Mesh Complication Education

The object of this blog is to give you the right questions to ask your doctor and know what test can reveal the mesh in your body and which organs it has attached itself to.  Without this information we are at risk of doctors who lie and leave us with pain and anguish.  I thank all the women who have helped educate me and I share their combined knowledge with you.

Next month will be two years since I had this ill fated surgery, that sent me into a life of hell.  I am not alone.  Thousands of women suffer as I do, far more than the FDA knows.  So to help myself and help others, soon after this surgery, I began digging on the Internet.  It wasn’t easy.  Two years ago I found nothing except that the ‘offending mesh’ had been removed after a lawsuit in 2008.  Bad mesh gone right?  Sadly know.  Those of us who suffer every day, know that all mesh is bad for a large population of the people whose bodies it was placed inside.  It wouldn’t be so bad, but not one women who lives in pain and has contacted me, ever knew they had an ‘implant’ in their bodies until the complications began.  Me included.

The complications from mesh are so many and so varied.  Our bodies are not one size fits all and neither are our complications.  How our body reacts to mesh is no different than how we react to various prescription drugs.  The problem is, these reactions are not easily seeable.  Therefore our doctors stare at us when we tell them of our pain and dismiss us.  We are the problem.  It’s all in our heads.

It is not in my head and neither is it in yours.  Time to get educated so that you can ask the right questions and let your doctor know that you are not stupid and do not deserve to be put down when you question him or her.

This blog today came about when one lady who contacted me late last year, called me last night to let me know of a second opinion update.  When she called me last year, she told me she had had mesh removal and was doing well.  As we talked, something didn’t seem quite right.  I asked her was she sure she had full mesh removal included the arms.  They are also called anchors.  She said she had great faith in this man because she had been seeing him for thirty years and trusted him completely.  I of course had heard many stories from women devastated over the broken trust of their long time doctors, so I trod very carefully, just telling her that she needed to ask him the right questions the next time she saw him.  Lo and behold she did!  When she questioned him about the ‘arm’s she noticed a change in his body language.  He was angry that she dared question his ability.  This brave lady insisted.  Before he left the examining room, he said that there may be the arms left in her.

This very brave and determined woman called me the next night and told me.  For the sake of her future I suggested she go to see one of the doctors on my list.  Fortunately she lived one and a half hours drive from one of them and she quickly made an appointment.  This doctor knew how to examine her and after she told him her story, he suggested he run tests.  This man had been trained by the best doctor in this country and when she mentioned his name, he was impressed that she had done her homework.  (This is a good sign)

She went for the tests yesterday and last night called me to give me the results.  Her long term relationship with her doctor is now no more and she is saddened that she cannot trust him again because he lied to her.  The test she was given revealed that her doctor removed a tiny portion of the mesh and left the rest and the anchors.  Why did he leave it in her?  More than likely he did not know what he was doing and without training and expertise, the wrong doctor can kill and maim when ‘practicing’ removal.  Why did he lie to her?  Only he can answer that question.  I do know this.  We, you and me cannot trust blindly.  We have to get educated.

When this lady talked, she mentioned the name of the test she took and that he had given her the disk showing her that the mesh was there.  Good doctor!  He also told her that he couldn’t promise her that every piece would be removed until he did the surgery, but he thought that it could be.  Good doctor!  Never promise.  Never put yourself on a pedestal.

So what do you need to know?  I knew that the best doctor in the country used a test to ‘see’ the mesh, where it is, what problems it caused and it guides him to doing the best job he can do when removing it.   I did not know the name of the test until last night, thanks to this lady.  With a name at last, I researched the test and found out that it is normally used for pregnancy complications.  I read several articles and finally stumbled upon this one written by the foremost removal surgeon in the country.  I will include the full link at the end, but have copied two paragraphs for you to read that are very important.  With this new knowledge you can go back to your doctor and demand the right test to see what is going on.  Or better still go to a trained removal doctor and ask the right questions.  You need to know that all the mesh is removed, or if it isn’t, you need the truth.  Why is this so important?  Because your symptoms may leave with partial removal and you feel better for awhile and then the symptoms begin again.  If you think it is all out of you but it isn’t, then you may not understand that the culprit is the remaining mesh.  This can lead to you being misdiagnosed with immune disorders and other diseases that you don’t have, but worse yet be on a drug treatment that could lead to kidney and liver disease.  To me it is unscrupulous of any doctor to not tell you the truth about what he/she did or didn’t remove.  It is your body.  You have to know!

Before I end this blog, if you need a doctor, send me an email.  I will do my best to help you.  The following is an explanation of the machine/test that can see the mesh in your body.  All other tests cannot see it and what it is doing to you inside your body.

Use of Translabial Ultrasound

The use of translabial ultrasound increasingly has become a helpful tool for diagnosis and preoperative planning of mesh complications [29]. Mesh is not detectable with X-ray or CT. Ultrasound is superior to MRI in detecting mesh implants. Translabial ultrasound can confirm the presence and location of residual synthetic graft material (see Fig. 2a and andb).b). The technique involves patients in supine position with knees flexed or in lithotomy, with the bladder moderately filled. Coronal, sagittal, and axial views are obtained with the 5–9 MHz-translabial, curvilinear (Philips IU22; Philips Healthcare, Andover, MA) transducer placed on the perineum near the introitus. A dynamic evaluation is obtained with Cine image (real-time graphics on cine playback) in the resting state, squeeze, valsalva, kegel, and cough. Translabial ultrasound can assess the structure of mesh and helps to correlate clinical findings. It does not help to diagnose vaginal, bladder, or urethral erosion. Further studies on evaluating the clinical use of translabial ultrasound imaging are needed.

This is another paragraph about mesh use and it’s complications.

The use of Mesh for prolapse-Complications

The surgical treatment of pelvic organ prolapse from a vaginal approach experienced a surge in the use of graft materials. The use of mesh in vaginal prolapse surgery stems from a desire for improved anatomic outcomes. Interestingly, vaginal mesh kits for prolapse repair were given US Food and Drug Administration (FDA) 510(k) premarket approval by demonstrating “equivalency” to existing devices. Mesh augmented prolapse surgery demonstrates better anatomic results but has a higher risk of complications (0%–23%) [26••, 27]. However, complications from vaginally placed mesh are likely underreported. The full range of complications is also difficult to quantify. Using the Clavien-Dindo Classification system [28], mesh complications that require a subsequent procedure under anesthesia falls under class IIIb. However, the degree of bother and impact on quality of life after a complication of vaginally placed mesh is difficult to fully evaluate. Mesh complications range from minor to major, and can include vaginal wall exposure, bladder and urethral mesh erosion, vaginal pain, vaginal wall induration, dyspareunia, leg pain, difficulty walking, and temporary or permanent neuropathy. Age-related changes of the vagina contribute to the development of these complications over time. An additional criticism of most mesh prolapse kits is that some do not correct vault prolapse.

This is the full article.
http://ukpmc.ac.uk/articles/PMC3021192//reload=0;jsessionid=PfPMKM6F1SoRRSw4Pbrz.0

284 Comments

  1. Kathleen

    This is the key. If a Doctor does not have this test than he or she is guessing. This is way too dangerous and complicated for that. I am 100 percent sure that is why I am recovering from mesh removal well since my Doctor Raz has this expertise. As well as a Pelvic MRI that shows degrees of cystocele and prolapse. A Trans Labial Ultrasound is amazing and to have a digital copy of your mesh and to know your surgeon can remove it safely is priceless.

    Reply
    1. leslie novoa

      are you aware of a dr in colorado that diagnose and remove the mesh? i am having so many problems

      Reply
      1. lavalinda

        No I am sorry I do not know of any doctor in Colorado.

        Reply
        1. kimberly Collin smith

          I live in Loudon Tn. Is there a dr at UT Hospital That has correct testing & repair? I’ve read that some have went there with success. I’m am bed & house bound! It hasn’t been right since it was done in 2001. I’ve complained & tried to get help thru my trusted dr who did operation in bristol tn & now a dr in loudon. They just feel & tell me everything is in place. I read a dr c Bryce bowling at ut hospital was doing these repairs with success.

          Reply
          1. lavalinda

            Kimberly I know women in your State who went to local doctors and then wound up at UCLA. There is a lot more to mesh removal than most doctors understand. This should not be a snip procedure as the pain comes back. Look at the drop down box marked doctors.

        2. nancy

          I was having problem with my stomach and I ended up needing a upper mesh in ab. When I woke up I found out he put a full mesh in my stomach. From day one I had nothing but problems. He even went to the point of telling me in a mean way when I told him of the pain . Come on ! Seriously? He came back later to tell me sorry he was having a bad day and that is no excuse to take it out on.me. to late damage done. My doctor today told me know what I said about thing IIam having problems with my mesh . He would not touch me and if any other doctor knew they would not either. Feeling really hopeless and in pain and aches and soreness

          Reply
          1. lavalinda

            Nancy I will try to find out who is removing mesh at UCLA. They help when other doctors turn their backs on us. I will get back if I find someone.

