Twelve Years of Mesh Hell, Now a Light of Power
I wrote the following blog last night after talking to a lady who has had mesh in her for twelve years and will soon have it removed. This morning I woke up and thought of her words. “They stole twelve years of my life.” I had to relieve the bladder pain that I feel every morning and as I carefully hobbled to the bathroom, I kept thinking of what she said. Hard core criminals would not be treated like this. Yet our government, the F.D.A., does nothing to stop this. Yes, every woman should report it but it is made so difficult. How can sick women go to the hospital that did their surgery, stand in line and beg for their own records. That is if they are available. One woman told me the place that did her surgery is gone and her records nowhere to be found. Why isn’t there a database where implants are entered at the time of purchase with all the details needed? Isn’t that what they do with dangerous drugs? Then all we would need is our social security number to make out the report. This is an atrocity to all the women who suffer every day from bladder sling surgery.
This very lady apologized to me that as yet she has not reported hers to the FDA. She has the implant name and number but forgot how to do it. I told her I would send her the link. I know she is so sick and the drugs by her own words have changed her brain to mush. I can’t blame her for not being able to do it. For most women injured by mesh, this is the least problem on their mind. Now I will let you read how she is and what her plans are.
I just spent an hour and a half on the phone with a lady who lives in Oklahoma who will at last have mesh removal surgery by Dr. Raz at UCLA, one week after me, on the 18th October. We were both laughing and joking, sharing our fears and our hopes for a better future. This lady deserves a future. For mesh has been creating havoc in her body for almost twelve years. Now it is time to get it out and start a new life.
It seems so long ago since she made contact with me the first time and yet it has been a very short few months. The first time we spoke she was overwhelmed at the fact that at last someone was listening to her. Her history since bladder implant surgery has been non stop surgeries and tests without any answer that made sense. None of it worked. I told her that the only person I knew could help her was a long way away and it would be hard for her to go. This because she had told me that she can no longer sit and she is mostly bedridden. I knew as I spoke to her that this woman was not going to let a chance for wellness pass her by. Dr. Raz WAS her last hope.
She made that first consultation appointment immediately. Her husband was also on board with getting her the help she needed. He too has his own ailments including back problems, but when appointment time came, he drove her laying in the back of a van three days each way to get her there. It was hard, but he did it for his wife. Yes, the trip took so much out of them both, but they are both fighters.
For her to hear Dr. Raz’s words, it IS the mesh was like music for her soul. It was worth every painful moment to get there. He told her that he could not promise her he could make her completely well , but he could make her better. He admitted that she was one of the worst cases he had ever seen. She thanked him and said 25% to 50% would be better than she is now. Her life had dwindled to a dead halt and no one had offered to help her before. She said at times she had prayed for the Lord to take her.
So now as her own day is fast approaching, she just wanted to talk to me because we may not connect for awhile until we are both able and well enough to do so. I knew too she needed someone to tell her that life could and would be better. I told her about the blog I had written a day ago titled The Light in a Night of Mesh Complications, about another woman who has taken a year of chances with Dr. Raz to improve her life and at last she is reaping the rewards. Life is returning. Not the same life she once had but a new beginning. A life of hope. I told this lady I would send her the link so that she too could feel the hope for her own future.
So if you are reading this and you feel paralyzed with fear of mesh removal surgery and the long trip to California, think about how hard other women have had to climb Mount Everest. They have done it and so can you. This is your life we are talking about. Someone loves you and will miss you if you don’t take that first step. You deserve to have a chance of a new life.
Once again this lady will be driven three days each way by her husband who has to stop regularly for a rest or he won’t make it. Yes, it is tough but I know they will be rewarded. I finished on the phone by saying to her that I would love to share her hope with other women if she will keep a diary after removal as her life improves. She said she will. I look forward to reading her words and I will share them with you.