Mesh & the Physiological Damage

As I write this blog, believe me I am very aware this could create other complications for women who are injured by mesh.  I do not take what I write lightly and therefore neither should you.  My writing should be viewed as a whole and not taken and shredded and dissected by those who believe all mesh complications are by crazy women.  THEY ARE NOT!

Today I am writing because if there is any way to reach the families of women who are seriously injured by mesh, I will do whatever it takes.  This is because women are so physically injured by mesh and they need their families support.  To understand this deep pain you would have to listen to hundreds to thousands of women who are left in terrible pain without belief by their doctors that this pain exists.  I have listened to those women.  I am their voice because no one is listening to them.  Not doctors and not their families.

Once again I have to express what these women are telling me.  That their pain is dismissed and they are either ignored or told to snap out of it.  Please understand that the pain and injury from mesh is not so easily dealt with.  They need you to believe them and to help them.  Without your help, they seek into depression and terrible sadness.

What I do know is this.  Once a woman is injured by mesh, the first thing a doctor will do is offer anti-depressants.  This is so she will go away and they do not have to deal with her or acknowledge that there is a problem.  If she is seriously injured by mesh, she may be offered pain killers for a period of time.  Many pain killers are addictive.  If she has a past of addiction to either drugs of alcohol, then she is far more vulnerable to these narcotics than other women.   Therefore she will not only be suffering from pain but there are more serious complications when these narcotics will eventually be taken away.  She is then left with withdrawal AND her terrible pain from mesh.  Anger, sadness and pain is a volatile mix for these women and their families.  Tensions run high.

What can you do as a family member to help a woman who has been injured by mesh?  First believe her.  That is the number one thing that women are telling me.  That their family members do not believe that their pain is real.  You may wonder why.  These women traipse from doctor to doctors appointment seeking answers.  They are rarely given any.  It is common for these women to be told by the very doctors who put the sling in them that all they want is money.  That the lawyers are riling women up when they do not have anything wrong with them.  That the conspiracy out there is against doctors and a wonderful product that helps women.  THIS IS SO NOT TRUE.  Doctors are not the victims.  Women are!  It is time for the medical community to listen to these women, believe them and STOP USING MESH!

If you are reading this and are a family member of an injured woman, please take that first step.  Please believe that she is injured!  So many women have told me that they wish they had cancer because they would be believed.  How terrible is that?  Why would a woman want such a thing to happen to her?  Because she if fighting the very system that has injured her so greatly and she is at the end of her rope.  Then to add family members who are going by her past, instead of helping her with the now, she is suffering beyond belief.  Without you she has nothing.  Please change your thinking.  Help your injured loved one and you can make all the difference to her life now and in the future.  Thank you.

Update from a special friend who works with cases about children and their mothers.

You might mention that someone who has become addicted to pain meds can get into a methadone program.  Methadone is quite effect for pain too and it is free if she is in recovery from other opiods.   Also, there are some very good non-narcotic pain meds being given out in situations like this. One is called Tramadol.  If a woman is concerned about losing children because she is addicted to these pain meds, she should know that I’ve had mothers in my guardian cases taking this and it does not count against them interestingly and not the methadone either if prescribed.

 

7 Comments

  1. Kathleen

    If you are a mesh injured woman reading this know all of this to be true what is written in this blog. A good rule of thumb to explain to your doctor. If your symptoms are new or have increased after mesh implantation, then it is the mesh. It does not take a rocket scientist to figure out now that if your right inner thigh (or wherever your pain manifests) hurts now especially all the way down your leg you are not imagining this!
    Your family may be sick of you being injured but you cannot give up. Print all the evidence and bring it to an empathetic doctor. Don’t waste your time trying to prove it to a doctor who won’t believe you. Don’t spend money on worthless tests. All you do is torture yourself……….It is important to have a doctor educated on mesh complications and even more important to know exactly what type of removal surgery you will get so you do not get in more pain with the wrong fix. Many women are so chemical sensitive to the product polypropelene that itself is a big enough issue.
    All I know is if I did not do my own research and stand up for myself, I would be in dire straights right now. You have to be your own advocate even if you do not have the strength and do not be afraid to ask for help. Please don’t give up!

