Mesh & The Katie Couric Show

Late this afternoon I watched today’s Katie Couric Show about women who were dying to be beautiful. Told were stories about three different women who had serious complications or died from surgeries that they thought would make them beautiful. Like everyone else, I watched with horror and sadness. One lost limbs, one died and one was seriously injured because of different beauty procedures.

I tape this show because I am often caught up with phone calls or emails from women who are mesh injured and don’t know where to turn. By taping them I can stop the show and watch it later while I take their calls. Because of the sadness I hear I had to limit taking calls after six in the evening because I could no longer sleep after I heard the stories that remind me of Hollywood, horror medical stories. But the stories I hear are of legal procedures done in every part of this country and many parts of the world.

A board certified plastic surgeon spoke about what you should look for before you have any plastic surgery procedure. As I listened to this man, I wondered yet again why no one warns the mesh injured women about bladder sling surgeries and I wonder yet again who is minding the store?

We have a government organization called the FDA. Each State has a Medical Board. Where are all these people? What do they do with their time? Why are implants so frequently used in surgical procedures, but reporting complications made so difficult? I did report mine after weeks of working to get my medical records from the hospital where the procedure was done. I learned that the surgeon who puts it in keeps no record of what was used, or the product code number. It was a waste of time and money getting the records from that doctor’s office. They told me nothing.

I had an R.N. friend at that time who explained to me what to look for and where. I was a complete novice at this. It was the beginning of my journey to find answers and get the help I needed. My life was filled with pain and anguish. I could not sleep for pain. I did not know who to turn to and what was happening. I was fighting a system designed to protect manufactured products and the doctors who use them. That is why I began this blog.

During the two years I have been doing this, women have flocked here. Brave women leave their comments and women struggling with ill health and pain find and read them. I am forever grateful to all women who do this because you are helping others. You are giving them their first moment of discovery as to why they are so ill. I could not do this but for all of you and I appreciate it.

While I have often tried to find a way to help women with money to travel to UCLA to get the help they need, I have ran into brick walls. I tired of doing that and switched to giving women more information and the desire to fight to help themselves. It is all we have. We cannot lie in bed while our bodies deteriorate further. We have to find the will to live and the will to fight. Keep fighting ladies to win this war. If you have any strength, report your complications to the FDA. What is happening is so underreported and no one will do it for you. Not your doctors, not lawyers. You have to do it.

Please read this blog and when you feel well enough, take the time to report your case. Until all our cases are reported, the manufacturers are laughing at us and telling the doctors “IT IS NOT THE MESH”. We all know it is.
http://meshangels.com/2011/01/report-to-the-fda

You are the only one who can be brave enough to make the next move. If you have read enough of this blog you already know what I am going to say next. Make an appointment to change how you live now. There are three doctors who can help you move forward. Not fix you, because it may not be possible to completely fix any of us, but give you a chance at a better life. Read this blog and do it.

The doctors of UCLA. Please watch the video. http://meshangels.com/2012/08/so-much-hope-for-mesh-removal-surgery/

I have learned a great deal while writing this blog. A blog is something I write, but you, the women of the world make it real. I appreciate you all for doing this.

6 Comments

  1. gina

    I just read your blog and I am in the same situation. They can’t locate my operation report. But my doctor told me verbal its a monarch sling, but said he has no medical records to give me! The bad part is I didn’t even know he put it in because there was no reason, he told me he removed scar tissue and I had to dig after having all the problems everyone is going through. Thats when he explained and told and drew a picture of what he put in me! He made me feel like nothing was wrong and No way could it be the sling, this was in 2004. I’m now researching and Thank Goodness for this blog because it gave me a lot of answers! I was 28 when he did this I am 39 and starting to get really bad symtoms. My urologist told me its almost protruding through and needs to come out, he also told me he could refer me. No thanks I’m in Houston from what I read no one is familiar with using your own tissue and all them seem to believe in all the horrible things all of us with mesh are dealing with and trying to get out. I will try to get to Dr. Raz as soon as I can. Again I can’t thank you enough for this site!!

