Dying With Mesh
Tomorrow will mark the three year anniversary of when the mesh sling was put into my body and in three days I will have been mesh free for five months. Even though I still have nerve damage and walking is still my biggest issue, I feel grateful that the mesh will no longer destroy my body and further me down a road of hell. I am lucky……..
What saddens me is all the women who are walking around very sick who do not know it is the mesh causing their long illnesses. Women who have been told they have various illnesses over a few years, but nothing is truly defined. In the end they are given pain meds or meds for depression and left to die a long and painful death.
I know they are out there because when in desperation they begin searching for answers on their ‘good’ days, they come across this blog and suddenly it dawns on them that they too could be a victim of mesh. They take action by first getting their records and then reading what went into them, perhaps many years before. Yes, most women do not know that they have mesh in their bodies.
This is why when one lady told me that she had noticed her friend was really going downhill health wise, she wondered if she too had mesh in her. This is because this lady is a mesh sufferer, so she asked her friend did she have a mesh sling when she had a hysterectomy. Her friend of course had no idea, but she said she would find out. She knew something was wrong because she could not bear her own son hugging her because of the pain she felt. As it turns out, when she did get the records, yes she had a mesh sling put in nine years ago. What to do now she wondered? My answer was for her to get a consulting appointment at UCLA and take everything with her. She needed to be examined, but I have no doubt the mesh will be the cause of her downward turn.
Many women wonder how long it takes for complications to arise. The answer is there is no answer that can satisfy our need to know. We are all different. It could be immediately after the sling was put into your body. Or it could be a slow and barely noticeable irritation of a slight pain in the groin, back, or hip. That increases over time until you find it difficult to sleep. Once that happens it often speeds up and then you have a hard time walking and the pain intensifies when you do. Or you could have gone happily on your way in life for five years or more but then you begin to have stomach issues that are often diagnosed as IBS. Or the leg pain begins slowly and you try to exercise more to stay in shape, thinking you must have pulled something. The symptoms are endless for mesh complications. So endless that one kind should never be left out because all women’s symptoms should be recognized. However, the most common are the ones mentioned above.
What happens if you wait? Well I can tell you if you have come to this blog and you begin reading, you will break down and cry first. The tears will be part anguish and horror at what you are reading. Then the tears will be anger tears because you suddenly realize you could have been saved much sooner had anyone recognized mesh complications. Then the anger turns to overwhelming thoughts of “How can I get this stuff out of me now? How can I afford the expenses? Who will take care of my children?” Believe me I have spoken to so many women by now and have cried with many. It truly is overwhelming to think about this all at once. So don’t. Deal with this in baby steps. When you find yourself crying at the drop of a hat, stop and try to enjoy things around you. A child or grandchild. Your garden or hobby. You cannot allow yourself to sink so far into depression you don’t know how to get out. Life is for living, not for dying. Never stop living while you make plans to have the mesh removed.
But don’t ignore this forever. In the end you have to ask yourself this. Do I want to die a very long and painful death? What will happen to my children if I die? I don’t care what age they are, from small to grown, you will want to fight hard to help them through their own life ordeals. You know your wisdom and life experiences can be a good guide for them. So you don’t have a choice. You must get help soon.
The other thing I want to write about today is this. Share with other women. Don’t remain so private with your own complications that no one knows what is wrong with you. Why share? It is simple. Your will save other women’s lives. This is why this woman did such a wonderful thing for her friend. She saw the changes and she asked the right questions. You too can do this. Sharing is caring.
There must be thousands of sick women who had hysterectomies years ago that do not know that they have one or more mesh pieces into their bodies. The only way for them to find out it that first a loving friend suggests that they do. Then they are there for them when they realize they too have mesh complications. Be aware that it will be doubtful if they go to the doctor who put it in them, that they will get any answers. Or if they go to most doctors, mesh will be dismissed. Encourage them to go to the only place that can do the translabial ultrasound to see what is going on with their sling. No other test will show where it is and what it is doing to your body.
I know you will be so afraid and so angry at first. I know because I have been there and at times still do. You should also be aware that you will have flashbacks of anger and sadness for a very long time. This is because we know that women will have these slings every day from now on and we all wonder the same. “How could they do this to more women?” The sad part of dealing with the reality of life is, we rarely get the answers we want. So don’t stay there. Move forward and help yourself and help other women.
I have spoken to so many women over the phone that I lost count a long time ago. But what I gained was a vast knowledge of mesh complications as told to me by the women themselves. It is easier for me to know pretty much immediately that mesh complications are going on. I beg women to get the help they need as quickly as possible. This is because I do not want more women to die.
I have often wondered about the women who never know that mesh has been destroying their bodies for many years. What will be written on their autopsy after they die. I have no doubt that the puss infected abscesses in their bodies will not be written down as mesh causes. More than likely they will be written as cause unknown. You see these abscesses are at bursting point when they are in terrible pain. If they go to a surgeon and they open them up without understanding how to remove the mesh at that point, they will close them up and tell them to get their paperwork in order. Yes, they send them home to die. It truly happens.
The mesh journey is long and very difficult, but we are all stronger than we realize. Don’t give up. Learn to live life again. This link will take you to my journey. I have shared everything about doctors, tests, travelling and even the most intimate details of what the mesh journey is like. I did it because I care what happens to women. http://meshangels.com/2013/02/mesh-is-a-journey
Life is still worth living. Don’t give up…………………