Mesh Removal Who to Choose

I truly did not expect to be writing a new blog on this subject, but I now know I cannot put it off or women will be fighting when they should be supportive of others who are mesh injured. So I am once again taking time out of my day to try to help women sort out their own feelings and to make sure whoever they choose to do their surgery is THEIR choice.

Because the mesh injured count has been rising over time, there are also more support groups everywhere. They can be excellent for those who are bedridden because of mesh and cannot get out of the house. Loneliness can also induce depression and it is good to have others like you to reach out to. Because of this, many women have formed lifelong friendships because they have mesh in common. So there is a great deal of good that comes from the support of others.

However, not all is good. There is also pressure on sick women to follow those who say a doctor is great whether or not they have made a decision to go to him/her. So this is why I am addressing this issue. You may wonder how I know what is going on when I do not go to any support groups any longer. Well, I know hundreds of mesh injured women and I have met many face to face, either at UCLA or locally. Many of us have formed comfortable friendships and can say whatever we want to each other. So when women are telling me personally about what is going on, on these support groups I try first to deflect so that they can stay on the track of their own health, and also I advise them that if they are getting in arguments on these groups, then the best way to handle it is to break away from them.

I just had a conversation with a mesh injured woman in the last day or two. We are all stronger because of our mesh injuries. Not stronger health wise, but to move forward in life and try to improve our health, we often have had to do battle with local doctors, family and partners to go where we need to go to have our mesh removed with the best outcome possible.

So here’s the deal. I have not lied to you that I am still mesh injured even after mesh removal. I am. I have told you that nine weeks after the mesh sling was put into my body it was cut in the center during a second surgery. At the time I thought it was being removed and was devastated when I found out it was still in me. Then because I was out of money and had no health insurance, I turned to writing this blog. What did I learn? Well you could ask what I didn’t learn. But it did not happen overnight. I did what few women would ever think of doing. I picked up the phone to listen to hundreds of women over a two year period before my own mesh was removed. At first I did it all alone, but then other women wanted to help and pay back the fact that they got their lives back again, and they began helping me. When you listen to other women you have to be open minded to learn and sympathize. You have to realize life is not all about you and give up many hours, days, months and years out of your own life. And you have to do it without pay or your own ego wanting to become famous for doing it. In other words you have to really care about others in the world.

By doing all this the rewards are that you also learn all the pros and cons of the quagmire of mesh removal which means you try hard to sidestep those yourself. And it is because of all this, that I am truly grateful to so many women who did not just take, they gave of themselves.

During the time I was speaking to so many women I was given a short list of other doctors who it was thought at the time, could remove the mesh out of women’s bodies. This list came from UCLA and I assumed these doctors had to b e as amazing as the doctors of that University. I was quite excited to be able to pass the list on to others but I did warn the women that I knew nothing of these doctors and I asked if they would stay in contact with me if they chose to use any of them. Some women thought it could be very important so they did just that. They went through surgery and reported back to me. They waited many months and then reported back to me again. I was taking a poll so that as few women as possible would not be injured further than they already were. All that time I worried about it because I did not be responsible for the deterioration of other women.

During that time I learned that the partial removal I had had so early after the mesh was placed into my body was also causing me more issues. The cut apart mesh was moving and it began attaching itself to my nerves and muscles. Not only was this happening to me, but it had happened to so many other women who did not have the money or insurance to go out to UCLA, or their family did not want them to go, believing that all doctors were equal. By listening to other women it sadly became apparent that they were not.

