Mesh GET IT OUT NOW

In 1933, Franklin D Roosevelt at his first inaugural speech said. “The only thing we have to fear, is fear itself!”  How true and how important is this for women with mesh complications to remember now?  It is everything.  I just read a comment this morning from yet another women who is trying to make it through yet another holiday.  She was doing something that all American women take for granted.  Shopping on Black Friday.  This is part of her comment.

“I went shopping for black Friday, two days ago and after a few hours I was doubled up, sitting on the curb from the pain in my lower stomach and my lower back. My stomach began to swell also. The aching inside never goes away. I want the sling removed and have every since the very first day I could not urinate on my own, but now am fearful after reading the issues that go along with having it removed but am afraid to leave it in as well. All I can say is if anyone is considering this surgery, DO NOT DO IT!!!! There are other options that should be considered before this option is even brought into the conversation.  Thank you for your blog and I hope all goes well with your upcoming surgery.”

She came in on an earlier blog and has no clue I already had complete removal surgery last month.  She does not understand than although I had very bad nerve damage from having it in my body, shrinking and doing more and more damage every day, I am very grateful I was able to go out to UCLA for removal.  I was so thankful this past Thanksgiving to know it is all gone.

I did not go Black Friday shopping.  None of it was important to me anyway, but I still have to work on the nerve damage that came from too much time in my body.  Trying to walk around store after store would have been detrimental to my well being and I am not about to mess with my well being.

I know what women are thinking “If I can just get through this holiday, maybe I can make plans and do something about the pain”.  But they keep putting it off instead because they are afraid.  They do not know what I know.  Fear can injure you as much as the mesh.  Fear will stop you from doing anything year after year until you are like many women who contact me.  You are writhing in agony.  You are bed ridden.  The hard pain meds that helped you at first no longer help.  You are thinking about ways to kill yourself to make it all stop.  DO NOT REACH THAT POINT!

You would not be human if you were not afraid of surgery.  We all were/are at some point but you have to conquer fear using baby steps.  This lady has reached a point that if she does not do something now by going to a surgeon who believes it is the mesh doing this, she will slowly but surely reach a point of no return.  When she said she was sitting on a curb in pain.  She has big issues urinating.  Lower back pain and stomach pain are sure signs infection is taking over.  Kidney disease, severe infections that can kill and are doing their damage.  But she does not have to continue this way.

To the right is a link to a blog I wrote about the doctors at UCLA.  Yes if you live elsewhere in the country it is a huge effort to get out there.  It will cost you money, time and energy.  BUT…aren’t you doing that right now by shopping on Black Friday in terrible pain.

Every woman has freedom of choice.  We must make our own decisions.  Most of us made uninformed decisions when we had this surgery because we were not told what this product could do to us.  That is why I get up each day and make a conscious effort to change things.  I keep posting blogs with everything I learn so that you can at last believe it is the mesh and go to doctors who also believe it.  Then you can begin your new life before it is too late.

Please take that first step.  Make an appointment to go to UCLA then work on the money issue.  Give your children or your grandchildren the best gift possible.  YOU!  Forget the Black Friday deals.  You are far more important to them and those deals won’t mean a thing as they stand at your grave site wishing you were here with them on the next holiday.  I know I am being blunt and perhaps my honesty is a bit much for you, but it is because I care very much.

Go to this blog and read Tiffany’s comment and ask yourself is this you?  I am grateful she wrote this because it reminds me why I do this every day.  I do not want this to be you.  http://meshangels.com/2011/07/mesh-can-take-your-dreams-away

9 Comments

  1. Tammy

    I have been on the site for awhile now while going through the “lets try this to rule out the mesh” scenario with my surgeon. The pain is so bad now through my hips, now thighs also, that it is unbearable and continuing to get worse. An orthopedic ruled out hip problems and hormone cream ruled out vaginal dryness causing problems. The second surgery was in march, now I have to find someone to help me. I read where Dr Raz is three months out. Is he my best choice or are there any others. I can’t tolerate it in further. Waiting is not the answer

