I woke up this morning thinking about all the women who need help and cannot get it due to bladder sling mesh. How infection is spreading through their bodies and no one tells them how serious this is all because they don’t want to frighten women. I know how they feel but staying silent won’t help these women, in fact it won’t give them a chance at a better life.
If I stopped speaking out then I know more women will be severely injured by doctors who have poor skills in removing mesh or infection will spread throughout women’s bodies and they will eventually die from them. How soon will it take? Well, I don’t have the answer to that and nor would any doctor. But I am going to give you two examples of women who went through this and they spoke out.
First, I had to look up to see when this happened to remind myself of how far this woman has come in so short a time. If you read this blog you will know when and how this came about. http://meshangels.com/2012/03/mesh-can-kill-you It was dated March 27th 2012. I had to remind myself of the date because even I can’t believe this woman has done so well in so short a time. I never used her name or any details when I wrote this blog because I respect the fact that many women do not want to speak out. But later she did speak out to a lady who has become a friend and she is a medical news reporter. Her name is Jane Akre and she has been horrified that this has happened to so many women, even though she does not have mesh herself. So you can read about Mary here at that time. http://meshmedicaldevicenewsdesk.com/patient-profiles/suffering-in-silence-mary-blanks-not-silent-anymore-about-transvaginal-mesh-sling
Why am I writing about Mary today? Because this is ONLY one year later and she is now staring at her garden pond that she had not finished, thinking about if there is now a way to finish it. She admits she won’t be digging for awhile or perhaps ever again, but Mary is thinking about her surroundings and her future again. That is an amazing miracle when you know how seriously ill she was at the time I wrote the blog. She now runs her business from home because mesh took so much out of her and she is the matriarch of a family that includes her husband, children and grandchildren. She now thinks about family gatherings and watching her grandchildren grow up. Why is this so surprising?
Well you can read Mary’s story on the last link and get the gist of why. Mary was in such bad shape that living didn’t look like it was possible. Puss oozed from her body. A surgeon had opened her up, took one look and closed her back up again. Result. “Go home and get your affairs in order”. Somehow her will to survive took over. She found my blog and sent me the short note that I wrote about on the first link. Now at this time, when I ask Mary to speak to another lady who lives in fear of having her long term mesh removed, she says “Of course Linda”. She wants women to know that there is life ahead but you have to be brave and face this full on so that you can live again.
Mary’s mesh was in her almost nine years but sometimes infection can happen very quickly. Lisa found me and we spent a few emails going back and forth all because she had been told by an infectious disease doctor to get the sling out quickly because her infection took over at the speed of lightening. Lisa has spoken out many times about what this does to women and she too did her story with Jane. http://meshmedicaldevicenewsdesk.com/patient-profiles/suffering-in-silence-no-more-lisa-pashenee-takes-her-mesh-protest-public Lisa couldn’t wait to get in with Dr. Raz so she went with Dr. Rodriguez and had hers removed much sooner. Although her sling was only in her ten months in all from the time it was put inside her body until it was removed, Dr. Rodriguez told her she had never seen so much puss come out of a woman’s body. Where is Lisa now? Well on the phone trying to help women get over their mesh surgeries and yes, she is doing well.
Women have written to me asking me more or less for a guarantee. A guarantee that they will be able to go back to work and continue life as normal. Or a guarantee that Dr. Raz or the other doctors can remove their mesh and make them whole again. We can’t do that. No one can do that. But if you don’t see about removing it if you are doubled over with pain from infection, or puss is coming out of your body, or you smell something terrible ‘down there’, then you do not have a guarantee that you will live, let alone live a new life.
So stop asking for guarantees and starting working on a guarantee that you will live again. How, I can’t tell you. How long it will take you to get well after surgery, I can’t tell you. If Dr. Raz, Dr. Kim or Dr. Rodriguez can guarantee everything they can do then they would not be human. No one can guarantee anything. But I can guarantee this one thing. I know the truth.
These two women have spoken out and I can say their names and give links about them. Others I can’t because they don’t wish it. They will tell you the same thing. Stop dying and start living. Don’t let infection win your war. Fight back and live again.
If you don’t like the words that women are dying from mesh, then don’t read this blog. I speak the truth as told to me by thousands of women. They would not want it any other way because they want you to live too.