So ever so slowly I realized I had to make the financial sacrifices needed to go out to UCLA the second my Medicare kicked in so I sold my car. Five days after Medicare began I was in Dr. Raz’s office. It was there I learned that I had femoral nerve damage, but I had hoped that once it was removed from my body, my nerve damage would heal. I now know that often nerve damage is permanent. However, I still feel hopeful that over time it will diminish. First let me reiterate that I had the BEST doctor in the world to remove my mesh. He has the most experience of a lifetime devoted to helping others. He does not have a giant ego so you won’t see video interviews of him boasting about his achievements all over the Internet. In fact he does not have time because he is in surgery trying to help as many women as possible, even though he is well past retirement age. You should also know that he will be at your bedside more often than any other surgeon in the world, after he has removed it. I would describe him as being a mother can, making sure her delivered kittens are okay. So many families have told me they were amazed at how much he cares, so this is not just my opinion.

Of course now over time there must be more doctors who have jumped on the mesh removal bandwagon, and I am sure some are extremely good. So how can you decide who to choose? What guidelines can you go by? Well to begin with look to the right and you will see a blog I wrote a long time ago with the help of women who had already had their mesh removed. I had not at that time had mine removed and I have learned that experience is the only way you can possibly understand. This is why all the college creative writing classes will tell the students “Write about what you know”. Over time I learned firsthand and then could write my own experiences.

Other than asking these questions, here are some other things you need to watch for. If a doctor’s ego is so large he/she believes that they are God, then step away. Just because they have the most amazing bedside manner does not make them a great doctor. To give you an idea of what I mean, many people can be charismatic, but they may not have the skills. A HUGE problem for me is if they still put mesh in women. If you don’t care and aren’t afraid to risk more mesh being put into your body if your chosen doctor still does it, then that is your choice, no one else’s. I personally cannot go near a doctor who still believes mesh is great. Another thing. Not many people in this world can stand alone. By this I mean peer pressure. Can your doctor stand up to the mesh manufacturers and their colleagues and still continue with their practice. Many can’t. It’s not easy to be the lone wolf and many people want to follow the norm.

Now that brings me to mesh injured women. You were lied to and wound up in a huge mess because of mesh. Most doctors refuse to admit mesh is a giant problem even though the injured count keeps rising. The warnings are out there by the FDA and yet they refuse to admit the facts, learn and tell women the truth. If they do it could mean they will lose their place in the hospital they work in, so I understand. But; to know this stuff injures severely and still do it, is outrageous to me. This is where their sworn ethics come in and yet many knowingly avoid the truth.

So if you have done your homework and made a decision you can live with, please understand that you are an adult and deserve the freedom of choice regardless of what others say. This is YOUR life, not theirs. So whoever you choose, go with it and then adjust accordingly. Please also understand you may not know the true outcome for at least a year. Base your choice upon your own mesh injury. How long it has been in your body. The damage it has caused you. Nerve injuries because it takes skill to hand pick it out of nerves and muscles and not do further damage. Do you have kidney or other organ damage? Is the mesh wrapped around your colon? To do the best for your future you must learn as much as possible and watch for signs from your own body. No one can do it for you. This is YOUR life we are talking about.

If you have done all the research and feel confident that you have chosen the best for your own situation, then do not second guess yourself because of others opinions. No one can be 100% certain of their choice but if you spend all your time doubting your decision, then understand you are doing yourself an injustice. You need all the energy you can get to go through with the surgery and the healing process.

Please, please do not go to support groups and begin infighting among other mesh injured women because you feel your decision is the right one for every women. There are enough right fighters in the world as it is. It can often be misconstrued as bullying if you try to force others to bow down to your opinion. Stay off these groups if you find yourself doing this because it is unfair to others. If you find yourself being bullied in this manner, walk away from these groups. That is NOT what support is all about.

Please, please do not bash doctors who are trying to help women. I know this has happened about Dr. Raz on these groups, but the great thing about this man is he may be of small stature, but he has broad shoulders and can handle it. However, you are making other women doubt their decisions if they choose to go to him. So button up those lips and leave the keyboard if you find yourself getting into it.

