When Was Mesh First Used & Complications

Most of the things I learn and share here with you is because of other women and their complications.  Whenever I don’t know the answer, I research and try to find an answer to the best of my ability to help others.  This morning I received a comment on the blog ‘Questions to Ask Before Mesh Removal’ from Judy who feels she has the same complications that she has been reading about, but a sling was not in her medical records from 1996.  The comment baffled me because I did not know the answer, but it was a situation I had read before from other women.

This was the comment.  Can you or someone tell me if it is possible a doctor doing a second bladder repair who DOES NOT use mesh, could possibly do the repair without ever knowing mesh had been used by a previous doctor, if he wasn’t actively looking for it? Or would possibly not have given it a second thought even if he had seen it? (This latter probably not an issue anyway since my second repair was 1996 and the first many years prior), but someone else might be wondering. Also, when did they first begin using mesh, even on Medicare patients who might not have been fully informed. I mention this because I have a handicapped daughter, mental health issues, on Medicare who was being prescribed drugs long before they were released for general public use.

I am suffering terribly with ‘mesh symptoms’ and thought finally had found the cause and last night discovered my medical record for the last repair does not list mesh. Now I’m back to square one trying to find out what is wrong and don’t know whether to laugh or cry Judy

I did quite a bit of research, most of it came up on lawyers sites and did not go into types or when mesh was used in the past.  So I knew I had to do something to help this woman.  I emailed Dr. Raz and asked what I needed to know.

This is the email.  Do you know in what year mesh was first used in women?  A lady told me she has all the symptoms from a bladder repair done in 1996, but it does not list mesh in her records.  Would the translabial ultrasound show it up after all this time?  I had another lady tell me she had it put in twenty years ago but I cannot find out anything about when it first was used or which companies made it.  This answer would be most helpful for these women.  Xxxxx xxxxxxxs told me hers was put in before it was officially on the market and you removed hers a week after mine.  Thank you for your time. 

It was not long before his reply came in. 

The first mesh was in the 60-70’s to do retropubic sling. It  was from Mersilene.

 In the 90’s the TVT still in the market and the Obtape (removed from the marker very quickly because complications).

Ultrasound will always show the mesh.

So now you may be wondering could mesh have been used without it was entered into your records?  Well only those involved would know and it is possible that this happened if there were no rules as how to handle the situation.  If they could bring mesh out and use it without any testing, then they could certainly ignore telling a woman this was in her.  After all, even today with all the latest warnings, women are STILL NOT INFORMED what was put into their bodies.  I was never told what the product was in March 2010, and certainly never given any information about complications, even though that is not that long ago.  And I am not alone in this matter…….

So what now.  Look to the right hand side.  There is a link that takes you to Dr. Raz and UCLA doctors.  Get an appointment soon and have the translabial ultrasound done to find out.  I do NOT know anywhere else in this country where you can have this test done and you need to know.  If you are ill and have been for a long time and suspect it could be from mesh, regardless of how long ago it was since you had a bladder lift, FIND OUT!  Long term mesh can cause many health hazards and you deserve to live better.  Please, if this happened to you and you found out it was from mesh, leave a comment here so that other women can feel their suspicions are correct.

15 Comments

  1. Betty

    Linda
    I had the translabial ultraound done in Providence RI. Dr Raz sent me the directions via email and my surgeon asked the Women AND Infants radiologist (Hospital) radiologist if it could be done here and the answer was yes.

    Reply
  2. lavalinda

    Dr. Raz email is available to any woman or doctor anywhere in the world. However, you should be aware that many women have asked about the translabial ultrasound at their local doctors office and were told that they do not have anyone who can read it. Obviously it is not available to everyone unless their doctor/hospital is qualified and/or has the machine. The best bet is to call around your area and ask.