    Reply
    1. lavalinda

      Gina I sent you an email but you have not replied. I hope you will.

      Reply
      1. gina

        I read it but Hospital is the one telling me they don’t have it. They cannot provide me with an Op Report.

        Reply
  2. gina

    And my doctor basically said he shred them “sorry”is all I got!I

    Reply
  3. Lisa

    Hi,I have the “Mesh” I filed my lawsuit in 2011 & have suffered since 2003 when I was 23 I had a partial hysterectomy & mesh bladder sling put in my Dr recommended both surgeries i had my 2 girls in 1995 & 1997 & my son in 2001 after having my son I started leaking so I trusted my Dr of course,shortly after the surgery I had to have another surgery this one was for my urethra being blocked,I had many symptoms,I never knew it was the “Mesh” I had severe pain in my stomach & lower abdomen so the same Dr said it was my Gallbladder,he then removed that but the pain only increased I was back & forth to Dr’s & Emergency rooms with severe Uti’s,then before Easter in 2006 I started bleeding I was admitted to the hospital for a week,the Dr’s were clueless never could tell me what was the reason but I knew something wasn’t right,I kept on suffering in horrible pain everyday my pelvic,my Lower abdomen,I was having severe stabbing pains I kept an Uti my back hurt daily my life became miserable,I was so young to feel so bad I had tests done for hormone levels they were all good,I had thyroid tests done they were good,I was in a nightmare,sex with my husband was impossible it hurt me & he could feel something in there he kept saying,I was having to have a catheter put in & sent home so it usually stayed for a week or so,finally I saw another Dr she diagnosed me with intercystial cystitis in 2010,I tried a few other Dr’s no one would help no one would listen I knew it was something much more than they were telling me,so I went to see another Dr in 2011 she put a pacemaker in my side that was to assist my bladder to release because I wasn’t releasing but about 25 to 30 cc of urine & had urgency but nothing would happen & it was causing me more pain more frustration the pacemaker of course wasn’t working still no release going all night to the bathroom but nothing was happening so I started to self cath again,I was in & out of the ER with Uti’s I felt pressure,pain,stabbing,my back pain increased to unbearable pain I kept dealing with it because no one was listening to me again,so I had to learn the pain was just apart of who I was & I had to accept it & move on,my husband thought I was just making all these horrible things worse than what they really were, he just didn’t know what I was going through,I had shooting pains to my knee then to my foot, my hips hurt for years,then this past February I went to the bathroom & my insides literally fell out of my rectum I screamed my husband ran into the bathroom & was in shock we both thought I was dying,he called 911 they took me to the hospital they said rectal prolapse,I was sent home & told to hold my insides in when I had a bowel movement I couldn’t believe what they were saying to me, my stomach was so swollen people thought I was pregnant & due any day, this kept happening for about 2 1/2 weeks I saw a urogynocoligist who sent me 4 hrs from home to see a specialist,we went of course, she wasn’t much more help she did remove my pacemaker she said it was put in wrong & the lead wire was dangling in my back causing permanent nerve damage,okay so I saw the Dr who sent me to her thinking he would listen he would help me because he was so good about finding a specialist to get me into with the other,when I talked to him about all I had been through & was going through his whole attitude towards me changed,he said the “Mesh was probably to tight & needed to be loosened,I said I wanted it out he said it would take 4or 5 surgeries to remove the “Mesh” that it was like a chain-link fence in my bladder my husband said no let’s go he couldn’t sit by & watch me suffer anymore,we have been on a mission to find a Dr here where I live to help me but haven’t had any luck at all,I am a grandmother I am raising my beautiful granddaughter with help from my son & my husband & my daughter,I want to be here for her & I feel like my end is coming I am so scared because of new symptoms I’m having,I sincerely need your help please I have read your page & you are a very brave woman & thank you so very much for all you do for all of us,I am so happy that you got the “Mesh” out,if you have any suggestions on a local Dr please contact me & to all the other women out there god bless you & you will all be in my prayers & we have to fight this thing together…..

    Reply
    1. lavalinda

      Lisa you are so young and I am going to email you to find out more. Hang in and know someone cares.

      Reply

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