Mesh & Your Kidneys

There are many types of complications from bladder sling surgery and this blog is about one of them. I have been asked to write this because one woman feels that many women could be helped much sooner and they won’t have to face as much damage as she now faces. She also wants you to know that this can happen very quickly because her sling was only put in one year ago. Now she is facing possible kidney damage and continuing care of her kidneys for the rest of her life.

She had the sling put in on March 2012 and both her and her husband felt something was wrong very quickly. But like the rest of us, she was told all was well. The sad fact is, we want to believe all is well and we try to go on. The idea of thinking that a surgery could damage us is difficult for us to believe and we all had a life before surgery that we want to continue. This woman has three children and the youngest is five, four at that time. It is hard to think about illness when raising a young child especially when you aren’t told that this surgery can lead to more health issues nor any complications are recognised.

She began gaining weight quickly after surgery and she sent me photos of how swollen her legs get and other parts of her body. I asked if someone had checked her kidneys and she said she had asked but her worries dismissed. Someone had told her they thought it was lymphedema.

I had not heard of this as a side effect of mesh complications, so I looked it up. http://www.lymphnet.org/lymphedemaFAQs/overview.htm I can understand why someone would think this could be it, however first thing should have been done to rule it out was check her kidneys. That didn’t happen. She told me she had a partial removal done, or as some doctors like to say ‘revision’ and it had helped a little for awhile, but not long. Of course she was having difficulty urinating like so many of us do after a sling was put into us. My suggestion to her was that she find her way out to UCLA as quickly as possible because it did not sound or look good to me. I knew she could get an appointment quicker with Dr. Kim and she did. She saw her very early in March, less than two weeks from the time I am writing this blog.

The first thing Dr. Kim asked her was “Has anyone done a kidney ultrasound on you?” She explained that she had wanted someone to check her kidneys, but no one would. Dr. Kim looked very grave and said when she came back for surgery they would run this test along with others before the surgery was done. She also said that she must get the surgery done soon. Thankfully she will have it done next month which is very quick for UCLA, so this shows how serious kidney issues are.

So this young woman wants you to know that if you have any swelling in your legs or anywhere, force the issue and get your kidneys tested. She has been to several doctors where she lives and none suggested it. Most doctors acted as if there was nothing wrong and others ignored the swelling. She is trying to work to keep her insurance and she said sitting all day is really hard. By the time she gets home from work her skin hurts and she has to go and lay down. She also has constant brain fog.

Even though she has surgery scheduled quickly she also began reading how she could help herself. Then she began a low protein diet. She called me to say that in a few days she lost eight pounds of fluid on this diet and she felt a little better and the brain fog lifted. She also added marshmallow root and supplements to try to help her keep well. At this point, the mesh must come out soon to give her the best chance at recovery.

I did some reading myself and found that if there is any obstruction, then your kidneys can be affected. Dr. Kim told her she feels the mesh is already in her bladder. You can read more here.
http://www.nlm.nih.gov/medlineplus/ency/article/000507.htm Those of us who had mesh in our urethras can relate. I lived on marshmallow root for the entire time I waited before my Medicare became available. I know it saved me from kidney disease. This is a great article about how they used it in the days before prescription drugs were available. http://www.woodherbs.com/Marshmallow.html Gravel used in old terms is kidney stones. I have had many women contact me to tell me that they had kidney stones often and how painful it was along with the mesh complications. You can also read here as to the capsules I take. It is very inexpensive. You have got to stay well while you wait for surgery. This blog will give you ideas and help with infections. http://meshangels.com/2012/09/mesh-my-wellness-plan

This woman is taking charge of her health now that she understands what is happening. She is reading and working at changing her diet and life. She has promised to keep me and YOU informed of her progress after surgery. Then I will add updates here. In the meantime here are links that could help you understand what to do if any of this sounds like your symptoms.
http://www.nationalkidneycenter.org/chronic-kidney-disease/?gclid=CJvo2KyjgbYCFQKoPAodoGgAZQ

Hopefully getting the mesh completely removed and her new diet and life plan can reverse her symptoms. http://www.ehow.com/way_5439153_reversing-kidney-damage.html

 

Please, if you recognize any of this, get the right help soon. This link will take you to many links so that you understand the journey it takes to remove mesh and how important it is to go to the right doctor. http://meshangels.com/2013/02/mesh-is-a-journey

 

14 Comments

  1. InAZ

    I had to have one of kidneys removed from urine backing into the kidney and chronic genitourinary infections, from the bladder to ureter then to the kidney. If you have urine obstructions it can damage kidney(s) within a year.

