Mesh Can Change Your Life Forever

And…….. believe me. Not in a good way. Today marks the tenth anniversary since my husband’s death on Easter 2004 which was April 11th that year. All week long he has been on my mind more than usual. Why anniversaries affect us this way, I don’t know but because I had been healthy all our married life, he would be shocked at what has happened to me. However because he was a really great guy I know I would never have had to worry about him leaving me. But that is not the case for many women.

This past four years has been very difficult because not only do I deal with my own complications, but I still help many women. I know their pain and their anguish. I know how many have also suffered at the hands of doctors mentally and physically, often because they are not believed. Too many women have had surgeries or medications they didn’t need because they were told it was something else, not the mesh. But sadly for many by the time they did something, their health had deteriorated and it is a struggle to come back. So please if you are in a bad way, either find an alternative specialist to get you back on track, or if you can’t afford one, begin a good plan of supplements to help you feel healthier.

Constant surgeries and large quantities of prescription drugs can bring you down quickly and you need to be vigilant in changing your position. Your immune system can’t fight infections and you will find everything will deteriorate. Women lose their hair and their teeth and it is all connected to your immune system. I have heard so many women say they have lupus after they have struggled with mesh complications. Far too many to not pay attention to and you can read about your immune system here http://www.urmc.rochester.edu/Encyclopedia/Content.aspx?ContentTypeID=134&ContentID=123

Every article I read about the immune system mentions chemicals in the environment, but no one mentions chemicals in your body such as the type that mesh is made of. It is hard to believe that any product with this many chemicals could be deemed safe to go INSIDE our bodies and yet no one questions it. You can read more here. http://en.wikipedia.org/wiki/Polypropylene

It is hard to believe but no one reports on long term studies in humans after mesh has been in the body for several years and yet women seem to think that they have had a successful implant after only one year since surgery. I have listened to far too many women who were doing great for five to seven years and then they began a serious decline in health. So why is that? Well I have read a great deal and I believe that over time as the mesh degrades inside our bodies due to the temperature and the many fluids inside us, regardless of how well you did for some time you may not have a clue your sudden illness could be stemmed from the properties of polypropylene. In fact it wasn’t so sudden if you think about it for long. How much have you been sick over the last few years? Infections of many kinds not just the UTI ones we all think of. Sinus infections that you cannot clear have all been associated with mesh complications or you seem to get one cold after another. This may help you understand.

This study was done on rats and animals and the problem is they don’t live the amount of years we do and studies seem to quit at thirty days. You can read more here. http://www.forp.usp.br/bdj/bdj12(2)/trab10122/trab10122.html Below is part of it.

Complications inherent to the placing of the mesh, such as intestinal fistula, wound dehiscence, and death when closing the wounds of patients who had septicemia due to a surgical intervention of the abdominal cavity, have been described (9). Formation of granulation tissue covering the mesh was reported when part of the abdomen of a soldier was reconstructed with a polypropylene mesh (11).

In a review of the 120 cases (12), a fragment of polypropylene mesh was placed covering the groin to repair inguinal hernias through laparoscopic transperitoneal surgery. Complications were infections in three patients, groin abscess (in two of them) and pubis osteitis in one. Waldrep et al. (13) reported the development of cysts in the abdominal wall of two patients after the use of a polypropylene mesh.

Success using polypropylene mesh to repair abdominal malformation in over 150 patients was described by Fernandez and O’Leesky (14). In two of these patients, laparotomies were performed within a period of six to eight months after the surgery and the mesh was coated with peritoneum and did not show any adhesion.

Using polypropylene mesh in over 26 abdominal surgeries, Fansler et al. (15) reported serious complications, such as, the folding of the mesh, extrusion, wound contraction and enterocutaneous fistula, all of which originated from the use of the mesh. In the retrospective analysis of 31 cases, Volyes et al. (16) reported that 25 patients, who had received this mesh in the abdominal cavity, developed either infection and fascia necroses , or severe intra-abdominal infection. However, Chan et al. (17) used an 8 x 10 cm polypropylene mesh in the groin to repair inguinal hernia in 39 patients and reported no serious complications

I have had several conversations with a mesh injured woman whose own problems are immune related and she has a large animal farm. She told me something quite shocking. Her vet said they no longer put mesh in cows because it was costing farmers too much money due to complications. I was shocked! Are we women worth less than a cow?

As many of us have discovered over time due to our own complications that mesh used on hernias is also a problem. This will give you an idea. And I found it here. http://www.ncbi.nlm.nih.gov/pubmed/23686765

Textile meshes frequently are implanted in the abdominal wall to reinforce a hernia repair. However, revisions for mesh associated complications confirm that these devices are not completely free of risk. Explanted devices offer an opportunity to define the impact of mesh structure on tissue response. This retrieval study analyses the tissue reaction to 623 polypropylene mesh samples (170 class 1 with large pores, and 453 class 2 with small pores) explanted for pain, infection, or recurrence. Histopathological assessment included morphometry of inflammatory infiltrate (IF) and connective tissue (CT), and of collagen 1/3 ratio. Half of the meshes were removed after more than 23 month. Despite large inter-individual differences removal for infection showed more IF than for pain or recurrence with significant correlation of IF with CT. Class 1 meshes with large pores showed less IF, CT, fistula formation, calcification, and bridging than class 2 meshes with small pores. Meshes removed for recurrence showed a lowered collagen 1/3 ratio in 70%. Large pore class 1 meshes showed an improved tissue response and may be considered as favorable to prevent inflammatory side effects. The presence of lowered collagen 1/3 ratio in most of the samples with recurrences stresses the relevance of an intact healing process. Late manifestation of complications demands long-lasting follow-up. © 2013 Wiley Periodicals, Inc. J Biomed Mater Res Part B: Appl Biomater, 2013.

