Mesh & Erosion

I often wonder who came up with the word erosion when it comes to mesh used on women’s delicate tissues so I looked it up and found this.

Medical definition of the word erosion.
The superficial destruction of a surface area of tissue (as mucous membrane) by inflammation, ulceration, or trauma (erosion of the uterine cervix).

It does describe it as a medical term but not how it feels when it is inside us. I have spoken to countless numbers of women and for them it was like being brutally tortured in a place they could not see, but felt the awareness of mesh during every waking moment. They feel their womanhood has been violated and no one is accountable. You may think to yourself how could something like this be placed into our bodies without account? Well over the years a few good doctors and scientists have tried hard to bring the awareness to our governing body without success. Does that mean we are all collateral damage without any accountability? This is why I decided to make this month about mesh awareness.

I want the women of the world to understand we DO have a voice and we should be heard. This is because we too are accountable to make sure all women know what has happened to us and what can happen to any woman who doesn’t learn and listen to her inner voice. I don’t care how nice or handsome a doctor is. Please do not allow yourself to be swept up in charm. Once you realize all is not well after surgery or a few years later, believe me your doctor will no longer be charming. There are so many disillusioned women around the world who are now very sad and lonely, living in pain without knowing where to turn. One just left this comment and you can get the very sense of how women are feeling. Violated is not a big enough word to describe their feelings. Now read her words.

“I’m so frustrated! From a doctor who I have trusted for Years and family have gone to could do this to me! Lie to me, use my body has an experience and then shred all the evidence once they (his office and other doctors) they were being questioned! My chart looked like a book and now hardly nothing. The hospital is ran through partnering with “PHYSICIANS” At the hospital I had surgery done and where my doctor is. This is So HEART BREAKING!! My heart just sunk I’m so, So upset I Never consented to this Ever I never had problems with urinary. I never had a single conversation about this sling and I was NEVER told I had it! I had to search and find out for myself after having symptoms!! I was even pregnant with my third with this killing chemical inside! I am so Mad, disappointed how in the USA can doctors get away with this! Yes get away with it because lawyers can’t find any op report listing what kind or when they put it in. So I’m screwed to just live with the end Result of their EXPERIMENT! THEY RUINED ME! LAUGHED AT MY PROBLEMS THAT IT HAS CAUSED ME AND KEEP DENYING THAT MESH IS THE PROBLEM. I CANT WAIT TO SEE WHAT DR. RAZ TELLS ME. Thank you thank You Linda for all your information guidance and giving us a Voice! I hope Some Day we can ALL put a stop to this horrific nightmare!”

This woman has had mesh inside her for ten years but didn’t know it for a very long time. Now the realization is hurting her to her very core and I completely understand the pain she is feeling. How can this happen again and again even now that there are TV adverts saying there is a huge issue with mesh? Fortunately for her she will soon see Dr. Raz and his experience will be of great value. Yes, it helps to have the correct information from operating reports but I am sure Dr. Raz will recognize the type of mesh she has because he has been removing all of them. Perhaps his knowledge will allow her to seek justice and some compensation for all it will cost her and her family.

There are good doctors and scientists out there who have raised red flags from the very beginning of this catastrophe. There are also good doctors who were unaware of what mesh could do to women until women returned to their offices and the realized. Those good doctors stopped using it in women and felt terrible. But they are few and far between. Then there are the women of the world who have spent many, many hours searching the Internet for answers as to why this has happened. They found papers written in times before so many women were injured. Because mesh use has become so prevalent in women and they sent them to me. So today I will share with you some of what was found out and reported to the FDA before the use of mesh became so rampant and I want to thanks these women for doing so much leg work to help and inform other women.

TVT® FDA Clearance Letter Dated January 28, 1998

  1. Bacteria adhere to biomaterials using a biofilm [21].
  2. PP mesh shrinks 30-50% after 4 weeks [22].
  3. A multifilament mesh must be removed with infection [23].
  4. Surface roughness promotes wicking of bacteria [24].
  5. Ten bacterial colony forming units are enough to infect 15% of multifilament meshes [25].

Read more here. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3112322/

Post-Implantation Alterations of Polypropylene in the Human

Purpose

We reviewed the mechanisms by which polypropylene mesh changes after implantation in the human body.