    2. Janet Morland

      I need a name of a Dr. in Flordia that can do rectocele reconstructive surgery and remove my mesh I had 5 surgeries.

      Reply
      1. lavalinda

        I do not know how good he is but I know a woman who went to this doctor. http://www.lennoxhoyte.com/LennoxHoyte/Home.html However please talk to him about all you have been through and ask a lot of questions before you decide.

        Reply
      2. Jenny

        I recommend Dr. Shlomo Raz of UCLA to all women in any state who want their mesh removed. The surgery is rough but worth it in the end.

        Reply
        1. lavalinda

          I am glad you are doing okay Jenny. He is a great surgeon.

          Reply
        2. tamera pelren

          I went to dr. Raz assistant Dr. . Dr. Hong Kim. SHe is said to be of excellence also. The problem is after the test. she first said how I have inflammation and had to have the mesh removed. THen in front of me she said once we looked at the defogram how my intestines were very inlarged. She said I had such a problem that it needed to be handled before the mesh or coinsiding. She changed from one opinion to another within one week. In the mean time I was going every week for three weekends. After the last time. We looked at the radiology report. The Radiologist would only comment on the defication never looking above to see the problem Dr. Kim saw with my overlarge megacolon. It was causing a bottleneck problem My intestines were and do not work properly. They even tried to get the Radiologist to re write the defogram. The defogram usually is only for looking at the rectum to out of it. It was surprising that the doctor had one opinion which I happen to believe. The Radiologist refused to help us by accessing the problems with the megacolon and bottle neck problem where it created a extreme stenosis of my bowel to rectum. After to no avail, she told me I would be better off going somewhere else. I am now in a grievance situation. For as it has been stated. They are suppose to be one of the best. Now due to that radiologist issue, they want me to move on. I guess its like a conflict of interest. If the dr. feels I am sicker bad. Yet the radiologist refused to asses the upper colon problem. No other colon rectal Dr. which is what I also need help with. will agree. None of them no how to read the defogram. Except Dr. Kim. She is very knoledgable . But it didn’t end well. I am now in a grievance on the complaint commity looking into it. I wish someone knew of another great dr. to remove my mesh and repair my damaged intestines that do have a partial blockage. Please. anyone. Just email me please. Thank you. Tamera Pelren

          Reply
          1. lavalinda

            Tamera wqhen it comes to the bowel there is no one like Dr. Raz andyou should ask to see him.

    3. jayne duffy

      Had mesh. Disintegrated removed. Abdominal abscess removed. Recently had internal ultrasound ovaries fine. Prior to all this had gall bladder removed. Diverticulitis lower colon removed. Hysterectomy. 2c sections and double hernia in 1988. Severe lower left abdominal pain no relief. What Dr. Can help me. I live near Boston. Help. No fever.

      Reply
      1. lavalinda

        At the top of this blog is a drop down box for pelvic specialists. Please make every effort to go out to UCLA or Dr. Rodriguez.

        Reply
        1. Tamera

          Lavalinda, just an update. I did finally get into see dr. raz. They didn’t want to let me in for a year. No one can wait like that when your so ill. I finally got a dr. at usc to realize my mega colon as well as the rectum is folding on itself too. I literally have a string that ibelieve was caused from my mesh that has wrapped around my anastomosis from the first resection. So in essence I have two colon blockages. I went to dr. raj on the premise of problems with my bladder. If anyone needs to be seen sooner. Go to him for whatever you need to. He will deal with you if you have mesh at the same time. No matter what they say. He is a very nice man. They gave me a surgery date to put in a pace maker to help my deadened bowels. I now know all of the other major problems so I am probably going to do the colon first. I have this failed back surgery from 2012 and I think it triggered a lot of problems with mesh due to the ct scans making every thing ball up. I still cannot have any sex. But my boyfriend has been sick also. We are quite a pair. I do feel like I am getting closer if this will ever get better. But I will say, Never give up. God is always on our side if we just wont forget that he’s right there . We have to get out of the way . Know when to go thru a door, and wen to let one go. When I returned to the Dr. Raz office, oddly enough. They couldn’t even find my pryor record with Dr. Kim. She never wanted me to see Dr. Raz. Said I would never get in to see him. Well thank God, I figured out a way. anyone need help just call me. I don’t want anyone to suffer needlessly. also anyone have had a total marlex surgery removed in the pelvis. please call me as well. I have a long way to go. I hope I make it. Thank you all for hanging in there with us.

          Reply
          1. Keri

            How can I see Dr Raz ASAP?

            Your post said you know how to get Dr Raz to pay attention to suffering mesh patients. I need several mesh removal surgeries and a partial hysterectomy because I can’t even walk now. I have great insurance and can pay cash if I have to.

            When I asked for an apt, they said 10 month wait!!!

            If not, do you know any other good mesh removal docs?

            How are you doing now and what did you have done?

            Thanks so very much!

          2. Linda (Post author)

            This Dr. is second in command at the same office and she is doing amazing work. I know other women who went to her. http://www.meshangels.com/dr-kim-ucla/

    4. Barb Thibodeau

      Just waiting 4 surgery for removal of Sparc.
      Dr. Dwyer of MONCTON N.B.
      is going to do surgery.
      He said it will be a challenge but he loves a challenge…
      oh to be PAIN FREE
      WISH i had never got surgery
      it was in FREDERICTON N.B. IN 2003
      My life has been never the same

      Reply
      1. lavalinda

        Barb if he knows what he is doing it should not be a challenge and I hope he does not injure you more. I hope you asked a lot of questions before you agreed to the surgery. I hope others will read this blog. http://meshangelnetwork.com/2012/02/questions-to-ask-before-mesh-removal/

        Reply
      2. Crystal

        do you know of any good doctors for mesh removal near middleburg, Pa 17842 I have had a mesh surgery in July of 2007 and ever since I had itching down there and alot of pain in the pelvic area but I didnt think much of it cause I already have neck and back problems so I figured it had nothing to do with that I did say to my mom maybe I was allergic to whatever they put in there. So I went to my gyno and they gave me cream. well the bottom lines is I really dont know what for problems it may have caused and when I hear about this mesh recall and all the problems I called my gyno and they told me it wasnt it it was tape or something so I left it go but I did contact a lawyer like you see on tv for these cases. And she called me the other day and told me that it was indeed the mesh that was recalled. so I have had that 8 years in my body. So what do I do now she told me to contact a doctor but my question is why would the doctor lie to me??? i dont understand so please any help would be grateful

        Reply
        1. lavalinda
  2. Vern

    Are you aware of any doctors in Canada who have this technology and expertise in removing mesh? Desperate!

    Reply
    1. Lisa

      If you find a doctor in Canada with this expertise in removing mesh can you please forward his/her name to me. Also Desperate! Thanks

      Reply
      1. lavalinda

        I am now friends with a lady in Canada who wants to help other women. I will send her your email address.

        Reply
        1. Sandra

          Please send me the email of any useful contacts in Canada as well. Thanks!

          Reply
          1. lavalinda

            I have just sent you an email Sandra.

          2. lavalinda

            Sandra I did as you asked. There are a group of ladies in Canada who are fighting to get your government to send women to UCLA to have full mesh removal. I am in touch with those ladies.

          3. Angella

            Please can I get her name. Currently at doctor.
            :0(
            Didnt realize that the pain I have had for last 3.5 years could be mesh related!!!!

          4. lavalinda

            Angela I see you are in Canada and I am going to send an email to you and a lady I know who had hers removed.

          5. Kathy

            would you please send me the contacts for Canada.

          6. lavalinda

            Kathy I am sending you an email to connect you to a lady in Canada.

        2. Shelley Wemp

          I had the bladder sling put in 2009, I am experiencing pain and discomfort. Please send me the name of a doctor in canada that might help

          Reply
          1. lavalinda

            Shelley unfortunately there are no doctors in Canada that can remove it all. Women up there are coming to the U.S. Can you tell me which Province you live in?

          2. Margy-Jo draycott

            My mother-in-law had a sling put in place 30+ years ago in London Ontario, Canada. She is now 80+ years old and suffering emotionally, physically and mentally from it. the mess has broken up. She lives with pain every day. She is TIRED of it. She needs someone to help her. I live in Manitoba and told her just last night I work check the internet for her. This looks like an amazing site. I am replying to you as you are also a Canadian, so could you please E-mail me with info you have received from fellow Canadians. I would love to find some info to relay to my mother-in-law to give her some hope that her golden years can be improved. Thank you so much.

          3. lavalinda

            Margy-jo, I am a US citizen, born in England but I know many mesh injured Canadian women. I am going to put you in touch with one you can talk to. I am so sorry your mother suffers so. This is my greatest fear, is older ladies who suffer with mesh complications.

          4. Lori

            Please send me the name of a doctor or how to get sent to UCLA for remoaval. The mesh has perforated my bladder and they just want to snip it from my bladder and leave the mesh in.