Long lasting follow up. Why then, after that mesh is put into a woman’s body and then she is sent on her way after only one post op follow up? Not only that but if she suspects there is a problem and questions her doctor she finds herself being dismissed. That is what is happening to women throughout the world after their complications begin. No one wants to know!

Our health government has decided that doctors should now tell women what can happen with mesh but there is no accountability when they are not told so how can this work? It can’t.

This morning I had great news from my sister whose friend had bladder lift surgery yesterday. My sister knows all that has happened to me and she gave her this blog to read. She found a doctor in her area of England who is old school and he told her immediately that mesh can cause issues, but unless the complications a woman has are so serious he will not use mesh. I opened my sister’s email to find her friend had had the surgery and is MESH FREE. Why is it then that so many doctors use mesh first without any responsibility as to what can happen to women’s bodies over time? It is because they are not trained to do these repairs without using mesh, and opening a packet and doing the job is quick and easy on their behalf. But the results can be catastrophic for women.

I hope women who are searching for answers when faced with hysterectomy or prolapse surgery will do their research and take their time to find a surgeon who can do the job without using mesh. I hope to have the doctor’s name in England soon and will pass it to a woman I know who has a site to help women over there. I do know he is in Torquay Devon.

To understand how serious this is please view this video.  I took part in it because I cannot sit back and see women suffer in this way.  http://www.corporatecrimereporter.com/news/200/enmeshed-thousands-of-women-sue-makers-of-transvaginal-mesh/

I was up early this morning thinking about my husband and knew first thing I should write this blog and warn women about mesh. We were together for thirty-five years, married for thirty-four. I will miss him always.

19 Comments

  1. a meshed-up nurse

    Thank you, Linda, for a well-written and well-researched blog. Maybe if the FDA and doctors won’t hear or listen, then women will. One can only hope. Thanks for the warning…

    Reply
    1. lavalinda

      You are so right which is why I keep writing. Women don’t understand the toll it will take on their bodies.

      Reply
  2. Sharon Mcbride

    Thank you Linda for always caring. You are a very special soul

    Reply
    1. lavalinda

      I hope this will change one woman’s life who is seeking help. I can’t bare the thought of more injured women.

      Reply
  3. lavalinda

    The lady in England just had it done by a doctor who does it all the time. Obviously although they may have been trained, they have never done it themselves. But doctors are out there and women need to get on the phone and call before they make a decision. They have to take the responsibility themselves for their own well being.

    Reply
  4. Susan Thomas

    Hi Linda, I have had six mesh removal surgeries, with too many complications to list… literally I am too tired and on too many meds to type my story….having botox injections tomorrow for my pain… yesterday, I gathered my courage and said to myself “if there is any way on this earth I am going to get all of this mesh out of me!” I live in Michigan, I am going to call Dr.Raz’s office when my mind clears from the sedatives from the botox injections…. but, do you know of any, any doctors in Michigan who can remove all of my mesh? bless you , Susan

    Reply
    1. lavalinda

      Susan I would never send you anywhere else at this point because you need specialized help. To remove any more mesh from you the translabial ultrasound needs to be done because I am sure it is going to be very difficult to locate. Please gather up your last bit of strength and go to UCLA. If you have little money you can try to see if you can have a free flight and discount hotel. Read this blog. http://teapapers.com/bladdersling/2012/11/mesh-removal-no-money I know you are running out of strength but please find it again and see if your life can be improved. You did not deserve this and I hope you will stay in touch.

      Reply
  5. Lorna

    Thank you SO much for posting – I am awaiting surgery to my mesh perforated bladder- which will remove about 90% of the mesh- but leave the other 10 and the pilars – which unfortunately is what is giving me SEVERE buttock pains/leg pains/limping…my surgery requires two surgeons to remove it – then more surgery to repair my bladder- I am also being tested for lupus related disorders, as I have joint pain/memory loss/painful joints/insane itching/sore teeth…THE LIST GOES ON!!!This is CRUEL, LIFE CHANGING, DISGUSTING, DEGRADING &DANGEROUS..Thank you SO much for all your informed research- I am a writer, a creative writer, and I am planning- whenever I have energy- to get a portfolio/campaign/book SOMETHING of a collection of arts started – photography/paintings/poems etc – lets turn this horror story around!!! Blessings from Scotland, xxx

    Reply
    1. lavalinda

      Lorna I am proud of the Scottish women who are creating awareness about mesh related issues and I do read all that women are doing around the world. As a writer please keep a weekly journal of all you are going through and perhaps it can be picked up as a weekly column in your country’s newspaper. It is the only way we change the destiny of so many women in the future. They put it in us so easily but few can remove everything. It makes me very sad.

