Dear Ladies of The View
This morning as always I dread checking my emails. Why? Because I know there will be another woman whose life has been cut short because of bladder sling mesh. Somehow I have to find a way to make her feel better and yet how do I do that? It’s almost impossible but the only good news here is that she is in a State where she CAN get help. But at what cost?
The following comment was left on my blog by a young woman named Heather. Once again it was left on the blog Bladder Slings & Hysterectomy. There are many there that you can read from just this past month along but what you can’t see is the many private emails I get from this same blog and all the others. Check it out if you don’t think this is still happening day in and day out. http://meshangels.com/2012/04/221
hi lavalinda, please help me and please excuse my messy post due to the fact im crying uncontrollably after reading all of these posts and have a glimpse of my horrific future! i am 35 yrs old and have lupus and just had the sling and hysterectomy done at lomalinda university 2weeks ago. i was able to come home without a catheter but im suddenly having severe shooting pains and wasnt sure if it was normal to last this “long’ after surgery. i have been battling medi-cal for the last three years just to get approved to be referred to lomalinda because my incontinence was so bad. and they assured me that the sling would get me out of diapers and wasnt the kind on t.v. I have been out of work already due to the incontinence and my degenerative disc and few vertebraes slipped behind each other due to the lupus and if not for my parents help my two daughters and i would be homeless because i have no money or way of getting back into the work force but have gotten the run around with medi-cal and disability so still nothing and i thought that if i could just fix the incontinence i could return to work and maybe just deal with back pain for as long as possible, but now im FREAKING OUT!!!! i cant take much more!!! please help me and tell me what i should do and how to go about it or who to talk to and what to ask. i have my post surgery follow up appt next week at lomalinda but not even sure i can wait that long with this cramping and shooting pain kind of where my ovaries and uterus use to be. also i can feel the sling when i pee it feels like i have to slowly painfully push my urine out a strainer?? and my right arm still hurts which they said was due to the anasthesia and would go away after few days! anyway please give me hope so i can go on for my two angels they still need me im mom and dad to them and my parents are getting old and i need to get well enuff to make some money again or find away to get approved for disability help and also get healthy to drive them around and take care of them!
Ladies. What would each of you say to a thirty five year old woman who has health issues, has been fighting to get help through a string of red tape? Then once she finally got the help, she has no clue this could happen to her. Well ladies, I have to do it regardless of the sadness I feel for her.
First I had to leave an answer to her comment in the hopes I can save other women from following in her footsteps. This was my reply.
Heather, this is why I keep battling to save women like you who NEVER should have a mesh sling because of all your other issues, yet alone because slings are doing awful things to healthy women such as me and thousands of others. I am so angry this happens in a State where you could have gone and had help and a sling made from your own tissues by doctors who know what they are doing at UCLA Urologists. This is an outrage that this still goes on. I am going to make contact with you privately but I wanted to answer here in case any woman finds this who may be having a hysterectomy because there are people who can do this surgery WITHOUT mesh. Go to this link and it will give you doctors who can do a sling without mesh, do whatever else is needed and it will also take you to links to show my journey through removal. And I am not done yet. I will have another surgery at UCLA in April and I will travel from Texas to do it. Why because I don’t trust anyone else.
You must take charge of your own life and say “NO TO MESH!” Read here. http://meshangels.com/2013/02/mesh-is-a-journey I can’t save every woman out there but some of you can save yourself. If you think travelling across the country will cost you too much money now or it is an inconvenience, you don’t have a clue about what a mesh sling will cost you from now on if they put it into you. Your family. Your home and your livelihood will go down. That is the legacy of mesh. Don’t believe doctors who lie and says they don’t use the mesh of lawsuits. Believe me, they are all being sued. EVERY SINGLE COMPANY WHO MAKES THESE SLINGS. This must stop and the first step to stopping it is with women who will have hysterectomies from now on. Read this blog about a young woman, 38 years old who has been dealing with this for 10 years because of a mesh sling, which became two mesh slings when the first one had screwed her up. TEN YEARS! This is not a joke. This is fact. http://meshangels.com/2013/02/living-in-mesh-hell Believe none of these doctors who tell you they have not seen any problems with THEIR patients. Or that they don’t use that type of mesh. Walk away. Spend money now and save your future and that of your children. I feel terrible for you Heather. This should never happen and yet it does every day all over the world.
Now I have to write to her personally and give her as much support as possible along with four other women who do their best to help these women. It is such a sad state of affairs that because we do this we cannot live our own lives nor deal with health issues we all have, due to mesh complications. Even after removal. We want to move on but we don’t know how because so many women continue being injured, while we tackle the backlog of cases where women have had mesh in them for many years.
When I had my own removal surgery at UCLA, I came home to a bedroom prepared to carry on while I healed. A laptop hooked up so I could continue to answer emails and comments and lend my support to women. I never got to be a normal patient. I could not just lay there and watch Netflix, TV and just get well. I had to deal with this stress every day from the moment I came home. Why? Because no one cares about women in crisis. Please ladies, DO SOMETHING! I will have yet another surgery at UCLA in April and once again I will make sure my bedroom/sickroom becomes an office. I need your help desperately so that I can concentrate on my own healing. There should be a team of professionals set up to do this, paid for by the mesh manufacturers. Not a tiny group of injured women who cannot get on with their ‘new’ lives of the mesh injured.
At what point will the media get it. Stop interviewing doctors who like to boast about what they do, when they do not have the proper skills and yet they also put mesh slings in EVERY DAY and say there is nothing wrong with them. Please work with us to change things before thousands of women will be injured when thousands have not yet had removal surgeries. These slings are NOT MADE TO BE REMOVED! Manufacturers need to wake up and destroy them BEFORE they destroy more lives. Not just those of women but those of complete families.
I BEG you ladies. Please do something. We cannot continue to do this alone, it is wearing us down. We need YOU!
When someone emails me this soon after surgery it is difficult to know what to say to them, so I asked Dr Raz. I know many women who have pain after surgery, but the shooting pain did not sound right. This was his response.
Tell the patient to call the office for an appointment.
Shlomo Raz M.D. Professor of Urology