          5. lavalinda

            Lori this blog will take you to many blogs that will help you on this journey. The mesh will continue to erode. http://meshangelnetwork.com/2013/02/mesh-is-a-journey/

          6. Lisa Roy

            Please!! Can anyone please help me? I had a transvaginal mesh implant a couple years ago and a year ago in January I had a dr only remove half of it. 🙁 I am in CONSTANT PAIN and have been referred to many drs who just have no inside knowledge of how horrific this is!! I am saddened and cry a lot because I feel Im at the end of the road for answers! Please. Can anyone refer me to anyone who can help?

          7. lavalinda

            Lisa the only doctors I know can remove it all are the top three on this link. The others I have no clue abut but the sad part is I hear this all the time and women always wind up at UCLA. http://meshangelnetwork.com/doctors/non-mesh-doctors/

    2. Salina

      Dr ——- did take mine out but I am still in extensive pain

      Reply
      1. lavalinda

        Salina how long has it been since your removal? I am afraid I have never heard of this doctor and I doubt he has the experience to do the job properly and remove the anchors. I had to remove your doctors name for obvious reasons.

        Reply
  3. lavalinda

    I am in touch with Canadian women and I am going to ask them for help from you. I will give your email address to them. You very much need support.

    Reply
    1. Maggi Gladish

      I would also like the information for doctors/support for women in Canada! Thanks so much!

      Reply
      1. Janis

        Can you send me information for Canadian Drs?

        Reply
        1. lavalinda

          Janis I will put you in touch with a Canadian woman via email. I hope yours works.

          Reply
  4. Debbie

    I am looking for a surgeon for sparc bladder sling removal. I live in New Orleans, LA. Been to multiple doctors and everyone says everything is find. I have been in pain almost 2 1/2 years. Pretty much house bound.

    Reply
    1. Tammy

      Is Dr. Raz and his team training other doctors across the country to assist this wide-spread issue? I live in south Alabama had hysterectomy, Bladder tac ,sling (attached to top of cervix for extra holding power) done last July. 9 months it seemed everything was GOOD. no bladder accidents, no pads…then the prolapse began after a slight bout w/ constipation. Doc says we didn’t do anything with the back wall. We will re-check in 6 months to see if worse? May be candidate for a sub something or other. basically, some fix under my stomach. I started exercising trying to lighten up the load even working out with the aggravating bulge of prolapse. after 2 weeks of jumping up and down my right leg aches just put it off to being sedentary life-style and body changing but I’m not so sure now. The rush to bathroom is again a daily thing again, pressure… If mesh is removed what is done to fix trouble areas? I want to fix this before more damage is done and fix it right. Any truly qualified docs in the south that are highly recommend?

      Reply
      1. lavalinda

        At present Tammy the only doctors I know you can absolutely trust are those who are with Dr. Raz. UCLA is a teaching facility and he teaches there every day. No one person can change this and I am afraid the doctor who put the sling in you is at fault. I am afraid the right leg pain will continue and the sling is at fault. If you want to be fixed without a sling you know where to go if you have read this blog. I cannot be of any assistance with recommending any others.

        Reply
  5. Mary

    Please help or get in touch with me I’m staggering around I get so sick. I just had aparti removal in clevelnd clinic by dr. Goldman is he good Please send a phone number

    Reply
  6. Mary

    Please send me a number I am going through so much. Please help

    Reply
    1. lavalinda

      I will do everything in my power to help you. I will send you a private message.

      Reply
  7. Tullamore

    I just had the installation of a sling recently and stumbled upon your blog. It is very scary. I am in NJ. I hope that it is ok. I had a very good Dr. Maccarone Pelvic Dr.
    He did mention in my consultation meeting with him that the mesh sling will grow itself and attach to my skin and would be very hard to remove. He also told me that he had to remove one for a lady from another lady from another state who was not happy with her Dr. This actually reassured me he is very good as he did that.

    I am actually still recovering and I sm now praying that I don’t get this. I wish I had seen your blog before I had procedure done just for the question to ask if nothing else.
    I go to see my Dr for follow up in 2 weeks what can I ask then Thanks

    Reply
    1. lavalinda

      While you are there get the facts. Type of sling, number of the implant. Yes it is an implant. You are a rare patient. I have never heard of a doctor warning about the mesh used and that it would be hard to remove. You need to know about the type to understand how it is attached to your body. This is HIGHLY important. You also should listen to your body. don’t dismiss any unusual signs that something is not right, even down to a feeling of not being your old self. As time goes on mesh begins to shrink and harden. Complications can begin as many as 7 years after it has been put in your body. I do believe women have warning signs far sooner but they hope it isn’t what they think it is. The longer problems are left the more chance of infection, kidney disease and immune disorders. If you think you don’t pee as normal, there is a problem. It is usually a slow down and it takes a long time before you realize this. Listen to your body and get help as soon as you can. It is a long road back and none of us know if we will even be 90% of the person we were, IF we have a great removal surgeon. Most women never get that much of their old life back because there are so few doctors who can remove these slings including the way they are attached to our bodies. I wish you luck.

      Reply
      1. Michelle

        Hi im wondering if you can help ive been unwell for two years January 2014 im being treated for assymetric seronegative arthritis but no medication is working and im in daily pain can barely walk and have swollen joints. My gp thinks something underlying is causing my health issues she is referring me to a professor.
        This morning my mum called to say she heard of tvt mesh compensation and suggested I read about it. I had the op 4 years ago. Do you think this could be the cause of my health issues ? And what doctor’s can you recommend for Hertfordshire England or London

        thanks
        michelle

        Reply
        1. lavalinda

          Michelle I know others in England who are dealing with this. I will email you.

          Reply
          1. Maggie Pilcher

            Can you put me in touch with others in UK. I had a very successful mini sling (Ajust) single incision 4 years ago but pain across pelvis and down legs is now ruining my life. I had a cystoscopy to see if the tape was eroding the bladder.. it wasn’t but something surely isn’t right.

          2. lavalinda

            Maggie I will drop a lady a line with your email. I hate to tell you this but there are no successful implants. All it takes is time to show up complications. I sent the lady your email and name but it is a holiday so may take her a day or two.

    2. Kelli

      Thank you got this article. I had the Monarc sling put in during a 2012 hysterectomy. Due to this surgery, I’ve been diagnosed with depression and Hashimotos, which has a whole host of its own issues. I have since gained 65 lbs and am convinced this weight is pulling on my organs. I’m in constant pain. I had this procedure when I was 33 yoa. I’m now almost 36 and feel well over 50. We are desperate for help. I’ve reached out to so many doctors, nurses, advocates, to no avail.
      Im interested in studying the correlation between the synthetic mesh and Hashimotos. I’m convinced the sling caused this autoimmune disease. I never had thyroid problems before.
      Do you have any doctors for referral in Idaho? We’re even willing to travel to Oregon or Washington. My husband and I are desperate to get me better and as pain free as possible.
      Thank you for any help or information you can offer. Kelli, Idaho.

      Reply
      1. lavalinda

        Kelli I do not know good surgeons close to your home and I travelled thousands of miles from Texas once I learned about surgeons all over. You are so young and to survive this you need to go the extra mile.