Support means you are there to listen and help others. If you find yourself being defensive, it is not helping you either. Use your energy to move past it and become a new and better woman. I know how hard it is believe me, which is why I no longer go to any of these support groups. But it does not mean I no longer support mesh injured women. I do, which is why I have taken the time to write this blog. I hopes this helps many of you who are now concerned over your decision about the doctor you have chosen. Never forget that this is YOUR life and no one else’s.

Update.  For new information click here.  http://meshangels.com/2014/04/mesh-will-i-get-complications-in-the-future/

 

 

62 Comments

  1. Heather

    Do you know of any doctors in ohio or close
    that are doing full mesh removal

    Reply
    1. lavalinda

      Heather, not in your State but not far away. I will send you details.

      Reply
      1. Missy

        I need to get mine removed who can i trust in or near Mt Juliet Tn.
        I have had mine in since 2010. And have full symptoms that i had before i had it put in. Severe pain with intercourse constantly . And reoccurring uti’s
        My PCP keeps referring me to the same doctor how put it in.
        Help. What do i do?

        Reply
        1. lavalinda

          Missy here are three doctors who do a good job. http://teapapers.com/bladdersling/2013/12/confusion-ultrasounds/

          Reply
      2. Lucy

        Heather do you know of any mesh removal doctors in the south’. Texas, Louisiana Alabama or others I have left message on other sites and get call backs from attorneys. Help please or anyone else reading this..my mesh was for bladder and uretha lift..my doctor who put it in did a snipping when it protruded my vigina wall and now since she can not see or feel anything. She has sent me to countless doctors for all the pain and the auto immune diagnosis which is a bunch of crap. I have beendoing this now for 4 years..please help..anyone

        Reply
        1. lavalinda
      3. Teresa white

        Please send me the list also, I live in Ohio

        Reply
        1. lavalinda

          Teresa there is no list but this doctor could help you. http://teapapers.com/bladdersling/2013/12/meet-dr-veronikis-a-great-surgeon/

          Reply
      4. Jan

        Looking for doctor in clearwater fl. For complete mesh removal.
        Do you know of any?

        Reply
        1. Linda (Post author)

          I know women who went to this doctor, but you will have to ask him if he does full removals. https://www.healthgrades.com/physician/dr-lennox-hoyte-x42vj

          Reply
  2. mothering9@yahoo.com

    Are there any drs at Washington University in StLouis? That iswhere I am being referred by my primary care . I have to have referral for my insurance to pay anything.

    Reply
    1. lavalinda
  3. julie

    any doctors in the NY area for removal?

    Reply
    1. lavalinda

      Julie read this blog and you will find 3 good doctors. http://teapapers.com/bladdersling/2013/12/confusion-ultrasounds/

      Reply
  4. kimberly

    Do you know of any doctors in Massachusetts or close doing complete mesh removal?

    Reply
  5. pauline drane

    Do you know of any drs. in SC. who can remove mesh. Thankyou

    Reply
    1. lavalinda
  6. cheryl

    Lavinda-Hi! I am in misery in Missouri—I contacted Dr. Razs’ office today in regards to having my bladder sling removed–but I can’t afford a trip out there for a consultation- the person I spoke to was not very approachable -I saw a Dr. (specialist) in St. Louis 2 months ago –he can( hopefully)remove all of the mesh part of the sling but can not remove the anchors because he said it was too difficult! Do you know of anybody closer to me that CAN remove the entire sling-anchors and all? I have been following your blog for many a month and have “felt” your pain! My heart goes out to you and so many others! You have been a “BEACON” of light for many a woman!! GOD has truly Blessed us by having you as our “Guide” !!!! Take care!!!!

    Reply
    1. lavalinda

      Cheryl there is a doctor in your State. This will help you. http://teapapers.com/bladdersling/2013/12/confusion-ultrasounds

      Reply
  7. brenda

    I’m looking for Doctors in Wisconsin that offer mesh removal?