    Reply
    1. lavalinda

      In AZ, yes it can. A couple of days ago I wrote a blog about a woman just like that. http://teapapers.com/bladdersling/2013/03/mesh-your-kidneys She wanted to warn women that this can happen.

      Reply
  2. Sandra Newcomb

    About 1 1/2 years after surgery I started experiencing severe abdominal pain and gaining weight.Six months later I was near death from mulptiple organ failure. I had went into renal failure,liver failure,and had pancreatitis.Drs. could find no reason for this happenning even after having a kidney biopsy.They dismissed our concern that the sling may have caused it.They were able to get liver working and treat pancteatitis,but kidneys refused to work.After a week of being a guinea pig,they decided to have a port put in and start dialysis.I took dialysis 3 times a week for over 2 months and they started working again.I still suffer from severe abdominal pain and bouts of pancreatitis,and must keep my kidneys monitored.

    Reply
    1. lavalinda

      I truly hope that one day you will be able to get the mesh removed. You have a very sad tale but it should be here for others to read. Thank you.

      Reply
  3. gina

    My doctor told me my records were destroyed! This happened in 2004 it is not on my operative report. When I asked why it was not he simply said they may hsve put it on a seperate paper. He said he reported it, has anyone had to research for their records and go through this? Please help, mine is almost protruding through and my urologist said it needs to come out. He asked for the operative report from the hospital, the hospital has nothing. The doctor said he only uses the Monarc sling (TOT). Please help I have to research for myself.

    Reply
    1. lavalinda

      Gina they must be stored somewhere for ten years at least. Read this. http://teapapers.com/bladdersling/2013/03/medical-records-law/

      Reply
  4. gina

    Please visit Mesh Medical Device News Desk they have started a petition to put a stop to TVT Slings. February 10th.

    Reply
  5. gina

    Thank you Lavalinda! But I feel like I’m out of luck I still have no answers.

    Reply
  6. angel

    my urologist thought I had a kidney stone and did a CT scan on me in November of 2014. It showed that I had an enlarged liver.February the third I had to be rushed to the hospital and found out not only do I still have the enlarged liver but my pancreas became inflamed and I’m not a diabetic but my red blood count was very high I don’t drink alcohol. I’m wanting to know if anyone has heard of anyone having problems such as this… I had my mesh removed in 2013

    Reply
    1. lavalinda

      Angel Have you been on pain medications or anti depressants Angel? Many women have these symptoms because they have mesh complications. You did not mention any actual complications and I suggest you put mesh & hysterectomy in the search engine and reading all the comments to see if anything matches how you feel.

      Reply
  7. Tina

    Hi, I had bladder mesh surgery in 2007. About 6 months after surgery I became very sick and had a knit the size of an egg on the right side of my lower abdomen. I had to be hospitalized and my Dr figured out the reason I was so sick was because my body was rejecting the mesh. I had to have surgery to remove the mesh and my urologist used pig skin for the sling when he removed the mesh. In 2012 I became very sick and almost died. I had to be hospitalized and my internist figured out that I had an abscess on my right kidney. I will always have the abscess but I’m ok as long as it doesn’t fill up with fluid again, and it could at any time. After reading some of these comments I’m wondering if the bladder surgeries us what caused the abscess. If the abscess fills up again it can be life threatening very quickly if I don’t go to the Dr so I’m always worried about it happening again. Any info on kidney abscesses being caused from bladder surgeries would be very much appreciated. My urologist that did both bladder surgeries said that it was caused by a UTI that I did not get treated. He would NEVER admit the bladder surgeries could have anything to do with it. Please help!

    Reply
    1. lavalinda

      Tina I researched to help you, so read this blog http://meshangelnetwork.com/2015/05/kidney-abscess/

      Reply
  8. Tina

    I forgot to mention that I have a little blood in my urine all the time that I assume is from the kidney abscess but I’m not sure. My urologist won’t help me and I refuse to go back to see him.

    Reply
    1. lavalinda

      Tina I understand and I would make an appointment with Dr. Raz at UCLA.

      Reply

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