        Reply
      2. Kelli

        By the way this is not the same Kelli who sent the email this afternoon – although ironic – I found this website last night by accident and I have never really looked up anything about mesh complications and wasn’t then – I was looking up da Vinci complications and then issues with foreign bodies – first I should start with the fact that I do not know if I had mesh used or not – gyno sugeon performed davinci hysterectomy – rectocele – and maybe cystocele (I’m dont feel like getting up to get my surgical report) and general surgeon performed appendectomy due to feces in my appendix on dec 2 2011 – after 4 days in hospital I saw my gyn surgeon for first time since surgery when he came in to release me and I asked him what all he had to do – since nurses and dr there over the weekend did not seem know – while reading from his file – he told me da Vinci hysterectomy – he said that bladder was not very bad but rectocele worse than expected and that he has used mesh to repair – when he said mesh I kinda teared up just a little and looked at my husband and my surgeon asked ‘did you not want mesh to be used?’ I replied and said that I had just hoped that it wouldn’t need to be used because I have heard that it can cause problems hand that was before all the commercials and warnings and class action suits) but that I didn’t think he would use it since we had never even discussed it being an option – the dr then said that my prolapse was worse than he expected and that the mesh should not cause a problem – and I had no problems and the day after I went home I went to a ballgame and the next day I went shopping – I felt great until 4 weeks later when something happened – I felt something pull loose – I actually felt it in my upper to mid left abdomen and was almost positive I had pulled something loose because things no longer felt normal like they had since surgery – and 2-3 days later it was comfirmed I guess when I went to have first BM since whatever pulled loose and it was very strange looking and then saw blood on TP and then felt like I needed to go more and bright red blood came out of rectum in toilet – quite a lot – I took pictures – called the general surgeon the next morning – Sunday and my general surgeon was on call and I told him what had happened and he said it was nothing and told me that he could not believe I was calling him about that on a Sunday morning – I have never seen him except once and that was before surgery – I never saw him after I had surgery even in hospital – I waited a few weeks and went to gyn for followup and release and told him about what I felt happen and the blood and asked if mesh was ok – he examine and assured me it was – I kept having more and more issues which just painful and annoying – went back to dr 5 months later and told him that I was still having problems and asked again if mesh was still in place – he again assured me that it was – my husband went with me both times – he usually always does – I went to pain care specialist who thought it was mesh issue and adhesions and referred me to urogynocologist who requested my surgical report and found that it showed I did not have mesh used – of course I was confused and didn’t know what was causing issues until one day my husband and I tried to have sex and it was too painful and I couldn’t and later that night I was walking and felt something sticking me just inside my vagina almost outside just like a needle – and I immediately laid down and my husband looked and I felt and it was like a small thin straight wire – half inch or longer – attached to a string coming down my the inside of my vagina – my husband took pic and video – you could definitely see it but quality not great – so I thought I had finally found issue – It actually rubbed a raw spot but went back up – I went to my gyn surgeon who told me it was a pin in my panties – I called gyn on call before going and on call dr said it was suture or mesh and I said I don’t have mesh – I then went to another urogyno to see what could be done and described and showed pic – he did ct scan and told me my clips were in place – this was not a clip that was attached to the string – I kinda gave up and continued in pain – then lots of things started to happen – I then started to swell and gained at least 40 or more lbs of what appeared to be lymph fluid and this continued until June of last year – I was very thin before this (112) and always had been but had lost maybe ten lbs since surgery – and in June i stretched my abdomen and fluid started draining – I have very high ANA now and have since last April – it goes way up and then down but never normal (my husband has had lupus for 18 yrs) and drs not sure which auto immune issue it is – I now weigh 100 lbs – I’m 44 – I can barely walk and sitting up is very difficult – I have abnormal lymph bloodwork – and few other abnormal test and being sent to oncologist – lots of neurology issues – sudden tingling numbness tremors – lots of hair loss on head and body – nail issues – my neurologist is great and trying to help and has referred me to mayo in December but we haven’t heard back – he is running more bloodwork before calling again – I have had MRIs that showed neck issues that I never had before – MRIs that showed some fluid on brain and sinus issues – I have lots of skins issues – boils that u believe are caused by this wire – I have issues with decacation – not constipation – strange urination – extreme abdominal pain and have had many CT’s which show nothing – have nodules on lungs – have felt puncture in lower abdomen/pelvis and since that happened my blood pressure stays extremely low for me and I’m very weak – 100/65 – sometimes a little higher – my whole adult life my bp has been in 140/80s so this is not normal for me – although it seems that mesh would be obvious cause of this I don’t know or think I have according to surgical report – but I am going to request copy of itemized bill to see if any indication- I guess a loose suture attached to string which is wrecking havoc from my pelvis to abdomen to buttocks and stick me and into me – it still comes down my vagina occasionally but does not come down far enough to get picture – my dr thinks it is needle and too thin to be seen on imaging – it has somehow involved the nerve fiber bands in lower and upper abdomen – which have caused a lot issues – I think it has gone thru or attached to lower band which also gets pulled to top of my vagina and around left upper thigh which tightens – unless there is another band there also and it is involved – things have gotten moved around so much – my ab muscles now all on left side of navel – navel has been issue since beginning – feels like something pulling it inward – too many issues and strange to list – basically I am just wondering if mayo is best – I live in Tennessee – I’m very sick and weak and feel that travel is going to be very hard for me but I will do all I can because I am going to die without help – and I will not fly because I don’t like to even when I was well I only flew when absolutely necessary – also don’t think my ears could handle the pressure – driving with my husband is best option for me but he has planned to go to mayo in MN – the bloodwork im having done and going to oncologist has really scared me along with having to have nodules rechecked next month – but without having abdomen pelvis repaired and this wire/needle removed I’m never gonna get well – my neurologist feels that no one here is capable of handling surgery and putting all issues together to resolve – I guess I’m just wanting advice – and Im trying not to let my parents and sisters and 14 year old son and friends know how bad I am and only my husband and a couple of friends know – they have seen the body changes but I have not been out of house in a month except for 3 dr visits because some thing happened in abdomen/pelvis as it does when I move a lot and things worsened around end of year – I had to take prednisone to get thru Xmas – basically for last several years – I just get thru things – not able to enjoy due to pain and physical issues – I’ve tried to stay positive and sometimes that’s hard – I wasn’t scared until blood work and bp and lymph and lung cancer possibilities – is there anyone that I could go to for advice in Tennessee – like I stated my neuro is going over and beyond his normal realm of practice to help me but I need more and quicker – sorry so long

        Reply
        1. lavalinda

          Kelli whoever did this to you is disgusting and yet it happens to women every day. He obviously did not know how to use the equipment either and has left you to die. I do not know anyone in your State who knows what they are doing, nor can I tell you going to the Mayo Clinic will help because many women had tried and wasted precious time. Please, pleas go out to California and right now you could get it faster with Dr. Rodriguez. Click on the link at top on doctors and you will find her. You do not need to die!

          Reply
  8. April Williams

    I’m not sure if the bladder sling is my problem or not. When I had my surgery just about a year ago for uterine prolaspe, cystocele and rectocele, and the bladder sling, I was told that they would be using mesh. They showed it to. So I was under the assumption that is what was put in my body. When I saw the doctor a month or so ago due some external pain, he said that I did not have mesh. Then when I asked about the bladder sling, he said, “that is not what they are talking about, when they talk about mesh”.

    So I’m confused. He told me before surgery he was using mesh. Now he says he didn’t use it. I did still have the bladder sling, so that is mesh, is it not? The reason I am concerned is that suddenly I have a positive ANA, with signs of auto immune disease. I also have this very strange edema in my right leg. They have ruled out blood clots, but I can’t seem to figure out what is making my right leg swell up.

    And now I am completely nervous as I let them put this in my body and I guess I didn’t realize all the problems surrounding it. No one told me that there were mesh complications. You are right, it looks like a simple harmless little piece of material. But now I am wonering if all the weird symptoms I have been having this past year are from the bladder sling and it terrifies me.

    What do I do? How can I find out what was put in me? Should I request my medical records from the hospital?

    Thank you for this blog and your information

    Reply
    1. lavalinda

      I can’t tell you if your doctor has told you the truth or not, only he can. (and there is a test to varify) Sad to say many doctors do not tell the truth and the women who use these doctors lose faith in them quickly. If your doctor blatantly lied to you, you should report him to your State Medical board. You can do this on the Internet. This has to stop and this is the only way to change this. If mesh is there then your life could be in danger with complications and this would be a violation of ethics. Yes, you have to request your records from the day of surgery. Go in the hospital records department and ask to see the nursing operative report. There should be the name and number on this report. If you don’t see it, you can stand there and tell them they must supply you with this information to report your complications to the FDA. The head nurse in the operating room records this information at the time of surgery. You do not have to purchase the records. They have to abide by this because it is the law. Be nice and don’t raise hell, but be assertive. A little honey will get you everywhere. There are other ways of holding the bladder in place but doctors no longer practice this method because they are no longer schooled in doing it. Don’t let anyone tell you it doesn’t work by doing it that way. My sister had it done 36 years ago without a day of problems. What you are describing as positive signs of auto immune disease is very common. Your body is rejecting the sling material which is plastic. As time goes on it hardens and shrinks. I am going to send you a private email to try to help you.

      Reply
    2. Jean

      April, I just recently found this website and recently confirmed that I am a mamber of this growing band of wounded warriors. Your opening remark reminds me of myself before I paid the medical center that did my surgery for a copy of the surgery file. The first thing I would do is advise you to get a copy of yours. The charge will probably be about $25 but it could be more. Do not say anything about why you want it. it is your right and they have to provide it, even if it is archived. It will just take a little longer. On the release form do not indicate you want everything…instead individually select what you want. There should be boxes to check. If you say “everything” you will pay for a lot of redundant data and some that is not relevant. KNOW THIS: They do not always note the data on the implant even if they are required to do so by law, expecially with a “product” where there is so much controversey. The lines on the surgery report where the data from the tag from the implant may be blank. The tag may have been thrown away or they may have gone into the file later and removed the detail. Never assume that any strange symptom may not be a result of something suspect. What is happening to your leg may be peripheral neuropathy. You need to see a competent Neurologist as soon as possible if you have not already done so. Start taking 2500mcg of VItiman B12 every day, 1200 AM, and 1200 PM. Do not go back to that doctor and do not go to any physician in that city if you can avoid it unless you live in a very large city where he is not well known in medical circles. Just as the AMA protects its memners, they protect eachother. Go to another city if possible and go to the best doctor you can. Insurance companies will often cover the cost of out of area or state care if it is the best care. it is to their advantage to see that you get the best care as the bottom line is that is costs them less in the long run. I hope you are better and have found a good doctor by now but if you are still terrified, and that is completely justified, then take charge, and research, be your own advocate as so many have said on this site and others, and do what needs to be done. Never be afraid to ask….call your insurance company, call hospitals and doctors (Get past their office staff and ask them to help you…a certified letter may help), and do not continue as you have been. If you do not do something it is unlikely that anyone else will. And you will be helping other women, other people.

