Mesh & Disability
Every day I get up, and the emails and comments come in. I so appreciate those comments you leave here because it lets other women know that they are not alone. Your story is their story. Your suffering is their suffering. My story is your story. I often think “There but for the grace of God and other wonderful women who share their information, go I”. If we do not learn by this, the tragedies keep coming.
In the last two weeks I am so sad to say that two women contacted me who just HAD this surgery. When complications are so new life becomes a long struggle of pain and anguish. Our work will never be done until every woman is given the true and honest information to warn them that serious complications happen all the time from bladder sling surgery. To remove it is almost next to impossible. Doctors put it in every day and yet they do not tell you that they cannot remove it. That is why I am still here beating on my keyboard to get the word out.
However, today is about passing along new information. To help you understand what you can do to help yourself. I know if you find this blog you are at the end of your rope and are barely hanging on. You have been told it is NOT the mesh in your body. You have been told that it is all in your head. You have been offered pain killers, antidepressants or plainly told you need to see a shrink. Yes it is disgusting the way women are being treated every day because of a product call bladder sling mesh. Where is the justice? Sadly there seems to be none. Women are being mutilated in this country every day by doctors who do not know how to remove the mesh, but try anyway. Then they leave the woman to suffer the consequences of their callous actions. They could learn, but they don’t. Manufacturers could stop making it but they don’t. I often want to scream at the world, but what good would it do. No one cares.
I hope today I can help women who have lost their jobs, their insurance, their families and their income. When you are at wits end all you have left is to try to get on government disability. However, that statement if far easier said than done. So today a lovely lady explained to me how it works and how she fought hard to get on it so that she could get medical help. This is what I learned.
First of course you have to file to get on it. Spend time getting together every record you can find to let them know what has happened to you. Hospital, doctors, research here and other sites that states that bladder sling mesh causes ultimate pain, loss of work and family. Once you have done this, the disability office will send you to their doctor who will almost more than likely turn you down flat. You will be crushed. You will have more pain, anguish and sadness added to the insult of mesh. Take a deep breath. Cry that day only and then get a lawyer to fight for you. You are already fighting the mesh system in your body and you cannot fight it all. You need help.
How does it work you ask? I had no idea because I have lived in mesh hell over two years and was waiting for my 65th birthday to go on Medicare to get help at last! That day will be 1st of June this year. However, you are much younger and cannot wait to get help at 65. The disability lawyer will take your case and information. Don’t expect any lawyer to do the work for you. You may think it is their job but they do not understand mesh complications. If you want to win, you prepare your case in advance. He/she does not know your body. Does not know what mesh has done to you. He/she cannot feel your pain. Do the work to get him/her on board with your hell. He/she sill be educated so that this does not happen to someone they love.
Once you are on board with a lawyer there will be months and perhaps two years of waiting. So now you are thinking “I can’t wait that long”. You are not looking at the big picture. You don’t have a choice but to get up and fight. You cannot sit back and wait for a knight in shining armor to appear in your life. There isn’t one so get over it.
Try to fast track your case by writing one letter that you can copy and paste to every congress person in your State. Make daily phone calls and try to get your plight heard. It does work! I know this from women who refused to lay down and die. Refused to be ignored. A congress person can be of enormous importance in helping you, but not if you let anger rule your head. On emotional days leave it alone. Pick the best time of day when you feel strongest. Then fight!
Who pays the lawyer? Not you and yet, yes you. From the time you file, any back payments will one day be paid to you when you win your case. The lawyer will be sent a check out of those back payments. If your attitude is that he/she doesn’t deserve your money then all I can tell you is this. Crawl in a hole and die. You couldn’t do this alone and yet you feel he/she should not be paid. Wrong attitude. You need help. Do whatever you can to get the help you need and stop complaining to the world. You are far stronger than you think you are.
Yes the pain is hell. I get it. Remember I too live this way. What keeps me going is this. I help others. Now ask yourself what are you doing to help yourself and someone else. Stop making excuses. Take control. This is your life we are talking about. I hope you have a good future which is why I am spelling it out here in no nonsense fact. Read and take action. I was always told, “actions speaks more than words.” Believe me it does.