Materials and Methods
The existing polymer and medical literature was reviewed regarding polypropylene, including its chemical characteristics, and compositional and physical properties, which undergo alteration after implantation at various human body locations. We also reviewed the changes in those physical properties that were demonstrable in explanted specimens.

Results

Polypropylene in mesh form is commonly considered inert and without adverse reactions after implantation in humans. The literature suggests otherwise with reports of various degrees of degradation, including depolymerization, cross-linking, oxidative degradation by free radicals, additive leaching, hydrolysis, stress cracking and mesh shrinkage along with infection, chronic inflammation and the stimulation of sclerosis. Many substances added to polypropylene for various purposes during manufacture behave as toxic substances that are released during the degradation process. The material may also absorb various substances. These alterations in the chemical structure of polypropylene are responsible for visibly demonstrable fiber changes, resulting in the loss of structural integrity through material embrittlement. The heat of manufacturing polypropylene fibers begins the degradation process, which is augmented by the post-production heat used to flatten the mesh to prevent curling and attach anchoring appendages.

Conclusion

Based on available evidence the polypropylene used for surgical treatment of various structural defects is not inert after implantation in the human body. The quest for the perfect mesh must continue.
You can see it all here in the in the American Urology Journal.
Do you believe urologists are ignoring what is written? Yes they are.

None of this will tell you how mesh erosion feels inside your body. I cannot tell you how terrible it has been for many women who were left far too long to suffer. Fortunately for me I was weeks away from seeing Dr. Raz when my first symptoms began. Unfortunately for me the damage done to my urethra ensured I needed more surgeries than just removal. I can tell you what the beginning of mesh erosion feels like because I told my daughter often that I felt like I was on fire up inside me. A fire I couldn’t put out regardless of what I did. You cannot imagine the torture of this until it happens to you. Unfortunately for many women their erosion goes a lot further. They tell me it is like sharp knives pushing on their insides. Not only that but when their sexual partner tries to penetrate, they too feel those knives and find their genitals are cut by the hardened mesh inside the woman they loved. This is why I am trying to reach women BEFORE they have any mesh implant.

IS THIS HELPING WOMEN OR ARE THEY BEING MUTILATED IN SIDE! You decide. We have all read of terrible things that have happened to women throughout the ages and even now in under developed countries. Rape and genital mutilation still goes on. But here in America, Canada, Great Britain, New Zealand and Australia? Countries that pride themselves on first class modern development. How can this happen? But…happen it does all in a legal medical capacity. It is outrageous!

I did a lot of thinking about how to explain mesh erosion in simple terms. I could have given you some photos to show you what it looks like but I am not into giving gory pictures to make you aware, so I thought about what mesh must be like when it first begins to push against your delicate bladder balloon. I found this showing a balloon on a bed of nails, but the balloon is not your bladder. Your bladder once penetrated by mesh is so painful you cannot imagine it and no words I write can describe what it feels like.

So please, don’t just jump into any female surgery without asking questions and don’t believe these words. “We don’t use THAT mesh!” Mesh is mesh regardless of how it is coated. Regardless of the size it can do equal damage. Become informed and save this from happening to YOU!

7 Comments

  1. Sharon Mcbride

    Thanks you again Linda for you never ending quest to help women. It’s difficult to not keep saying ‘if only I knew”, because the vast majority of us didn’t know. However, as you preach to us with hope in your heart to help us all to keep trudging along with what is now. Perhaps that is what we must try to say to ourselves, “WHAT NOW”, and do the best we can with what we have instead of dwelling on the “If ONLY”. We must keep moving forward.

    Reply
  2. Nancy Mikitka

    Linda, the picture you have shown of the balloon up against the bed of nails is exactly what I felt in my lower abdomen for 9 1/2 years along with the excruciating pain in both of my hips. There was no pain pill that could touch the pain I lived with for those 9 1/2 years. I will be forever grateful for two doctors who have helped me…Dr. Raz for removing my mesh and Dr. Veronikis who helped me with a follow up surgery. I pray each day there will be more doctors who will use their skills to help remove the mesh and for the awareness to finally awaken those doctors who are still implanting the monster into women so they will stop.
    .