      Reply
  9. Martha

    I had surgery 4 years ago an a bladder sling was put in. It is now eroding and my vaginal walls are thinning. I am scheduled to have surgery May 21 at the University of Iowa Hospital by Dr. Elizabeth Tackes. I am going to email her the questions from your site that I should ask her, but I was wondering if you know anything about her and her ability to perform the removal.

    Reply
    1. lavalinda

      I am sorry I have never heard of her. I am glad you are going to question her about her ability. Do not be afraid of doing this because your future is at stake. The biggest factor is partial removal because I know from many other women not only will it help for just a short while, but any bits of mesh that breaks off will wind up causing more complications and infection. This is because mesh becomes brittle in the body and many women report tiny pieces flowing out through urine. The bits that remain even in the bladder can cause non stop UTI, inflamation and deep tissue infection, let alone damage to other organs. I will now send you a private email.

      Reply
      1. Jamie

        I was 28 years old when IIhad a hysterectomy and my Dr told me she was going to put a bladder mesh in which now I know it was tvt-o by ethical/j&j due to I would probably have to have it in the long run so do all at once saves time. 4 years later now I still can’t squat and pee and my recent urogyno has told me I’m not emptying my bladder the mesh is too tight and cutting off my flow and on top of all that it has started to erode too. My Dr is now scheduling a surgeryfor the 1st of June to remove some of it or what can and then take my tissue to prop my bladder back up. I am only 32 and scared…..I don’t know what do after reading some of these statements/horrific outcomes!!!!!

        Reply
        1. lavalinda

          Jamie I am so sorry you are going through this at such a young age. Removing part of it will not help in the long run and often will cause more complications. If you can go to Dr. Raz at UCLA. You are much too young to risk going to anyone else. The link for him is at the top of this blog under doctors. I went to him.

          Reply
    2. Sherry

      How did you know you had erosions? Did they run special tests?

      Reply
      1. lavalinda

        Most women know they have erosion without any tests. The problem is the doctors don’t believe them. There is a test but almost all doctors do not know how to do it. It will show where the mesh is and what it is doing. Please go to my blog on May 20th 2012 and read everything you can. It will also tell the the name of the doctor who will remove mine.

        Reply
  10. Debbie

    ‘s ive in Louisiana. I am going to have Dr. Gouse remove my mesh. However, he won’t remove the whole sling on anyone. Mine was inserted vaginally. It is a same day surgery.

    I found out from my attorney Jack Sileo in LA, that the sling was on the market in the 90’s. He said it was voluntarily pulled from the market by the drug co. The FDA has no labs and depends on research on the efficacy of a drug or device based on research submitted by the drug co.

    Well, just like the silicon breast implants, the slings were put back on the market in the 2000s. I am not using the attorney in GA because not only do they take a percentage of your case, but any money they spend to get experts etc. they charge you for. But in addition, as soon as they spend the money, they start charging you 5% of the money they spend. My husband is a doctor that does medical malpractic casees. Some take 5 or more years to settle. 5% can add up.

    Also, you must have the number of the sling that was implanted in you. Each sling has a seal. The doctor that implanted it should have this seal. Likewise, whatever mesh that is removed for you must be kept if you are to pursue legal avenues.

    Please pray for me. I am having surgery 5/11. I do not do well under anesthesia. I have coded already and have suffered damage. The surgery was done by people who thought
    the pain was coming from my vaginal vault falling.

    After Katrina, it is difficult to find good doctors and then good support staff. I wish you all well because we now all know what hell on earth is like.

    Reply
    1. shaun

      Hi Deborah,

      Did you have any luck pursuing your case? I have been suffering due to the mesh implantation for several years now and I do not know what physician to go to. I too, live in the new orleans area. I am pursuing legal action in regards to my mesh implantation and I want a physician experianced in mesh removal and one that does not have an affiliation with the facility in which performed my first procedure. I do not want them to have the ability to be able to cover up my issues by suggesting another diagnosis and / or reason for my constant pain.

      Thanks,
      Shaun

      Reply
      1. lavalinda

        Shaun you can look at the drop down link at the top of this blog under doctors. But whoever you choose ask many questions before you hire them to help you. Better to take your time. The doctors at UCLA and Dr. Rodriguez trained by Dr. Raz are the best out there but it is up to you who you choose.

        Reply
  11. Brandy Gray

    I had sling inplant on March 13 after having full hysterectomy oct 18. I have been having severe lower abdomen pain on left and right sides and burning pain in both thighs like nerve pain, as if I have a pulled or torn nerve in both thighs from my pelvic area since surgery. My stiches that I had at my exterior vaginal area (which were to disolve at 10-14 days,one side had to be pulled from NP at 28 day with meds,not fun,left a big scar and a ton a pain) also at 6 wk check up, dr removed a lot of stiches from inside my body during checkup, was not excepting that, was very sore for days after that. He “stated” my nerve pain in legs could be due to be in stir-ups in surgery for so long, even though I wasnt in surgery for any extended length of time, just regular time for procedure. Also I told him I was just not feeling goof, had felt worn out and feverish, slugish, I had already called nurse 2 or 3 times, and got in with his satelitte office and was seen by NP where there pulled exterior stiches 1 week before my 6 week follow up, but he still told me I was just a worry wart, because I have anziety. He said I needed to relax and I will be ok, I said I just dont feel good, he said you will be ok, it just takes time. It is now May 28, 11 weeks post op and I feel worse than I did then. So am I still a worry wart?? Should I worry about the thigh and abdomen pain this early after surgery?? I called his office Thursday and his nurse has yet to call me back. I am only 37, what do I do?? Please email me with suggestions and help??? I am suffering and lost!! Thanks

    Reply
    1. Babs

      I had a sling put in 5 months ago and seeing the doc who put this in tomorrow. I’m peeing without warning almost daily and feels like I have period cramping all the time but don’t have as uterus, tubes or cervix anymore. If my doc says everything’s fine tomorrow who else can I see to remove this thing? Oh and I have a foul smell that has been getting worse for 4 weeks now. I’m really scared.

      Reply
      1. lavalinda

        Babs this sounds like a serious infection or could be bacteria in the mesh. going to send you a message.

        Reply
  12. Bridget

    I had a Coloplast Aris Tape implant back in Feb. 2009. I have been in pain ever since. Pelvic, groin and leg pain as well as painful intercourse. Narcotic pain relievers do not work. I had an excellent job with good health benefits before the surgery and lost it all shortly after. I am being told by doctors that test results are normal and experiencing the same issues with doctors that I am reading about here. I live in Crestview, FL which is in the panhandle of Florida. I am looking for a surgeon who has the capabilities to test correctly, experienced in removal and hopefully cares more about the patient than the money as I have none. Any advice or directions will be GREATLY APPRECIATED.

    Reply
    1. Bridget

      I forgot to mention that since the surgery, I have had reoccurring bladder and kidney infections, narrowing of the urethra, and now cystitis. I have not been able to fully empty my bladder ever since the surgery.

      Reply
      1. lavalinda

        For information, please view the blog I wrote on May 20th 2012. There are links to get you help.

        Reply
    2. Blanche

      Bridget, it’s almost a year later and I am just now reading your post. I wonder if you ever found a surgeon who could help you. I live very close to you (Milton, FL) and really need help. I don’t know how we can communicate but I hope you see this.

      Reply
      1. lavalinda

        Blanche I know many women in Florida who have trekked across the U.S. to UCLA. This is a journey and your journey can be good if you take that first step an make the consult appointment. I know it sounds crazy but behind me is the experience of many, many women and I found a better life because of them. You can do this too. Read all these links on this blog then fight for yourself and you future well being. http://teapapers.com/bladdersling/2013/02/mesh-is-a-journey

        Reply
  13. michelle

    I have been seeing a lot of commercials on this and now i wonder if the problems I’m having are linked to this sling mess. I am having problems with my bowel movements, pain in my stomach, two uti infections, painful intercourse, a lot of migrains. We lost our insurance over a year ago so i haven’t been to a dr. We are trying to find one now to get me checked out . I got this sling in around 2007, i live in carthage missouri. Do you know of any dr in my area?

    Reply
    1. lavalinda

      I am so sorry you lost your insurance at a time when you most need it. Your story is that of thousands of women and you can bet your symptoms are those of mesh complications. The only thing I can advise is that you get on State disability to see a doctor, however, I do not know anyone in your State who understands mesh complications. It breaks my heart that so many women live like this and no one cares.

