Mesh Removal-Hope for You

I am now nine days in from my own mesh removal and this morning received a lovely email from Robin, a lady who has had twelve years of mesh hell and who Dr. Raz removed it just the day before yesterday.  Yes that is right.  Within two days she wrote an email of gratification and hope.  One brilliant man and hope for many women for a better life.  Without him we would all be suffering still without any validation that mesh has been the ruination of our lives.  This is a piece of what Robin wrote.

“I was first in line for surgery and what was supposed to take 30-45 minutes ended up almost 2 hours. The doctor said part of the sling/mesh material was about as thick as the size of his finger and had wrapped around my urethra squeezing it & attached to other parts of my pelvic area inside the muscles etc. Large area of infection and it had started affecting my leg muscles also just last 6 months and I had to use a cane for first time ever but he was able to get all the mesh/sling out!

He will examine me again next Wednesday and then tell me if I am able to travel back to Oklahoma a 1300 mile drive. But it was better than last time when I was brought in our van in the back on an air mattress who some friend was kind enough to build a bed base for so I could at least see out the windows! Because the Dr. HAD to do the operation vaginally to get at the urethra and main cause of pain there is a possibility if he sees any signs of infection in the Pelvic bones from the screws he will have to do a re-operation. That would be at least 6 months from now. They remove any infected material if they see it and biopsy it then put cement type substance in it with antibiotics that has to have another surgery following it for complete repair of pelvic bones.

But since having the surgery yesterday I now can walk WITHOUT a cane! I got out of bed while Toney was at the store and started to reach for my cane when  I realized my leg supported me, was not having spasms and I could walk with BOTH legs and no Support! A true miracle which I am sure will be followed up by others. Although the doctor said I will never be 100% just to have to ability to walk without a cane again is AWESOME. Something I only had happen to me the last 6 months! So believing God has more surprises for me and I am so grateful to my husband Toney for all the hard work he has had to do especially the last yr or two as it had progressed to it’s worst in 12 yrs! He IS my nurse now!~Pray for him.

Please read more about Robin here.  http://meshangels.com/2012/09/twelve-years-of-mesh-hell-now-a-light-of-power

It is women like Robin who make all the work and sadness of hearing and reading some of the most terrible things that have happened to women after mesh insertion, worthwhile.  I spoke to her husband yesterday and he gave me an update on her surgery.  Robin was treated for many of the symptoms of mesh complications with other diagnosis’s over the twelve years and mesh was never given as the cause until she found my blog and went to see Dr. Raz.  We and many other women are a testiment to the power of a surgeon who knows his stuff.  There is great hope if you make the choice and effort to go to California and UCLA for full mesh removal.  If you don’t know how to get started, read this blog.

http://meshangels.com/2012/08/so-much-hope-for-mesh-removal-surgery

This was a great start to my day.  I feel uplifted by successful removals for other women who came here lost and in pain.  If I could not send them on to such a great surgeon, it would be a different story.

While resting I have been making calls to women who have contacted me in the past, just to see how they are doing.  One lady told me she still had not arranged going out to UCLA, wound up in hospital recently with a terrible infection that stopped her bladder working.  They put a catheter in her, loaded her up with antibiotics, taught her how to self cath and sent her home.  That made me so sad.  I knew the path she is travelling down because of other women who have done the same.  It is a journey to disaster.  I begged her to go to UCLA because I don’t want her to die.  Another lady who was in the same position helps me now share her story to help women who have infection after infection.  This is her story.

http://meshmedicaldevicenewsdesk.com/patient-profiles/suffering-in-silence-no-more-lisa-pashenee-takes-her-mesh-protest-public

PLEASE, PLEASE, if you are like Lisa or the lady I spoke to yesterday, PLEASE DO NOT DIE FROM THIS.  You don’t have to.  Your family needs you.  If you would like to talk to Lisa, let me know.  She is another mesh angel and she will give you the confidence and the hope for a better future.  You deserve to live

 

8 Comments

  1. Robert

    What about men having infection problems after using the AMS Sling?

    Reply
    1. lavalinda

      Hi Robert. I have been told this happens to men also but none have come forward to speak to me. You are wise to worry because you can have many of the same issues as women. When your bladder does not empty, you can have kidney stones and kidney disease along with many of the things we women have, including mesh erosion. I am going to send you a private email with Dr. Raz email address and you can contact him about this. He is the BEST in the country and I advise you to go to him. I do appreciate your comment here.

      Reply
  2. Trisha V.

    This is such a discouraging trend. I work in the medical field and have many patients who get great benefits from self-cathing, but it has to be the right thing to do in the right situation. I know some doctors who would rather send off a patient with a catheterization routine and a pamphlet instead of putting in the time and effort to fix the real problem.

    Reply
    1. lavalinda

      Yes Trisha, this happened to meas well. The ‘real’ problem is, they have to admit that mesh is the real problem to begin with. That never happens. As far as they are concerned they used a great product and did their job. Amen. That is why so many women are in such a mess.

      Reply
  3. Susan Turley

    I have a dear friend who is suffering the aftermath of the mesh. Can you recommend a doctor in Utah?

    Reply
    1. lavalinda

      All I can tell you is that women from Utah checked with doctors the questions to ask before removal and they wound up going to UCLA. http://teapapers.com/bladdersling/2012/02/questions-to-ask-before-mesh-removal/

      Reply
  4. lillianpennington

    is there an alternative plan for the bladder sling surgery than to have this surgery, so that we can gain control of the bladder injuries. Look under alternatives.

    Reply
    1. lavalinda

      There are and I have written about it. Look to your right hand side.

      Reply

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