Mesh & Brave American Women A Tribute
This morning I thought about the wonderful women I turn to whenever I am either overwhelmed or I don’t know how to help someone who is struggled with pain from mesh complications. I knew I had to pay tribute to those who have openly spoken out against what has happened to women because of the use of medical mesh.
I should say first that I have had just one complaint hailed at me since doing this blog. I was reprimanded that I did not have medical background and should not give out any medical advice. I will state once again as I have many times before, that I DO NOT HAVE ANY MEDICAL BACKGROUND and have never pretended to have had any. All I am is an ordinary woman who woke up to a world of pain and complications from a surgery that was supposed to be simple and non invasive. So how do I help other women when I don’t have any medical background? First I answer the emails and comments and listen over the phone to these women. Then when I don’t know how to help them, I turn to one of the women who jumps in whenever I have a question or I can’t get to every woman who needs attention.
Medical. Actually Denise is like a mentor to me. There are times when I get stuck, especially when it comes to the very young women whose lives have ‘ended’ far too early. They don’t know who to turn or understand what has happened to them. Their lives are in pieces and yet they still have to take care of young children. Some do have husbands whereas others don’t. Some are so badly injured by mesh that they live on pain meds. This can cause so many other problems. Children can be taken away if anyone states to the authorities they are not a fit parent when under the influence of pain medication. So I turn to Denise. She often takes over, spending countless hours on the phone trying to get them help or to understand their symptoms. She teaches them about their bodies so that they understand where the pain is coming from and how to handle.
Denise doesn’t just help me. She still suffers from the damage mesh caused to her own body while raising a family. She has been fighting to help all women who suffer this way and she has gone to the FDA meetings, stood up and told them what is going on with the women of our country. Here you can ‘meet’ Denise and understand more about what is happening to women with mesh complications. She did a wonderful job of explaining how this affects us and what happens once mesh is in our bodies. http://meshmedicaldevicenewsdesk.com/patient-profiles/suffering-in-silence-denise-jacobs-on-surgical-mesh-an-unreasonable-and-substantial-risk-of-illness-or-injury
Organizing this blog. Deb stepped in as my mesh removal surgery grew closer. Then she took over while I was down after my surgery by guiding women to the blogs that could help them deal with their complications. As my blog grew, the information was not easy to find. I am not proficient when it comes to blogs. I just write and then when I hear from a woman who needed help, I would find the link/links and email them to her. When Deb offered to help me because of her own background as manager and administer at a large college, my daughter was thrilled. This had always been her job but life took over. Before I was mesh injured, we had been building a house together. Now she does it all alone and there is no time for things I need to help other women. Life still has to go on for us even though I am down and out.
So Deb stepped in. She sorted my blogs into categories and set it up so that those categories could be easily found. And she did all this while working full time, and raising her own family while suffering daily with her own mesh injuries. Life is a struggle for her but without going to work she would lose her insurance. Fortunately she will also be having mesh removal surgery in January 2013 by Dr. Raz at UCLA. Who is Deb? You can read her story here http://meshmedicaldevicenewsdesk.com/patient-profiles/deb-c-suffering-stress-incontinence-mesh-injuring-women-too
Women with infections. Lisa understands that although you may not have erosion or crippling affects of mesh complications, infections can be deadly. She had to fight to get her insurance to allow her to go out to UCLA and you can read what she did on the following link. Lisa jumps in when women tell me about the swelling in their stomachs and the constant use of antibiotics that take them down a road of agony. She tells them that yes, it is the mesh, even though their doctors are telling them it isn’t. She hears their voices and allows them to get out the frustrations of what they are going through. Meet Lisa. http://meshmedicaldevicenewsdesk.com/patient-profiles/suffering-in-silence-no-more-lisa-pashenee-takes-her-mesh-protest-public
Fund Raising. Bev did this for a member of her own family and raised enough money to get the surgery and treatment needed for cancer. So when she offered to help women understand what they could do for themselves to raise the funds to go out to UCLA, I was gratified. Bev will undergo mesh removal on the 13th of this month. She is grateful to finally do so because her life is that of being house bound and she feels lucky to have a good husband and family. This is Bev. http://meshmedicaldevicenewsdesk.com/patient-profiles/beverly-martiniano-suffering-in-silence-and-waiting-until-october
Caring and Nurturing. This is the way I describe Pat. She has been through hell and back and yet she still takes time to answer emails I send to her and lets women know they are not alone. Pat was an athlete. Then her life went downhill and she lived in a world of agony. Meet Pat. http://meshmedicaldevicenewsdesk.com/patient-profiles/suffering-in-silence-athlete-pat-buchanan-faces-her-biggest-competitor-yet
Medical Mesh News Desk reports on cases where both men and women have been injured because of various medical implants. Jane does a bang up job for someone who does not suffer herself. This is Jane http://meshmedicaldevicenewsdesk.com/about-us
Jane also wrote my story. I wanted to give my face as a woman who did not know where to turn so I banged my thoughts and frustrations out onto a keyboard. They say if you build it they will come. They did. This is me. http://meshmedicaldevicenewsdesk.com/patient-profiles/suffering-in-silence-linda-kilpatrick-injured-by-boston-scientific-mesh-implant
There are others of course who remain behind the scenes. Some are struggling with their own long term mesh injuries and are trying to get to the point of mesh removal. Many don’t have insurance. Some can barely work to keep theirs. They get up each morning and do whatever it takes to pull themselves out of a giant dark hole. And yet they still offer to help.
So my thanks goes out to all those women who help me in the background and yet ask for nothing. They are wonderful and caring women who do not want to see this happening to other women. I appreciate them very much and they deserve to be paid tribute to.