      Reply
    2. lavalinda

      All of the symptoms you mention are very common with mesh complications and many more. They are so vast and doctors usually discound them all.

      Reply
  14. lavalinda

    I was not believed either and when I went to see Dr. Raz it was like I was bathed in sunshine when he know exactly what I was talking about. He will remove it in October. When he examined me he told me he was sure the mesh had affected my femoral nerve so he did a nerve block there. It worked and he was right. I can’t wait for it to be out of me.
    I was put through an EMG when I complained. This after I fell when my hip gave a sharp pain and I had no control. With 2 cracked bones and my arm in a cast, the EMG reader said there was nothing. Don’t put yourself through these tests. They are worthless and will show nothing. Trust in what you believe, because you are right.

    Reply
  15. Christie

    I had a tvt-o put in on April 12th 2012…. I have had nothing but complications since. Funny thing is my husband and I thought we asked all the right questions in my pre-op appointment a week before I had the procedure done. We both saw the commercials on t.v and I did some research after that to get more info. We found the questions online to ask the doctor.he then reassured us that I wouldn’t have any of the problems we were talking about since the sling he was using was different than the ones they were talking about and it only involved a little mesh. Some of the problems we asked about were painful intercourse , erosin and several others…. So we totally trusted him and as u know i had the surgery. I saw him several times after surgery only to be told he didn’t think any of my issues were from the surgery. I then got a second opinion only to be told the same thing and to have Him refer me to someone else. So I guess wht I’m try to get across here is if u ask the right questions and your still lied to by the doctor u thought u could trust what is this world really coming to!!!! I do need to tell u I have an appointment with DR. Raz In a couple of days on Aug. 7th and I’m hoping to get some good new or at least find out what’s really going on. God Bless to all who are dealing with this messed up mesh and dishonest doctors!!!!

    Reply
    1. lavalinda

      Doctors are told by the mesh manufacturers that what we are saying about our complications are not true. That THEIRS is not the mesh under scrutiny or in question. Therefore we are ignored or outright told it is not the mesh causing our complications. We have to believe in ourselves and seek the help from a doctor who does believe us. What I know to be fact because women contact me with all types of mesh in their bodies soall mesh manufacturers are under scrutiny. You KNOW your own body. You KNOW who you were before mesh sling was used. The newer slings are having the same complications as all their predecessors and you can no longer sit in a room with a doctor and believe he/she is not biased. If you do not want mesh then read the blog I recently wrote about Non mesh surgery. Trust in you and no one else. You are going where you will have answers. Dr Raz helps many, many womenand he also does non mesh sling surgery.

      Reply
  16. SojournerPA

    Just found out that I have mesh erosion from TVT sling placed 6 years ago. Surgeon wants to just repair the erosion. I am questioning whether I should have the whole sling removed if that is even possible without causign major damage. Looking for a 2nd or 3rd opinion. You mentioned in one of your blogs that you have a list of qualified surgeons for mesh removal. I live in Pennsylvania. May I have a copy of your doctor list please. Thank you.

    Reply
    1. lavalinda

      When I began trying to work with a list of doctors who could remove the mesh, I was like many. I believed there had to be specialists all over the country and it was just a matter of time finding them. I had a list of doctors who had trained with Dr. Raz at UCLA at some point and that gave me hope because I knew what he was doing for women. So I passed the list to those who asked and asked them to please stay in touch to let me know how their consultations were and if they chose to go through with surgery to let me know how they did. We had compiled a list of questions they should ask before surgery so that they understood their doctor’s skills, including a test that Dr. Raz uses to determine where the mesh was and what it was doing inside the body. What we learned from this was that either these doctors when pressed could not remove the mesh entirely in one surgery and would only trim it if need be. This meant that eroded mesh would continue eroding after a period of time and the woman’s condition would worsen. One woman had her doctors reassurance that he could totally remove the mesh so she underwent the surgery only to wake up to find out he had not removed any, saying he had not removed her type of mesh before. He was armed with the type BEFORE surgery and this made the lady shocked and angry that she went through yet another surgery without any results. She is at Dr. Raz office as I write this for her first consultation for mesh removal.
      Once I realized there were not the skilled surgeons across the country and women were having countless surgeries for partial mesh removals and they remained ill, I was very down about it. I had to make a decision for myself about who to have removal by and I decided there was nowhere but UCLA who could really do what was needed, so I sold my car to get the expenses to travel. I wrote about this trip on June 30th 2012 under the title ‘There is Hope’. I included what it was like to travel there, my experience with Dr. Raz and any extra expenses. I will now have removal by him next month, October 11th 2012. So this will answer your question. There is no longer any list but the good news is, there are two more well accomplished surgeons at UCLA which means you can get in faster than with Dr. Raz. You can read this blog I wrote on August 28th 2012 ‘So Much Hope for Mesh Removal Surgery’. This was because I only knew about Dr. Raz and it was becoming a long wait for consult and surgery. I am sorry I cannot give you the simple answer you desire. All I know is if it is this difficult to remove, why is it STILL being put in every day.

      Reply
      1. Shirley R

        Please contact me when you can. My name is Shirley and my number is (removed) and email is (removed). I’m looking for a Dr for removal. Please help.
        Thanks
        Shirley

        Reply
        1. dc

          Hi Shirley,
          I just sent you an email. I removed your personal contact information from your message here – because I wasn’t sure you would want it posted for the whole world. Any messages you post after this will not need approval before going live.

          You can email me back, or the other contact I gave in the email if you want to talk more privately.

          For mesh removal, the best one I know of is Dr. Raz or one of his associates in UCLA. Their contact info is in this post:
          http://teapapers.com/bladdersling/2012/08/so-much-hope-for-mesh-removal-surgery/

          More information on him throughout this blog, including these posts:
          http://teapapers.com/bladdersling/2012/09/mesh-removal-a-pathway-to-a-new-beginning/

          http://teapapers.com/bladdersling/2012/09/mesh-going-to-ucla/

          http://teapapers.com/bladdersling/2012/09/mesh-removal-the-translabial-ultrasound/

          Please know that there ARE doctors and people who care. Help can be found. I’m so glad you found this blog as it was a gateway for myself to get the information and help I needed, as well as many others.

          If you aren

          Reply
      2. dawn

        I was wondering do you know someone in NJ who would remove the mesh and if not Dr. Raz how would I google him what town is he in again.
        Thanks for any help have sling put in 2009 thanks

        Reply
        1. lavalinda

          Any doctors I am told about Dawn are at the top of this blog under doctors.

          Reply
  17. Lynn

    I had a bladder sling “installed” about 10 years ago, about 4 years after that I started to develope pains in my lower abodmen (where my ovaries “used” to be). Two years ago, the symptoms worsened, started to develope bowel issues. In the last 8 months I have lost 40 lbs, my bowels feel like they are twisted and obstructed. Have had every test known and the interal bowels are fine. I was told I had IBS (generic name for “I din’t know”). Since Bladder Slings do not show up in X ray, cat scans or any other type of imaging, I have requested a Lapacsopy to go in and LOOK. The Doctors are not very receptive to my request. Their answer is medication…I’m very frustrated.

    Reply
    1. lavalinda

      Please go to see Dr. Raz at UCLA. This has happened to other women and I would not have any doubt that your IBS is deep infection in the mesh. I am going to send you a private email. I wrote a blog about this called Mesh & Internal Clostridium Infection on July 23rd 2012. Please read it and do something to save your life.

      Reply
      1. Carolyn Williams

        I have had the same problems occurring since my surgery in 2008. I was told IBS but am living a miserable life trying to control and also I have elevated ANA levels. What was the information on July 23, 2012 so I may also read it myself. I definitely need help. I am in Louisiana and looking for a doctor.

        Reply
        1. lavalinda

          Carolyn, look at the top of this blog and click on the doctors link. I was told about some, but do not know how good they are so make sure you ask a lot of questions before you commit to surgery. Everyone I know in Louisiana wound up going out to UCLA.

          Reply
  18. Kate W

    I need a list of surgeons who do mesh removal. I am in North Carolina; thank you!

    Reply
  19. dc

    Hi Kate,
    Finding a doctor with experience and a good success rate with removing mesh is not easy. Unfortunately, most docs only offer to do partial removals (if that), which from my research not only doesn’t always help, but often makes things worse. The best doctors, and really the only ones Linda (the owner of this blog) usually recommends are Dr. Raz at UCLA (CA) and his associates. See: http://teapapers.com/bladdersling/2012/08/so-much-hope-for-mesh-removal-surgery/

    I have heard of a few others, but not many – and none that I personally could recommended. I live in NY, and I have made the decision that I need to go to Dr. Raz for my own mesh removal. I already had my consult with him.

    You should also read this post regarding questions to ask before you do agree to mesh removal from any doctor: http://teapapers.com/bladdersling/2012/02/questions-to-ask-before-mesh-removal/

    If you aren

    Reply
    1. lavalinda

      Thanks for answering for me. I hope this will give everyone hope.