    Reply
    1. lavalinda

      Brenda, these are the doctors I know can help you. http://teapapers.com/bladdersling/2013/12/confusion-ultrasounds

      Reply
  8. Vicki

    I have an appt. tomorrow with my Dr. Have had nothing but trouble since mesh sling put in 5 years ago. I want it removed. I remember him telling me that if he was to remove it the “anchors” would stay in. I live close to Milwaukee WI…is there a Dr. that you know of that is close that can remove this. I am so sick of all this.

    Reply
    1. lavalinda

      Vicki, I am sending you an email.

      Reply
      1. Rebecca

        Can you please send me any information on Dr in Milwaukee area. I am growing masses all over my abdomen and back and a friend who is his 3rd year med residency thinks it is because I have a bladder sling and transvaginal mesh. The original surgery was June 2010 and I have had 5 surgeries to remove fatty masses since then. The first mass appeared Oct 2010. I have another surgery scheduled to remove the mass that is growing close to my liver, but the surgeon that I see in our smaller city, Beloit has not experience in the area. I need help

        Reply
        1. lavalinda

          Rebecca I don’t know anyone in your area. I am going to send you Dr. Raz email and you can see what he says about what you are describing. I hope you have your hospital records with type of mesh(s) in you as you need to know and so does any doctor who will treat you.

          Reply
  9. Christina

    Thank you for this chronicle of your journey. It is a rare thing to be able to put your very personal & painful experiences out there to help others. Thank you again.

    I had a “min-arc” placed 5 years ago for stress incontinence. I would leak when running or sneezing , ect. I was told this was my only option. I have abdominal pain/ urgency/ leaking now even when just leaning forward/back pain/ hip pain/ and these weird poking & pushing sensations from the “inside-out”.

    I saw the urologist yesterday that did my surgery. I told him all of my symptoms, they had the results of a Urodynamics study. He looked at me and stated that he wanted to put ANOTHER sling in me. This one is called the SPARC sling. I was further shocked when he then said that he usually just leaves the other sling in. I said I wanted it removed. He said they would have to leave the anchors. I said ok, I was in shock . He said “Really, you want to do the removal & new sling?” He looked shocked too. How sad now in retrospect . He was willing to do this to a patient knowing the risks!

    I got home last night and cried. Then I got brave enough to Google SPARC sling tonight and I found you. I would gladly dribble urine while running to not have constant pain.

    I made an appointment request just now w/ Dr. Raz. Thank you thank you thank you!

    Reply
    1. lavalinda

      Jean putting one sling over another is more common than one dares to believe. But the end result is the same. A life of terrible agony. I am glad you are going to Dr. Raz.

      Reply
  10. peggy

    I live in Rogers , Ar, does anyone know of a Dr close to this area who is good at removing the CR Bard mesh kit. Someone who has used this dr and knows that he is good.

    Reply
    1. lavalinda
  11. Betty

    Lavalinda,
    Would you know of any Doctor’s in or close to Iowa that can remove a tvt-o. It was placed in 2005 and I have had muti revision surgery’s since 2009.

    Reply
    1. lavalinda
  12. Teresa white

    Do you know of any removal doctors in Ohio or nearby.

    Reply
    1. lavalinda

      Before you have surgery with any doctor in your area, read this. http://teapapers.com/bladdersling/2013/12/meet-dr-veronikis-a-great-surgeon/

      Reply
  13. Teresa

    Thanks for all of your help. Are you familiar with Dr. Veronikis in St.Louis? I have appointment for mesh removal and reoccurring prolapse. I am scared and hoping someone had positive experience.

    Reply
    1. lavalinda

      Teresa, I know several women who have been to him and they gave me good feedback. I am in touch with him and hope to write a blog about him soon.

      Reply
    2. lavalinda

      Teresa, I could not reply until I had what I needed to write a blog about him. Here it is. http://teapapers.com/bladdersling/2013/12/meet-dr-veronikis-a-great-surgeon/

      Reply
  14. Kimberly Duncan

    Do you know of any removal doctors in North Carolina? I had surgery almost 2 years ago and have had problems ever since. This past week, the pain and problems have gotten worse and I have to get something done. Thank you so much for creating this site and reaching out to all of us.