      Reply
  6. Fairydust

    you are so true Mesh does change your life and not for the good. As I write this I am in so much pain that I have been contemplating ending it all, I do not see how I can make it another minute, let alone all day, let alone the time left until removal and then as you know that is not a sure thing, but somehow and I don’t how I keep going second to second. This is the worst, the most painful thing I have been through. You mentioned they don’t use it in cows and asked if our lives were not any better. I have now determined that this, that mesh, is torture, it is a for of cruel and unusual punishment, which as you now is not supposed to be allowed here in the U.S. Cows, dogs, cats, animals, death row inmates now get treated better than women with mesh do. What is more is that not only are the makers mutilating and killing us and causing this cruel and unusual punishment but so is the medical industry because once you have the mesh, it is downright impossible to find a GYN, or any DR once they find out you have mesh. They will not see you, you are now a liability to them should you become their patience, so to me in essence, even if they did not cause the problem in us or were not our implanting surgeon, they are making worse, because if we are not able to be seen even for the most minimal problem, like general GYN problems that are not even related to mesh, or to have our physicals, our paps, breast exams, then we are at a even greater risk (especially with the mesh) of cancer and not knowing, undetected infections, infections that are not being treated or self treated with the wrong medicines. Therefore, they are making us worse, they are denying us healthcare, they are putting these in women after women and then denying women care because they have the very thing the doctor implants and then sitting back and like watching us die. I feel like I have been giving a death sentence, a slow, painful, agonizing, torturous, death. And their is not a bloody thing anyone can do. I have lost all hope in becoming pain free and sadly in most of humanity. I know that God had flood the world to rid the world of the evil and corruption of mankind, I have been wondering lately with all that I know with this mesh stuff and everything else is if it is as bad as it is now, what the heck was it like back then. I am gonna end with by telling you that we have been with each other for a long time. You have been there to help me out and thank you so much. I am so proud of you and I love you. From one Fairy to another

    Reply
    1. lavalinda

      Thank you fairy.

      Reply
  7. DebC

    Great post, Linda. You have packed a lot of info in this, and as usual, how much you truly care comes pouring thru. Thank you.
    The comment about the cows was especially poignant. I wonder why they used it in them in the first place? Poor cows. It would bee interesting to find actual article and/or more info on that. In any case, I’m glad that at least they are now being spared the pain of mesh, but…. what the heck?

    Reply
    1. lavalinda

      Deb I tried hard to find an article but after trolling through many pages of stuff because the word bladder sling was in there, I gave up. You have to get through many hours for nothing. It would have been great to share it though.

      Reply
  8. Hope

    Thank you for raising awareness. I believe that the mesh contains as many toxic chemicals as cigarettes do. I got sick 3 weeks after I had the mesh implanted in my body and was diagnosed with full blown Lupus within a year.
    I am praying that the pharmacutical companies acknowledge the what it is in the mesh that is making people so sick. Maybe then we can get treatment and hopefully get well again. I am not sure what exactly is in the mesh that is causing the Lupus yet. Perhaps it was caused by toxic chemicals leaching from the degrading polypropylene, or the chemicals in the coatings, dyes and glues or the ETO sterilization process that had made me sick, but all I can tell you is I did not have Lupus before I got the mesh implant. I pray the truth comes out so we can work so that I can get busy living again. There has to be a cure or at least an antidote.

    Reply
    1. lavalinda

      I believe Hope that it is the properties of polypropylene leaching into our bodies. The best thing you did was get the mesh out but how much damage you are left with may improve with time. However, only time will tell.

      Reply
  9. Helen

    I am from Scotland and have had 3 explant surgeries, i still have the arms left in as they said it could cause more problems removing them, my thoughts and prayers are with you all.

    Reply
    1. lavalinda

      Helen I know how bad this is and yet they still do this to women every day knowing they cannot remove them. It does not make sense and it is a brutal philosophy. That is why we must all try to get the word out to let women know where they stand and this is forever regardless of pain. Thank you for leaving a comment.

      Reply
  10. candace

    I am 31 with three kids I just had a partial hysterectomy 4days ago with a bladder sling!! I’m not having any complications so far but I am reading all these posts and I will admit I’m a lil scared Please read this blog. http://teapapers.com/bladdersling/2014/04/mesh-will-i-get-complications-in-the-future/ Once you are healed also get your records and keep them in a safe place along with other important documents so that you will have them on hand if you find you are having complications. There is a link on that blog to tell you what to get.

    Reply
    1. lavalinda

      Candace I have met many young women like you and most were fine for a few years. Live your life without fear and enjoy those children but keep an eye on things as there are many side affects no one speaks of. This month I am writing about mesh awareness in hopes that women will learn the truth before surgery. Just watch your health. Now read this blog. http://teapapers.com/bladdersling/2014/04/mesh-will-i-get-complications-in-the-future/

      Reply

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