICINE AND STEROID INJECTIONS. IF YOU HAVE A MESH SLING, NEVER ASSUNE YOU WON’T HAVE SEVERE COMPLICTIONS, MY NESG WAS NADE BT JOHNSON&JOHNSON, THEY HAVE COMMITTED A SERIOUS CRIME BY PUTTING PROFITS AHEAD OF SAFETY FOR THOUSANDS OF WOMEN, I WOULD LIKE TO SEE THOSE RESPONSIBLE SENT TO PRISON,

    Reply
    1. lavalinda

      Sharon it can be removed by one man. Dr. Raz of UCLA. He has removed it off of bones and spine when everyone else said it was impossible. Please do this for your future.

      Reply
  16. Patricie

    I am also planning on having my mesh sling taken out. I am waiting to hear if Law Cash will pay for it. My doctor told me that insurance companies do not want to pay for it. Has anyone had their insurance pay for it or did you use Law Cash?

    Reply
    1. lavalinda

      Law cash is lying. Insurance pays all the time but they want to make big money off of YOU. Everyone I know had their insurance pay to remove it. You may want to look further before you sign the dotted line. Don’t be a victim once again.

      Reply
  17. Judy Rury

    I am scheduled for a hysterectomy for pelvic organ prolapse and stress incontinence on May 8, 2015. My Urogy told me it would be done Lap.

    Today I received notice my health coverage approved the surgery, there are several procedures codes for “open surgery”. i.e. colporraphy comb ant/post, repair enterocoele ABD, and Sling for stress incontinence. It doesn’t seem correct that lap procedures would be coded as open surgery. He’s doing a TLH W/T/O because I am 66. Alll that open surgery along with a hysterectomy would leave my vagina a carved up piece of meat! I told him I absolutely did not want mesh or tape put in my body, that he would need to use my native tissue, but that isn’t how it’s coded.

    I am getting the feeling I can not trust this Doctor after all, that he plans on doing the surgery his way regardless of what I requested.

    Reply
    1. lavalinda

      Judy once you are under he can do as he wishes. I asked a lawyer one time if you have any recourse against the doctor and he said no as he can say it was necessary. I am sorry I missed answering your comment as I have not been well a few days, but I hope you did not go through with it. You can write a scathing report and turn him in to an organization that will reprimand and can shut down the hospital if they find there has been any problems. This is that link. http://meshangelnetwork.com/2014/06/report-medical-abuse/ This is what happened to another woman. http://meshangelnetwork.com/2012/11/mesh-doctors-without-ethics/

      Reply
  18. Valerie Romo

    I have mesh under the whole lining of my abdomen. The dr used it to fix a hernia diastasis recti repair. Is this safe to be removed? Do you know of any doctors who could and would be willing to remove it?

    Reply
    1. lavalinda

      Valerie look at the top of this blog under doctors and click on the link. There are hernia repair doctors there and you can ask them if they can. Make sure you get your hospital records. I wrote a story about a young mother who died after going through so much including mesh. You can read it here. http://meshangelnetwork.com/2015/04/2nd-world-mesh-awareness-day/

      Reply
    2. lavalinda

      Valerie there is a link at the top of this blog called doctors and there are hernia doctors there and you can ask them about it. I know it can be very serious and want you to know I care. Read this blog http://meshangelnetwork.com/2015/04/2nd-world-mesh-awareness-day/

      Reply
  19. Kathryn Wells

    Forgive me if the answer is in one of the comments or elsewhere, there is a lot to read, but, what is the alternative to the sling?

    Reply
    1. lavalinda

      Kathryn there is a blog called alternatives to mesh and you can find it in the side column or by putting it into the search engine of this blog. But you will find it is difficult to find a local doctor to do this and you will have to travel far from home. But it will be worth it.

      Reply
  20. Tina

    I had a mesh sling implanted in 2007. I had horrible bladder spasms right after the surgery. About 6 months after surgery I became very sick and was admitted to the hospital. I also had a knot the size of an egg on the right side of my lower abdomen. My body was rejecting the mesh used in my bladder surgery. I had to have another surgery to have it removed and another sling put in. My legs and my hip hurt badly sometimes but I never thought about it being from the bladder surgeries. In 2012 I became very sick and almost died. I was admitted to the hospital and the Dr figured out that I had an abscess on my right kidney. I was very sick for about 3 months. The abscess will always be there but I’m hoping it never fills up with fluid again. It can become life threatening very quickly if not treated immediately. After reading some of the comments on here I’m wondering if the kidney abscess was caused from the bladder surgeries. I believe that it’s very possible. I’ve always wondered how I could’ve developed an abscess on my kidney. Does anyone have any info on abscesses on kidneys after having bladder mesh surgery? I know if
    I ask the urologist that did both of my surgeries he will say no the surgeries didn’t cause it. I would really appreciate any help with this.

    Reply
    1. lavalinda

      Tina sorry it took so long but bad weather and no power. Read this new blog. http://meshangelnetwork.com/2015/05/kidney-abscess/

      Reply
  21. RUTH CARTER

    I had the bladder sling put in on July 11,2013.I Have Medial/Blue Cross insurance.I live in Sacramento,Ca. I need to get this bladder sling out.Does anyone know any urology doctor that will take this out please help me. I been really sick,been in bed. I wish my doctor would put me in the hospital. I medial group is River City with medial and and blue cross.I been in the E.R. six times.this has been going on for 20 months now.

    Reply
    1. lavalinda

      Ruth you are in the perfect State. Go to Dr. Raz at UCLA. You will be so glad you did.

      Reply

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