    Reply
    1. lavalinda

      None in your State and there are very few anywhere, but Dr. Veronikis is not too far away from you. I just posted a blog this morning. http://teapapers.com/bladdersling/2013/12/meet-dr-veronikis-a-great-surgeon/ I understand that many women would like to have someone where they live, but read this blog and understand why it is in your best interest to travel.

      Reply
      1. Kimberly Duncan

        Here is my dilemma, I do not have insurance and no one I know has the money to cover an operation. I am enrolled in a program that offers a discount, but it is only through MedWest in Clyde, NC. I had planned on going to see if I am eligible for medicaid on Monday. I went to urgent care a few hours ago and just returned home. The doctor found a hard bulge in my vagina and suspects that the bladder sling has become dislodged. I am going for a CAT scan tomorrow morning and was told to wait there at the hospital until I heard from someone. They may end up doing emergency surgery and that scares me to no end. I don’t want to get stuck with someone that may mess me up for life. I so hope that after tomorrow morning I get to come home. I hope this is something I am able to have some kind of control over. Thank you.

        Reply
        1. Kimberly Duncan

          Update: Well, I got my wish and was able to come home, because they couldn’t find anything abnormal. I asked if they could even see the sling with that scan and they claimed they could and said it had not moved any since last year. I asked what then, was hard and bulging into my vagina? They were just like “don’t do any heavy lifting” and sent me home. I have copies of the scan and am going to try and make an appointment with my gynecologist on Monday. They have an ultrasound machine in office and I am going to see if they can do a translabial ultrasound there. It amazes me that finally someone tries to help and then I’m shut down with a stupid little scan.

          Reply
  15. Help

    I am a single mom and have no insurance anymore I can’t go see a Dr because of it and have no clue even how to find one. Do you know of anything I can do to find some kind of help out there.

    Reply
    1. lavalinda

      Help. Please look into Obamacare because many women have managed to go to UCLA after they got it. It is discounted according to your income and then you can put into the search engine, Mesh & No Money and you will find ways to travel for free and get the hotel at a discount.

      Reply
  16. Dorothy Escobedo

    I need help finding a Dr in Bakersfield ca. I have no money and no insurance but I can get a loan for the surgery if I can find a dr who will do it and give me something in writing about how much it will cost me. I had my sling put in in april 2010 and have had pain every since then but could not see a dr for because I have no insurance or money to see a dr

    Reply
    1. lavalinda

      I know women who live there and they went to UCLA to Dr. Raz for removal but you need insurance.

      Reply
  17. Wanda lowe

    I live in Iowa, can you recommend a really good doctor that will remove in my area. I’ve had a bladder sling, cyctoceal and rectoceal with mesh. I’m so scared after reading some of the posts of other womans experiences. My symptoms are as follows: My rectum feels like its on fire inside, as well as my bladder, my stomach burns all the way up to my throat. I’ve always had some level of pain in my bladder area every since the surgery, sometimes its better sometimes its worse. It seems to be worse when I get constipated, which has been a struggle for me even before the surgery. I have the back pain all the time. I have a sit down job so I just blamed it on sitting all the time. I dont know where to go from here. I am seeing a doctor today to rule out a UTI or yeast infection. Also, for a while I was getting alot of UTI’S, I changed a few habbits and that seemed to get better. I’m wondering if I might have an infection thats gone beyond your tipacle UTI, I’m shaking and cold today and as well as fatiqued but I do have a cold I am fighting off. Could someone give me some guidence as to what to do next and what I need to prepare for with the doctors and journey ahead? Do mesh surgerys ALWAYS turn bad? I want to have it removed? PLEASE HELP! I’m having alot of anxiety about this, if I just new what to do I would just move ahead and do it. Thank you 🙁