    Reply
    1. lavalinda

      First it depends on how long the mesh has been in you, are you in serious trouble with so much infection and no antibiotics work? Are you losing sleep all the time because of pain and no pain meds work? There are 3 doctors at UCLA. Two are women. If you view to the right of this the blog you will see a link to that blog. Dr. Raz is the top urologist surgeon in the world and the professor of that department, but he also trains people because it is a teaching hospital. If these two women remained at this hospital full time, there is a really good reason. Dr. Kim is his assistant professor and she must be extremely good to be in that position. There is a video you can watch about surgery she did on a woman saying how she changed the woman’s life.
      Any specialist will take some time to get in, so expect 6 to 8 weeks for appointment although it may be sooner with either woman. Dr. Raz is in huge demand and he travels to teach. He will be gone part of January. We all have to make choices based on our physical ailments and only you can decide. I know it is always a tough decision, but you know you have a serious issue and need to make an appointment.

      Reply
  2. Tammy

    How are you feeling? I do hope you are recovering well. I am in Houston too and after going back through your post I realized you were here. I made contact a few months ago but thought some of the other therapies would work and thought i coud fight through it. I am so much worse and should have listened sooner. My original prolift (gynecare) was October 2009, failed November 2011. A urogynocologist here at Woman’s repaired it (?) but left it in, did hysterectomy and put in additional mesh (Mar 2012). My hips felt better for about 2 weeks I think due to the removal of scar tissue, but the pain soon returned and is now unbearable. I have no life due to the pain, and yes lack of sleep. I want my life back. The doctor here says he can remove it but probably not all of it, did you speak with others here?

    Again, I hope you are feeling better

    Reply
  3. Nancy Mikitka

    Linda, first I must thank you because of your willingness to post about your mesh journey, I found Dr. Raz. I had my first appointment with Dr. Raz on month ago today on November 13th. I have had TVT Mesh since January 2004 and it has totally radically changed my life. I am not the person I was prior to the surgery, as I know from reading about others, is how everyone feels who has taken this tragic mesh journey. My health has declined so much that I am not able to work and barely able to function on most days. I am very thankful for my husband who stands by me and encourages me. We have had to sacrifice and will continue to sacrifice for the opportunity to finally get this mesh out, but we are willing for any chance to get a better and healthier life for me than the one we now have. I am currently scheduled for surgery in 2013 a little over 3 months from now, unless there is a cancellation (for which I truly pray for the person scheduled they do not have to cancel). Thank you for your Blog and for continuing to Blog. You are a blessing to those of us who had no hope before finding your Blog to help point the way for us.

    Reply
    1. lavalinda

      I am humbled by the fact that writing can change the lives of others and I am more than gratified by what I learn and share with others. I know what a struggle it is financially and mentally to take the journey to change your life and I hope you will find a better life once it is out of you. Eight/nine years is a LONG time to put up with this. I am going to send you an email to get the date you will have your surgery because I try to ‘introduce’ women who will be out at UCLA for support both for them and the person who is with them. I wish you luck and joy.

      Reply
  4. rosie manasco

    i would like to try and find out when they put my mesh and sling in can they pinch a nerve and make you hurt really bad in the lower back

    Reply
    1. lavalinda

      Rosie, it is called a ‘blind procedure’ for a reason. They go in through the vagina and cannot see where they are going. They use huge needles to work their way around muscles and nerves and that is why so many of us have issues. I began having small shooting pains in the groin which worsened over time until I was in constant pain and my walking was affected. Many women suffer with lower back pain and if you have an MRI to determine there is nothing else wrong, then go to UCLA and have a consult and get the translabial ultrasound. It is the ONLY ultrasound that can see where the mesh is. No other ultrasound can.

      Reply
  5. Megan Nelson

    Hello, I am new to blogging and can’t seem to figure out a way to email you privately. I would love to ask you some questions and tell you a little about the person in my life who is having trouble. Thank you so much!

    Reply
    1. lavalinda

      Megan I no longer have my email address here because I could not cope with the volumes of emails I received and I had no life. I know how everyone needs help but the ladies and I who do this are all mesh injured and deal with our own pain too. I write continuously any new update information I can find. Read from here http://teapapers.com/bladdersling/2014/04/mesh-will-i-get-complications-in-the-future/

      Reply

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