My Fascia Sling Surgery Part Eight
Today is Mother’s Day in the U.S. and Canada and I just enjoyed a lovely breakfast this morning made by my daughter. I am very blessed. I do know that many mothers will be spending their day trying to look bright for their children and yet they are suffering in pain. It makes me very sad. I want women to know that I truly understand and I hope for better times in their future.
I wanted to write today to report better news. After a week of highway running of 35 miles round trip for daily shots of Rocephin, I was not sure if it was working. My rear end is black and blue and they switch sides every day to give the other side a rest, but if it works it will be worth it to clear this bug from my system. On Friday my urologist did the first bladder rinse with Gentomicin to try to kill the infection from the inside. I have to tell you I was worried about all these antibiotics, not only from the standpoint of reactions but also from the standpoint of yeast. So I have doubled my daily probiotic supplements and still eating plenty of yogurt, which I must say I am tired of, but once again if I can beat this, I will do what it takes. I will have two more days of treatment including another bladder rinse on Tuesday and hopefully the bug will be gone.
This morning when I woke up I realized I had eight hours of uninterrupted sleep. My catheter bag was full, but I had slept soundly and well. This was the first time since I had the surgery three and a half weeks ago that I had slept and I feel better as a whole. So I am not more hopeful. I had truly gone into a downward spiral just last Thursday when I began wondering what my future was going to be and worried about my age and how I would manage. It is human nature to project ourselves into a future of worry and what if’s and it takes a conscious effort to pull ourselves back out of it, so I did. I knew it was not going to help me to become negative and once I had a good cry, it was time to pick myself back up and keep fighting.
Right now I am still on a path of the unknown, but I am as always proactive to get the best care and understand what I can do to help myself. In other words I am on my case. I have written a chart for my new urologist on Thursday, where I have outlined each dose of antibiotic on a daily basis. I do not want to overtake these antibiotics and cause more issues and she won’t be a mind reader. Friday was an eye opener when I had the bladder rinse. Dr Kim had said that the Gentomicin would be mixed with saline and injected into the port of the catheter but before doing so the pipe would be clamped. I realized what she meant as I watched this doctor do it. The clamp was to stop the infusion from going back into the bag and instead it would go directly into my bladder. Her instructions were that it should remain clamped for 30 minutes. My urologist followed her instructions to the letter. I watched as he cleaned the top of where it would be injected into the y area of the catheter. We women are so familiar with catheters which is in fact quite sad when you think about it. I had never had this done, so I watched to understand. All went smoothly and the clamp was released. I sat there for another thirty minutes to make sure I did not have an instant reaction and then I was able to leave. I can assure you that there was no discomfort or pain during this process. I felt a cool feeling as the solution went into my bladder, but other than that nothing.
Tomorrow and Tuesday will be my last two trips to Brenham and then we will have a day off before headed for the Medical district in Houston. That is about 130 miles round trip and I am hoping the catheter will be removed and all will be well. I have to think that way because this is a hard journey and thinking otherwise will be too heart wrenching. So it may be next weekend before I can report to you once again. Each trip takes a toll on me especially sitting in a car with a catheter. I now use a memory foam pillow to try to buffer the bumps, but it is very uncomfortable.
Before I close today I want to ask you to please do not repeat things unless you know they are the truth and verified by the person who tells you something. I am aware that there are many groups and forums but they are often a source of misinformation. The idea of them and this blog is to give women support and information but it doesn’t always turn out that way. I want to assure you that in the three years I have been doing this, I have not had one other women tell me she has the pseudomonas infection. Or indeed anything else serious from her trips to UCLA. It can happen of course, but I am sure these incidences are rare. I can promise you if I had heard of this I would tell you the truth. I want you to understand that there are often reports of things on forums that are not verified and that make me uncomfortable. Please do not become part of the problem. Be part of the solution and do not pass these things along on these groups and forums. You will give women unwanted fears of things that have never happened and add to their pain and stress. I am an open book here because I want women to understand the truth and what to do about it if it were to happen to you. That is a big IF! The chances of it happening to you are slim to none.
You should also be aware that many women are close to dying when they make it out to UCLA. That is because they have been told for years that mesh does not cause these complications. Ignorance or arrogance, you should decide. I do know this. No matter how bad these women have been, the surgeons at UCLA opened their doors and tried to give them back their life. This, when other doctors turned their backs on them and left them to die. I know the truth because I talk to these women. So I am grateful to these doctors and this hospital because they never give up on women. I hope you are too and will remain thankful if your journey takes you to their doors.
I also want you to know I am not dying and I am very much aware of this infection and I am proactive with my treatment. If you read anything to counter this, please set the record straight.
I have been serious in my non medical approach since the day the sling was put into me and I had immediate complications. I have not missed a day of supplements except close to my surgery days as instructed by my surgeons. I have a very good immune system. I believe taking control when I was first told by the insertion doctor that I would have to be on a maintaining does of antibiotic, saved my life. I avoided taking antibiotics and I hope that avoidance has now stood me in good stead to fight this infection. Over use of antibiotics is seriously wrong and I have never taken part in it. I take what is needed, and then take action.
My journey will continue……………
These blogs may help you understand things you can do to help yourself. You have to decide what those choices will be.