      Reply
  20. Katie

    Hey There!
    Been having problems for some time now. How can I contact you?
    Thank you!
    k

    Reply
    1. lavalinda

      I am home from having removal surgery at UCLA. You can read my latest post and I will contact you. http://teapapers.com/bladdersling/2012/10/home-again-after-removal-surgery

      Reply
  21. Cheryl

    I have had a vaginal mesh for 2 1/2 yrs. it was put in during a hystorectomy about a year and a half after it was put in for stress incontenace have had worsening vaginal, right leg, hip and joint pain and headaches and ringing in my ears…not to mention severe weakness and fatique. I also cannot control my urine, it just leaks out and at other times I hard get the flow of urine to start. and cant compleatly empty my bladder. I HAD THIS SURGERY DONE WHILE I WAS TAKING CARE OF MY HUSBAND THAT WAS DIEING OF BRAIN CANCER. HE HAS SINCE PASSED.
    I have been back to the ob/gyn that did my surgery and get no answeres. Does any one have the symptoms that I do? I will be praying for all of you and thank you for sharing your struggles with this horror called a vaginal mesh.
    GOD BLESS YOU ALL! CHERYL

    Reply
    1. lavalinda

      I am so sorry you have gone through your husband’s awful illness, dealt with it and now you are having these serious issues yourself. I too am a widow and I am grateful my only child, a daughter is here for me now. I hope you have someone in your life to help you through this. All the symptoms you describe and more are mesh complications. I am going to send you a private email to see if I can help you, if nothing else just by listening to you. I am four weeks post op after full mesh removal surgery and although I have issues remaining, I know now that I won’t continue to go downhill with mesh in my body. You can read here how I went out to UCLA and had the best urologist in the world remove it all, mesh and anchors. http://teapapers.com/bladdersling/2012/10/ucla-tests-before-mesh-removal-surgery

      Reply
  22. Pleasehelp

    Please help me. I have it in writing that my doctor would not use transvaginal mesh for my surgery and he even said it again the day of my surgery. He said they don’t use mesh only my own body. The op report says he used a Desara sling. I have been having issues starting in August but the Dr dismissed my pain as adhesions. Please help

    Reply
    1. lavalinda

      I am amazed at the bare faced lying your doctor did to you and I am so sad for you that you have been so devastated by his deceit. Any woman who has this done to them should go on line and put their State Medical Board in Google and file a complaint against a doctor who would do this. This is terrible for you. I looked your sling up and it clearly states Desara

      Reply
  23. sherri thomack

    Hi I have been reading some of your stuff now I am freaking out.Istarted haveins spotting a couple of months ago. My Dr did a pelvic ultra sound to check the utrine lining it was fine so she sent me to Dr. Matkov a urologist here in Racine Wi He said my kidneys are fine so today he tried to look inside my bladder with cystoscopy he could not he said there is a stone in the way that is like a sharp small rock and could be caused by the bladder sling I had put in Oct 2007.It may be eroding into the urethra. so he is sending me to Dr Melinda Knight in Kenosha Wi. I see her next Thurs. Have yuo heard anything about her? Help Thanks Sherri

    Reply
    1. lavalinda

      I do not know anything about this doctor nor have heard about her. Yes kidney stones are a huge issue because of mesh slings. Please read the blog, link to the right, ‘Questions to ask before mesh removal’. They are highly important because doctors rarely remove it all including the anchors. I know on none in your area and women are flying across the country to UCLA. You need to know what she will remove before surgery or you will be one of the women who keep going back for more surgeries.

      Reply
  24. Barbara Vance

    Thank you for your website! I live in Tyler Tx. Is there any Dr in my area that can remove my bladder sling? Blessings~

    Reply
    1. lavalinda

      I do not know of any doctor in Texas who completely removes the sling and arms/anchors in one surgery. That is why I went to California.

      Reply
  25. Walthour

    I am new to this, do you have any post op questions RE possible mesh problems. Thanks!

    Reply
    1. lavalinda

      Walthour, I am not sure if you have a sling already or if you are going to have surgery and are concerned about mesh issues. If it is the latter, read all the comments
      from other women on the following blog because then you know how serious they can get.
      http://teapapers.com/bladdersling/2012/04/221
      And the following blog which will also tell you questions to ask before mesh removal.
      http://teapapers.com/bladdersling/2012/02/questions-to-ask-before-mesh-removal
      I hope this answers your question.

      Reply
  26. Walthour

    Post mesh from Oct….my husband and I are shock right now over what is happening……it all came together last night. I’m a ball buster but a mess right now because of everything I’m reading and what is happened to my body…needed questions for post op Ty 🙁

    Reply
  27. Walthour

    Partial hysterectomy and vaginal lift as well…..8 hour surgery now I believe I have rectocile ?????and I’m pissing everywhere….Funny you call me Walthour my hubby is in law enforcement …..he would die if his name was on here:)

    Reply
  28. Chandi

    I am now almost 7 weeks post-op..I had a mini-arc sling put in, still having the burning UTI like symtoms, with no infection showing up..the urologist who put it in still denies it could be the sling, he told me I need to learn to deal with it, and gave me pain pills and amitryplaline..went to my gyno,last week and he referred me to a uro in little rock, I tried to go outside the state but my insurance wouldn’t allow it…
    Anyway, for the past five days I’ve had the worst headache, and I don’t know if its related or not to the sling, I have a numb spot on the side of my hip, and my blood pressure is up..
    Tried having sex with my husband, but certain position are excruciating..and send pain down my legs, in my bottom, this is crazy,
    My gyno said he thinks an anchor could me in a nerve, or something of that nature..and that he’s sorry the urologist is treating me this way ..well … Me too.
    And said the mini-arc usually doesn’t have negative side effects…they make a person feel crazy..and sometimes I think maybe I am..

    Reply
  29. lavalinda

    Chandi, insurance companies HAVE TO allow you to go when there are complications. You need to google patient advocate and your State and hunt for one. Your hospital also has them and your insurance company.. Many are free. This doctor is lying to you and he should be ashamed that he would tell you you need to deal with it. No, he should be dealing with it, but because he ignores you he needs to be reported. To ignore and dismiss your pain is to spit on the oath he took. Read this blog
    http://teapapers.com/bladdersling/2012/11/mesh-doctors-without-ethics
    Every woman hears the same thing. “This sling does not have negative side effects”. It is the biggest load of bunk told to women. They ALL do. I am not surprised your B.P is up. You are in pain.
    I wish I could fight for you but I can’t. You can do this and get the help you need. I feel for you deeply and I keep trying to change this.

    Reply
  30. Gail Crochet

    Do you know of a doctor in south Louisiana I could see for my sparc sling problems? I had surgery in 2010 and have had urethra pain for the last year and can not find a doctor to help me.

    Reply
    1. lavalinda

      I am so sorry Gail but I wish I did. Women in your State cannot find anyone to remove it completely and they are trekking across the country, the same way I did from Texas. They are doing so to avoid further surgeries and injuries. These are the only doctors I would trust and I had full removal last Oct. I wrote everything here about my journey. http://teapapers.com/bladdersling/2012/08/so-much-hope-for-mesh-removal-surgery

      Reply
  31. Kathy

    I am so angry this evening I need to vent. Had a Miniarc sling implanted into me in 2007. I can hardly walk. The doctor says I have Arthritis and Fibromyalgia. I have leg pain, groin pain and sharp wire in my Vagina.
    I am working on getting to UCLA. when I read the above email from the victim that just had a Miniarc implanted, I lost it…. we must stop this somehow. Can we have a registry of names and complaints that we all sign and send to Urologist and Urologist-gyn. This is wrong and I can’t sit back and see this continue.
    ” Stop implanting mesh in our Vagina .”…now !

    Reply
    1. lavalinda

      Kathy, many women have done what you say here and nothing happened. However, you stating here how you feel probably does more good because this reaches theousands of women who need help or are about to have this surgery done. I know someone who had the same sling as you and I will put you in touch with her. She has it completely removed at UCLA and she is living again.

      Reply
  32. Simone

    Hi,
    I am happy to have found your site…to say the least!!!! My mom has been having excruciating vaginal, rectal and back pain since January of 2012. She has seen at least 10 different doctors in New Orleans, several MRI’s and 2 puedendal nerve blocks( including 1 at the Mayo Clinic), and no diagnosis or relief of pain has occurred. We are both questioning if her pain could be attributed to her bladder sling surgery about 13 years ago. she had a transvaginal ultrasound which was negative. Should she have a translabial one ordered? I was also wondering if you can recommend a doctor for her to make an appointment to evaluate if this could be her source of pain? the doctor who did her surgery is retired and many doctors there are reluctant to see a patient who has had this surgery from another surgeon.
    Any information you could offer would be incredibly helpful. I feel so helpless as her daughter, as well as a nurse, that I can not help her!!!