    Reply
    1. lavalinda

      Thank you Nancy

      Reply
  3. lavalinda

    Thank you Lisa

    Reply
  4. DebC

    Great pic & post! Before my mesh removal, I would explain my pain to feel like I had a steak knife in my groin, that hurt & throbbed 24/7, making it difficult to even sit. And then when I moved, tried to walk, it would turn into shooting stabbing pains.

    I find it frustrating that doctors tend to only mention “vaginal erosion” as a potential risk of mesh, if they mention risks at all. Vaginal erosion is the most common, and horrific enough (although they try to downplay it and act like it’s not that big of deal..? Uh hello?). But not everyone has vaginal erosion. I didn’t. Mesh can erode/cut in any which direction! Into bladders, colons, urethras, and in my case my groin, obturator & abductor muscles, making it’s way to, and attaching to, my pelvic bone. When they only cut the mesh and do partial removals, the erosion just keeps happening. That was why I opted to fly across the country and go to Dr. Raz for full mesh removal.

    Reply
  5. Melissa B

    I underwent surgery in Sept. of 2013. I had a grade 3 rectocele and cystocele which were repaired without mes. (rectocele has returned) During this surgery an Altis single incision bladder sling was placed for SUI. Immediately after surgery i complained about a hardened ridge on the anterior part of my vaginal canal. I couldn’t imagine then that it was the mesh. During the following years sex was painful for me and my husband and any sort of physical activity would often send a stabbing pain in my pelvic area. Fast forward to around sept 2014. one short year after my surgery. i could feel mesh in my vagina. made an apt. with the urologist but couldn’t get in until March! during my wait to see the urologist I was examined by several doctors who “could not feel anything.” I thought i was just imagining it but my husband assured me I was not crazy. In march I was at work and got a horrible twisting, stabbing pain that shot into my vaginal area and down my leg. I immediately went to ER. I told the doctors I was sure my mesh had torn loose. I was told I had appendicitis and sent home. Funny how no one even examined me or did any tests. I wouldn’t give up and kept complaining. I was put off work by my NP who believed what I was saying. March 17 I saw my urologist who informed me the sling had mal-positioned and was eroding though his word was “extrusion” I underwent revision surgery March 25, 2015. My sling was “trimmed 2.5cm and tightened. How can you find out if this is even procedure for this sling? I believe it is now to tight. I was told the “extrusion” was due to me being so small. Im 5’1 and about 100 lbs. It is now just over 5 weeks and my pelvic, vaginal pain is worse than before. I feels like someone has taken a hammer to my pubic bone. I contacted a lawyer but was told there are no recalls on my sling yet (its fairly new) I filled a complaint with FDA myself today. I have my medical records. I am a nurse. I honestly believe the doctor intentionally used as little documentation as possible in the surgical record. He is making me feel as if this is my fault, Im to small or must be doing things I shouldn’t. Im concerned, I want it out, but don’t trust any doctor in this town. They all know each other. The only support I have besides my family is my NP who continues to put me off work. Honestly I don’t know how I could possibly work like this. Its easy to rub your sore back or neck. How do you relieve this pain! I cannot take pain medications, it makes my chronic constipation (from returned rectocele) worse which makes the pelvic pain worse. Not sure what to do next. How many surgeries can one vagina take before its just not gonna work.

    Reply
    1. lavalinda

      Melissa B I am so sorry to tell you that what you are saying is very common and has absolutely nothing to do with your height or size and they don’t want to admit that the sling was the problem, not you. I would definitely get your hospital records for this last surgery to check if the surgeon put another one over the top of the first as it is more common than you would like to believe. I know many women who had 3 in all when the first ones failed and Dr. Raz at UCLA removed them all. It is rare for any sling to be recalled but the FDA did put out a warning in 2011 about all slings and mesh. Please try to get to one of the doctors at the top of this blog on the doctors link. I don’t know some of them so ask a lot of questions but Dr. Rodriguez can help you in California and you can get in much sooner than UCLA. At UCLA they will do a translabial ultrasound first to see what is going on with the mesh along with other tests. I don’t believe she has the translabial but she does do tests. I have had 5 surgeries all due to mesh and I am at the end of my rope as far as surgeries are concerned, so I know how you feel. I am trying hard to avoid another one as my tissues are so messed up.

      Reply

Leave a Comment

Your email address will not be published. Required fields are marked *