    Reply
    1. lavalinda

      The biggest thing for all women is to find that person you are meant to be. The strong and confident person you are. Do not give in to the other voices around you who disapprove about your choice of doctor and how far you have to travel. Who do not love you enough to get you the help you need. You may stand alone if you are unlucky to not have support from family but from that you will gain your own immense power. You deserve to be treated properly and have the best treatment by doctors.

      Reply
  2. Ruth

    Linda, you have laid out the facts of what is sadly the “normal” experience of so many. I am one of the fortunate few who has a supportive network of family and friends who believed me even in the beginning, despite the denials I was forced to endure from various medical specialists until the right specialist confirmed mesh as being the problem. This support has made ALL the difference, and enabled me to keep going, even as I wait for removal surgery. I can only imagine the negative psychological impact not having this support would have caused. It would have been even worse than the physical pain, unbearable as that is at times. It would have been a recipe for a quick downward spiral into clinical depression at the very least. Thank you for voicing the things we all feel. Your plain, straightforward manner of writing speaks eloquently, and I hope family members will listen and take it to heart.

    Reply
    1. lavalinda

      I write from the voices who share their experiences. The voices filled with pain and anguish. I am blessed with two years of learning and knowledge. I hope this will help so many others.

      Reply
  3. DIANNE FROM FLORIDA

    I thank God every day for Linda and Kathleen for their knowledge of the mesh and help. Ladies PLEASE don’t give up. If you don’t do your own research on the bladder sling mesh and the symptoms you didn’t have before it is the mesh. I just had a symptom that I never had before the other day so I researched it and it was because of the mesh. I can’t want to be in LA to see Dr. Raz for my consultation on Wednesday. My meshie sisters you all are in my prayers every day to get releif and removal from the mesh implant that these doctors put in us. Keep the faith.

    Reply
  4. Sharon

    What is so very very sad is those of us, after we’ve done our due diligence, went to the best doctor we could, but had our complaints dismissed by the doctor who implanted it. By the time I found this blog, Dr. Maceda had strung me along, insisting my complaints weren’t mesh-related. That gave the mesh time to work it’s damage.

    Dr. Raz did the best he could, but said the mesh was entangled in the nerves that control my walking. I fell and broke my foot in January and it won’t heal. The foot doctor thinks it has something to do with the nerve damage down my legs. My legs hurt unimaginably when I walk. All of this on top of the regular stressors of life become unbearable. As a former psychology student, I believe I am suffering from ptsd. I’d like to know if any other women have exhibited these symptoms. The fallout is immense; not only physically, but psychologically. The surgery was so intense, I don’t think I’m healed from it yet. And we are left in a terribly broken state, and then have to worry how we are going to pay our bills.

    This country needs an overhaul in the laws. Drug manufacturers who knowingly put defective products on the market should go to jail, as should anyone colluding with them.

    I had the mesh removed last January, and still feel stitches in. I’d like to know if anyone else has this. I have to return to UCLA in August or before for urethral problems – and I am already at the end of my rope. My faith in God has been the only thing that has kept me afloat – but I question Him all the time. I have to believe there is a purpose behind this grief.

    Reply
    1. lavalinda

      Sharon I deal with the same problems as you and he removed mine. However the damage done during the implant surgery has not changed and it has been almost 3 years since mine was removed. My nerve injury improved after removal but I am stuck with it so I know where you are coming from. I have fallen a few times now and once cracked two bones in my wrist. Now I use walking sticks. Yes we all suffer from PTSD and anything can kick it in, especially going into any doctors office. All I can do with my own pain is to keep writing and warning women of the dangers of mesh.

      Reply

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