Becoming a Mesh Survivor
Yesterday I had a lovely talk with a woman who should be described as a true miracle mesh survivor. She called to tell me she went to see a doctor that she had been to see before the mesh was removed. She said when she walked into his office He just stared at her. Then he said “I can’t believe it. You look so good”. Why? Because the last time he saw her she was at death’s door. Seriously she was at what should have been the end of her life. But she never gave up…. This doctor told her she was a miracle and she is because she never stared at the open door of death as one she was ready to walk through. That is a decision we all have to make for ourselves. Instead she beat down doors to get out to UCLA and Dr. Raz removed her mesh in May of 2012. Yes it was touch and go but she survived it because of the great hands of this special surgeon. And she is a miracle. You too can be another miracle survivor.
I still find it hard to believe it wasn’t that long ago when she contacted me with a short one line sentence. You can read that blog here. http://meshangels.com/2012/03/mesh-can-kill-you It has been just over one year since she sent me that note and it is amazing what a difference a year can make in a person’s life. By all right’s she should be dead but she is alive……… You may read this blog thinking there is no hope for you and life is not worth living. I can’t change your attitude and give you the will to fight to live, only you can do that. I can’t make you believe you have a purpose and a reason to be on this earth, only you can do that. But life is worth living and you too can be a mesh survivor.
Attitude. Attitude is a giant part of how we look at our survival in this race called mesh. If you have a defeatist attitude before you begin, then no one can break through and show you the way. It is up to you to change it. I have always been the kind of person who looks outside on a rainy cloudy day and thinks “They’ll soon be a ray of sunshine coming through”. I believe that life is for living and even on the worst day, there is a reason why I am on this earth. Attitude can make a big difference as to how we tackle life and controlling your attitude and using it to get through the perils of life can make all the difference to your survival.
Why me? Poor me! The one thing I have learned through my own life is that everyone around us gets sick of hearing the same thing. “I hurt”. “I’m in so much pain today”. “Why did this happen to me?” The answer isn’t there and those around you cannot help you get through this. Only you can get through it hour by hour in the best way possible. And yes, mesh is a life filled with agony and anguish. So be careful. Don’t push away those you love and who love you by repeating your pain over and over again. They know you hurt. They see it and yet they cannot do anything to take it away. There is a very fine line between caring about your suffering and being tired of it. No it isn’t right, but it is the truth. Try hard to smile at them even through your pain and try to show them you are doing the best you can with a terrible situation. Then perhaps they won’t run away from you in you worst hour of need.
I have written so many blogs here that I know it is difficult for you to find your way through them so today, before I head out to UCLA to have fascia sling surgery; I am going to give you an index of what it takes to become a mesh survivor. However, if you are someone who wants a guarantee before you make the trip to a better life, I am sorry, neither I nor the doctors who do a really good job of removing all the mesh and arms/anchors without injuring you further can give it to you. All we can provide you with is hope for a better life.
If you know you will have mesh removal soon but have not taken steps to take supplements to help you through the time, then you should look into a serious plan of action to stay on the best course of wellness that you possibly can. I am not talking a one a day multi vitamin. I’m talking about a way to protect your whole immune system from being totally destroyed. Only you can decide what you want to take and what your situation is, but I wrote about the many things I take. You need to set up your own plan of action and become a future mesh survivor. This is a guide only. http://meshangels.com/2013/02/running-a-mesh-marathon When you go out for surgery make sure you take your supplements with you and begin them as soon as possible after your surgery is over. Eat small meals even when you don’t have an appetite. Make sure you take what you need to make sure you do not get constipated and don’t wait to begin that either. The worst thing you need is to be terribly constipated and pushing after you’ve gone through the mesh removal.
At first you will have a lot to concentrate on and do to get through the surgery ordeal and the trip home. You will feel euphoria after you know it is all gone and you survived. Then you will hit a slump and that slump will be amplified by those around you who think two weeks has gone by and you should be up and running. I wrote a blog for you to share with your family and friends and this is the link. http://meshangels.com/2012/12/mesh-removal-blues Frankly if they don’t get it after you give them this blog to read, then all I can say is change friends.
Please, please expect it to take three months before you will begin to feel better. Then expect it to take six months before you will be able to resume some of your normal activities. Then sadly they may be restricted if you had serious nerve damage before the surgery. I am one of those women who have to live with it, but that is the key. Learn to live. I have not been able to change the path of downward events to show the world what mesh has done and will continue to do to women around the world. Believe me it is quite depressing to not be able to change it, but then again Rome was not built in a day. And it was not built by one person. If every woman speaks to another and another about what has happened to her, you can change the future of one woman’s world. How do I know this?
One lady I know cannot have her mesh removed because she has a rare lung disease and she cannot get through the surgery. This woman is very inspiring because she does reaches out to others to get the word out. She told me that she just met a woman who told her she too was sick. The lady began carefully with her own story and before she knew it the women looked at her and said “I had a sling put in me too. Could this be why I am in so much pain and feel so ill?” She gave her my blog address and told her the best place to find out was UCLA. No she cannot go herself but she unselfishly wants to help others. You can do this too.
It may seem hard to believe but there are now many mesh survivors who made their way out to UCLA by fighting to get there. This blog is not that old and many have had only had removal in the past few months. I am now seeing those unselfish women who leave comments here on various blogs to let women know they did survive and life will get better if they make the effort to go to the right doctor.
All I can say to you is this. I am a mesh survivor……………….
This is my journey and that of many women who take the first step. http://meshangels.com/2013/02/mesh-is-a-journey