    Reply
    1. lavalinda

      Wanda I can only recommend the doctor who removed mine and he is Dr. Raz at UCLA. I know all your fears because I travelled far from home to have it removed. I really don’t know if all mesh surgeries turn bad because doctors ignore women’s complications and many do not have them for a few years and do not understand why they are ill until they find this blog. Read this to help you

      Reply
    2. lavalinda

      Wanda I can only recommend the man who removed mine because I know what he did for me. Read this. http://meshangelnetwork.com/2013/02/mesh-is-a-journey/

      Reply
  18. Wanda Lowe

    What about the following doctors, they were both on this site and are much closer for me. Are there any others that can share there experience with either one of these?

    http://meshmedicaldevicenewsdesk.com/dr-veronikis-informed-consent
    http://meshangelnetwork.com/2013/02/conversation-with-dr-twiss/

    Reply
    1. lavalinda

      Wanda some women had good experience while others did not and because I did not go to either doctor, I cannot recommend them. All I can say is go onto a support group and ask.

      Reply
  19. Liz

    do you recommend a doctor in the Tampa, FL area?

    Reply
    1. lavalinda

      Liz I cannot recommend any doctor I have not been to. I have hear other women talk of this man but you need to ask a lot of questions if you go for a consult. Better than wishing you had later. http://www.lennoxhoyte.com/LennoxHoyte/Home.html

      Reply
  20. Tina

    Hi, I live in moncton nb canada. I can’t find a Dr who will help me. I get bladder infections once a month. Pelvic pain and pain with intercourse, I talk to my family Dr about it but he has no answers. I went and seen the Dr who put my sling in me and he told me it’t not the same kind. I asked him what the difference was and he told me the one that I have is a smaller version. I’m so upset with it all, I did my reserch and it is one that gives problems. I need to find a Dr that will do what needs to be done. Do you know of any dr.s in Canada that can help. I’ve had this sling in me since 2006 nothing but problems from day one. Please help Tina

    Reply
    1. lavalinda

      Tina I am going to put you in touch with another Canadian woman.

      Reply
  21. Need Help

    Can you provide doctors who do mesh removal in MA – do you know anything about Dr. Wakamatsu from Mass General

    Reply
    1. lavalinda

      Need Help I cannot provide doctors when I don’t know the outcome of if they can remove it all. I have not heard of anyone who can in MA and have never heard of him. There is a list of questions to ask before you have mesh removal and the answers should give you an idea. Put ‘questions to ask before mesh removal’ in the search engine and you will find the blog I wrote.

      Reply
    2. lavalinda

      Need help, I don’t know anyone nor this doctor. Read the blog ‘questions to ask before removal”. You can search in the search engine of this blog.

      Reply
  22. JoAnne Graf

    I am looking for a list of doctors in the Atlanta, GA area that do removals. Thanks.

    Reply
    1. lavalinda

      JoAnne. There are doctors in your area who say they do but they don’t remove it all. Look at the doctors at the top of this blog.

      Reply
  23. Jutta Werrlein

    Are there any Drs. In Orange County Calif. that are as good as Dr. Raz in transvaginal mesh removal? My Mom desperately needs help. She has no quality of life anymore and we are at our wits end in trying to find a Dr. To help her.
    Thank you,
    Jutta Werrlein

    Reply
    1. lavalinda

      Jutta, removing the anchors is very difficult but if you look at the top of this blog under doctors you can see Dr. Rodriguez. If mesh is in her bowel the long wait will be worth it to go to Dr. Raz.

      Reply
  24. Candy Johnson

    Please help me find a dr in so California to help me. This mesh is causing me almost unbearable pain. Dr Raz is booking months out. Please help. Thank you Candy

    Reply
    1. Linda (Post author)

      This doctor is second to Dr. Raz and she has done many, many removals now. http://www.meshangels.com/dr-kim-ucla/

      Reply

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