    Reply
  3. Judy

    Linda, is possible that the test could be done here in SLC and Dr Raz could read the results from LA

    Reply
    1. lavalinda

      It can be done anywhere they have a machine, but it is up to the trained technician how well the test is done to see the mesh. I know other women have tried it and the technician told them they did not understand what to do. They watch a screen the entire time they work and would have to know what they are looking for. I do not know if Dr. Raz would do the reading but I imagine you would be charged the money for consult if he did. UCLA’s policy, not Dr. Raz. He is an employee and does not make those decisions. Your insurance company may not pay for it and you would be stuck with the bill. You will also be up against if your doctor truly believes the mesh is causing you harm because most do not. Therefore he/she will be biased. Call and ask your doctor outright if he/she would be willing to read Dr. Raz’s instructions and if they believe mesh is causing your complications. How they answer will give you a clue to how they really feel. Most will tell you outright it is NOT the mesh. They prefer to send you elsewhere for most tests, or run you through them themselves. I will send you Dr. Raz email to present to your doctor, but be aware you may be very disapointed.

      Reply
  4. Judy Burnett

    Thanks Linda I am looking forward to finding out what he has to say, you are truly an angel. I hope each day brings you more and more relief. Judy

    Reply
  5. Brenda Parks

    My daughter is very sad, she misses her mother and don’t understand the changes in me! I used to be so active and outgoing she has twins and another little boy that will arrive in may! She is reading the articles and trying to be patient. I know she is afraid and just want say it! She has watched me slowly go down, I pray for the day we start going up or just stop going down she is 24 years old and I am 51 years old. I did not expect our lives to do this at our young ages! Please pray for us I truly love my family and I do not want to die.I told my attorneys that I believe my life would be shortened a great deal if I did not get some help soon! THANK-YOU for this blog!!!!!

    Reply
  6. Connie Purcell

    Any advice on how to get doctor’s to take you seriously when you tell them this mesh is causing all your problems short of jerking a knot in their ass. They make me feel like a hypochondriac and doubt myself. I know this has and is continuing to ruin not only my life but my family as well. I had to sign over guardianship of my son to my sister 5 years ago because I could not work and take care of him . Is there any e-mails, articles, etc. I should print out and show them to try and educate the doctors on what is killing me?

    Reply
    1. lavalinda

      Connie you are not a hypochondriac at all. You are a mesh injured sufferer. I doubt if you can convince any doctor that mesh can do all this to you, so use your energy to move towards getting out to UCLA. Watch for updates on this blog. I hope to have great news for those who have no money and need to get out there to start the ball rolling as a patient. http://teapapers.com/bladdersling/2012/11/mesh-removal-no-money

      Reply
  7. Judy Burnett

    Ran across this article thought it might be beneficial,

    http://www.emedicinehealth.com/script/main/art.asp?articlekey=146909

    Reply
  8. Judy Burnett

    Just an update on my situation everything is on the back burner as I have been diagnosed with an inguinal hernia on my right side and I am convinced I have a femoral hernia on the left. I went in to see the surgeon and he ordered a CT and when it came back he was really upset because it showed I have a AAA which isn’t extremely large but large enough the he won’t do my surgery til I see a vascular surgeon, who can’t see me for another week. I have been on bed rest now for about a month in a lot of pain, in the mean time the hernias are getting worse. So I am hing that with the repair of my hernias my symptoms will subside. Hopefully I can ride out the AAA, that surgery is only a 50/50 success rate so there u have it in a nutshell.
    Hope you are recovering completely and are living life to the full. Judy

    Reply
    1. lavalinda

      I am not sure what AAA is Judy.

      Reply
  9. Gloria Froh

    I have been suffering for up to 9 years my doctor sent me for two MRI could not find a thing 1 back Dr. 2 Gynecologist 2 other Drs. Bone scan a nerve test had dye ran thru me nothing was found. as she shook her head she decided it was nerve damage from lifting furniture that’s when it all started. I had Hysterectomy in 1990 and Prolapsed 1997 can not find in records if the mesh was used

    Reply
    1. lavalinda

      Gloria you may not look in the right place and in 1990 women did have mesh and yet it had not been approved by the FDA. This may help you search.

      Reply
  10. Katgerine Efstathiou

    What are the symptoms of mesh surgery problems. Im having some problems and wonder if the bladder sling mesh surgery is the problem

    Reply
    1. Linda (Post author)

      Katgerine, tell me your symptoms and I will tell you if they can be related. It is easier, because symptoms are so diverse and no two women are alike.

      Reply

Leave a Comment

Your email address will not be published. Required fields are marked *