Mesh & Lupus
This month I am on a mission to educate women around the world to learn about the serious complications many women suffer once mesh is used inside their bodies. I am doing it because I have spoken to so many women and have read so much about their mesh related complications and I am horrified this still goes on every day in surgeries all around the world. I can’t fight the governments who thinks this is okay. I don’t have money or resources, but I can do one thing that does not cost me anything but my time. I can write.
Mesh has many side effects that no one is addressing and many women do not even know that they have mesh in their bodies which could be causing their illness. So I am going to try to research and tackle some of the serious complications because I cannot stand to see healthy, intelligent women lose the families, careers and their financial status after working hard to get to a good point in their lives. Sadly mesh can do all this and so much more.
So I begin with Lupus. I have long heard women tell me that they have been diagnosed with Lupus after mesh was put into their body, and I also suspect that many more may be diagnosed if they go through the long process of tests and elimination. The problem of course is there is not one specific test to diagnose this disease, which you will read about further down this blog. It is also difficult to find a good doctor to do these tests once you mention the word mesh. More than likely, you will find yourself becoming an instant leper and be told “It’s not the mesh” and most doctors will make you feel so uncomfortable so that you will walk away and never go back. Once you do they can carry on putting mesh into women without any feeling of guilt.
After reading this blog, if you suspect you may be suffering from lupus related symptoms and you had mesh in you recently or many years ago, or don’t know, I beg you please read this blog and find a good doctor who will help you. First though get your records and find out what was done to you when you had any female surgery, hysterectomy, prolapse or even a C-section as I just found out a few days ago from a woman who posted a comment on one of my blogs. She found out that mesh was put in her during this event although she was never told at the time. What circumstance I have no clue but she was very upset to find out it had happened. So just about the time I think I’ve heard it all, I learn something new. So start by finding out if mesh was used in your body at any time, then start getting help.
When I decided to research more about Lupus, I asked Google about this disease and came up with this link and many others, but this one has the most information. This link is everything to do with Lupus and I was amazed how many issues there are. Read the following excerpt.
First I wondered about the symptoms.
What are the common symptoms of lupus?
Because lupus can affect so many different organs, a wide range of symptoms can occur. These symptoms may come and go, and different symptoms may appear at different times during the course of the disease.
The most common symptoms of lupus, which are the same for females and males, are:
- Extreme fatigue (tiredness)
- Painful or swollen joints
- Anemia (low numbers of red blood cells or hemoglobin, or low total blood volume)
- Swelling (edema) in feet, legs, hands, and/or around eyes
- Pain in chest on deep breathing (pleurisy)
- Butterfly-shaped rash across cheeks and nose
- Sun- or light-sensitivity (photosensitivity)
- Hair loss
- Abnormal blood clotting
- Fingers turning white and/or blue when cold (Raynaud’s phenomenon)
- Mouth or nose ulcers
Many of these symptoms occur in other illnesses. In fact, lupus is sometimes called “the great imitator” because its symptoms are often like the symptoms of rheumatoid arthritis, blood disorders, fibromyalgia, diabetes, thyroid problems, Lyme disease, and a number of heart, lung, muscle, and bone diseases.
Then, one of the questions many mesh injured women ask me is the following. So I found the answer on this site.
Are petroleum products related to lupus?
Dr. Gary Gilkeson is the Associate Dean for Faculty Affairs and Faculty Development at the Medical University of South Carolina and Chair of the Lupus Foundation of America’s Medical-Scientific Advisory Council.
Petroleum products have long been suspect in the development of lupus, and researchers are actively looking at this. In some locations within certain towns, “pockets” of illness are described and attempts to scientifically study these areas are underway. For example, recent studies looked in the Boston suburbs for environmental risks for lupus. The study also examined possible genes involved that may account for a risk for lupus. The findings of the study are not clear; for one reason, the number of participants was small.
Exposure to solvents and mineral oils also are potential risk factors for developing lupus, though, again, none are definitively associated. Many of these studies are based on giving these compounds, often in high doses, to mice that are prone to getting lupus. Some of these compounds lead to early development of lupus or more severe disease. Mineral oils, such as pristane, can induce lupus in mice that are otherwise normal. However, not all mice exposed to pristane developed lupus, and there are no data as of yet implicating mineral oils in human lupus. These agents may be involved, but at the present time we cannot say so with certainty.
Is there a test for lupus?
There is no single diagnostic test for systemic lupus. The test you will hear most about is called the ANA test. This is not a specific test for lupus, however. A variety of laboratory tests are used to detect physical changes or conditions in your body that can occur with lupus. Each test result adds more information to the picture your doctor is forming of your illness.
As I read the following, I noted one thing we all deal with when a sling is too tight is that we cannot urinate the way we used to. This can be a serious issue over time. So I was very interested in this question and answer. I know women who have been diagnosed with kidney disease after having a sling in their body for many years. Please take this seriously. I also know many women who have been seriously injured when mesh was used on or near their colon. I have heard so many horror stories of what has happened to them that I find the use of mesh, barbaric and torturous. Now read on.
How does lupus affect the renal (kidney) system?
Lupus is an autoimmune disease that can affect almost any part of your body, most often your joints, skin, kidneys, heart, lungs, blood, or brain. Your two kidneys are part of your renal system, which also includes two ureters, the bladder, and the urethra. As the primary organs of the renal system, your kidneys are responsible for:
Maintaining the correct amount and type of body fluids
Removing waste products and toxic substances
Regulating the hormones (chemical messengers) that help control blood pressure and blood volume
Another thing that has bothered me is that women have sent me photos of large round or oval patches that they broke out with after mesh began to take a toll on their bodies and asked me if I knew other women who have them after mesh was put into their bodies. Sadly I do. . This is the name for this type of lupus.
Cutaneous Lupus Erythematosus
This form of lupus is limited to the skin. Although cutaneous lupus can cause many types of rashes and lesions (sores), the most common—called discoid rash—is raised, scaly and red, but not itchy. Areas of rash appear like disks, or circles.
Because women are diagnosed with many other things EXCEPT mesh complications, they are given many drugs without knowing they too can cause complications. Please whatever drugs you are taking read the most SERIOUS complications that can arise.
What is drug induced lupus?
Drug-induced lupus is a lupus-like disease caused by certain prescription drugs. The symptoms of drug-induced lupus are similar to those of systemic lupus, but only rarely will any major organs be affected. The drugs most commonly connected with drug-induced lupus are hydralazine (used to treat high blood pressure or hypertension), procainamide (used to treat irregular heart rhythms), and isoniazid (used to treat tuberculosis). Drug-induced lupus is more common in men because they are given these drugs more often; however, not everyone who takes these drugs will develop drug-induced lupus. The lupus-like symptoms usually disappear within six months after these medications are stopped.
More things for you to read.
I am not the only one who has concerns because of the amount of women who have been diagnosed with immune disorders are mesh. Since I began searching for answers four years ago, sites have popped up all over the world, trying to raise awareness of the issues of mesh complications. This site also raises concerns of women being diagnosed with lupus.
Other women have spoken out about these mesh related issues and one politician has spoken out. We need more to do the same.
Some concerned citizens have spoken out about chemical products related to petroleum, used in cosmetics that can cause these same diseases and yet no one speaks about mesh placed inside the body.
Please, please learn as much as you can about this disease if you suspect you have it and tell all your women friends to read this blog and learn what can happen after mesh. Without you passing on this information, thousands more women will be injured and made seriously ill by these products. You should also know that ALL MESH RELATED products, kits or ‘cut to fit’ mesh can cause the same issues. Don’t let any doctor tell you otherwise.
Please, please don’t let them put these products into your body.