    Sincerely,

    Simone

    Reply
    1. lavalinda

      I have a woman who will talk to you because she is from your area. She too went through all this and had removal at UCLA Jan 3rd. I will contact you both together. Yes it certainly is from the mesh. And it is NOT too late to have it removed. I had mine removed last October and I have written about every stage of my journey. This link will take you to many links so that you understand the journey it takes to remove mesh and how important it is to go to the right doctor. http://teapapers.com/bladdersling/2013/02/mesh-is-a-journey

      Reply
  33. Jill

    I had mesh implanted in 2010. Due to job changes and bitter divorce I have just recently began the journey of figuring out what is wrong. I went to gyno in oct bc of bleeding and pain during intercourse and bowel movements and was told I had some mesh erosion. He said was a simple fix in office procedure. I have not had the procedure yet but started have more significant bleeding and a “pulling/ tearing feeling. Went back to gyno and was told the erosion/exposure was quiet a bit more significant than in oct but he still left me with no sense of urgency. He does want me to have a cystogram to see if it has eroded in my bladder. My concern is I’m not sure he has the experience to deal with this and is there any help for the cost that my insurance doesn’t cover. I have a very high deductible and my divorce has left me quiet broke. I really don’t know what next step to take or if the cystogram is even necessary. Any advice or info would be greatly appreciated. I live in crossville tn

    Reply
    1. lavalinda

      I know someone in your State who is going through this and will have surgery next month at UCLA. I am planning on writing a blog about medical bancruptcy soon and the truth is you need to get the help and worry about costs later. None of this is a simple fix and especially not in his office. Don’t do it. Other women have told me they went through terrible pain when a doctor does this. I am going to contact you now.

      Reply
  34. Traci

    I have mesh erosion due to a TVT implant in 5/2010. Dr’s have confirmed. I am scheduled for a cystoscopy at my request to see if there is damage to urethra and urinary tract. Is this a waste of time? They just recommended surgery to remove as much as possible, but have told me they cannot remove 100%. Thanks

    Reply
    1. lavalinda

      No Traci it isn’t. It will show damage IF the sling has eroded all the way through. However, it does not have to erode through to cause serious complications. I don’t know how experienced your doctors are in removal and there is no way you can find out. It depends on how good they are for you to feel better or worse, but don’t be surprised if you feel it all coming back in a few months even if you feel better at first. Many women talk about this and then have to go where they can remove it all.

      Reply
      1. Traci

        Thanks Linda,

        The TVT was used to support my urethra. It has eroded into my vagina. I’m not sure why this was not also pulled from the market by J&J. At this time unless my results say surgery must be done quickly, I am going to see about going to UCLA. I know the my Dr’s still use this product and hopefully women will do research and find your site and decide the surgery is not worth the “life ruining” complications. God bless you for the important info you are getting to people.

        Reply
        1. lavalinda

          Traci it is rare for any mesh product to be pulled from the market. Many women are told by their doctors that the mesh they use is not the bad mesh. Well, nine companies make many types of many and this can happen with any of them. You are a wise woman to go out to UCLA. A lot of women say they don’t want to go far from home, not have the expense. They don’t understand the complications that can arise from mesh removal that can make things far worse. You undoubtedly do.

          Reply
  35. BatyaSarah

    Hi lavalinda,
    I just found your site and posts today better late than never.
    I also just made an appt. with Dr. Raz in UCLA for mid June. I was told in 2006 bt a well respected female gyno to get the tvt mesh at the same time as my laporoscopic hysterectomy which was successful. Uand nforttunatelyt
    ely I had vagin al erosion of the first mesh was lied to by this well respected female urogynocologist and she only partially removed the mesh and then put a new mesh around the old one. It was 2008 and it has finally taken this many
    years for me to seek help as I can no longer sit or stand and have not enjoyed life or sex i dont have money for the copay but amhoping dr. raz will work with me. i bately can afford the airfare and am disapointed they wont allow me to book all my procedures in advance. i can only get a consult to begin with. is this normal? I do have a new gyno who has the translabial ultra sound can i ask her to at least send the results to Dr. Raz she told me she wouldnt know how to interpret the results but im hoping i can get her to at least do the tests and send them to ucla ahead of my arrival. i did read that you rec that we take the op reorts with us to the consult to show dr. raz. i was just hoping that if i could get him to view them for my gyno that he might be able to let me stay and also get the removal done?? Any advice is grately appreciated thank you so much for this blog.

    Reply
    1. lavalinda

      I am glad you are going to UCLA especially that you found out you have not one but two slings. You are one of so many women this has happened to and I have no doubt they will find something like your urethra is being strangled and that is why you cannot sit or stand. Check to see if you are eligable for a discount at the hotel or free airfare. http://teapapers.com/bladdersling/2012/11/mesh-removal-no-money or get someone to do a fund raiser. Yes they will only do a consult to begin with unless you pay up front for surgery which will be cash. I did write a blog about this. Yes do take those operative reports with you and write down ahead notes of things you need him to know.

      Reply
    2. BatyaSarah

      So after my most recent trip to see the gyno she told me she did not have translabial u/s and another friend mentioned that ONLY Dr. Raz has it. I feel like I should sell everything and move to LA . When I told her I was going to see Dr. Raz she said something like “he wrote the book on it ” she seemed impressed and I wondered what she knew and if she had lied to me about the translabial?

      Reply
  36. Angels123

    Yes…this is the procedure that is followed at UCLA…it is a bit frustrating that it takes multiple visits to get just the first phase of getting better done. Remember getting the mesh out is only half the battle. Depending on the damage found there may be a need for more surgery for reconstruction. Do as Linda says and do fund raising in any way possible. This will help to take the stress of needing to get to California away and we all know what stress does to pain. There are those of us who have been damaged like you…we have been where you are and we are on the other side…there is another side and all you have to do is get there now that you know who can help you. I think all of us who have been through the pain of the removal and reconstruction would tell you that it is absolutely worth every pain, every penny spent, every hassle, every everything! So go ask for help to get your life back…aren’t you worth it? Good Luck to you!

    Reply
  37. BatyaSarah

    I am excited and was lucky enough to get an affordable flight and might only have to pay for the cab fare as I have received a generous offer of a friend’s condo in Manhatten beach at least for the initial consult. Is it reasonable to the hospital? I mistyped as I do have days when I can walk, sit and stand for short times, but when I drive, sit or stand for more than a half or or sometimes just a few minutes I find myself in exciating pain, had to give up a job that was 50 minutes from my house cause it hurt to much to drive and stand for my job and I have bad moments where nothing helps. I have gone to a chiropractor and he helps a little and tells me to take it easy for a few days and try heat and creams etc. even to just get the rest of my body relaxed enough to sleep is better than nothing, today I am getting an u/s of my ovaries by my local obgyn today as they want to see what if anything is going on with them. They also have translabial u/s and I am going to beg them to do it in order to see what is going on even if they don’t know what to do with the information. I think I can take it to Dr. Raz and it might help him? Can you tell me about how long it will take to book the surgery once I do see him for the initial consult? (that is going to be on June 12) It will help me to know how much money I will need to fund raise and/ or borrow from kind family and friends if I have any left by the time all is said and done! I really appreciate your support as it’s been way too long..since 2007!! I sort of blame myself for trusting my Dr. because I know they aren’t God but it doesn’t help to do that so I spend a lot of time listening to meditation tapes and positive affirmations. I feel so relieved knowing I am just going for a consult with him. I have faith that I will find a way to get through a scary year ahead and hope and pray someday I will be able to enjoy sex and driving and go back to work full time. Are there women here with those results down the road?

    Reply
    1. Angels123

      BatayaSarah,
      I have been there…Linda is right. You will feel better about 3 months after surgery. That is where I am at right now. There have been ups and downs but nowhere even close..not even close..to the down of having mesh in. I was on heavy narcotics, antidepressants, and nerve meds until recently. Recently I’ve been able to get off all the narcotics and that has been huge! I have been grateful I have had them till now because the pain was so horrible. She is right about the supplements, I am a chiropractor and so while my list may vary from Linda’s, the supplements I took all through my illness helped enormously with recovery. If you are interested in talking further, email Linda and she can get you my contact information. Good luck to you!

      Reply
      1. BatyaSarah

        Angels123
        I would love to get your list of supplements as I really don’t want to take pain meds if I can avoid it. I have been using Topricin which seems to help some days do you use it? Also I have a coupon for a free acuppuncture session not sure one session can help it hasn’t in the past but just wondered what you thought or do??

        Reply
        1. Angels123

          BatyaSarah,
          You are welcome to call me anytime..email Linda directly and she can get you my contact info. I have a healthcare degree so a lot of what I take are based on my training but it is about finding what works for you. I would first want to know more about your symptoms but the first thing I would do is start on some omega 3 fatty acids….fish oil..hemp seeds or powder is good because of high protein and high omega 3 and 6. Also I cook everything with coconut oil. This one sounds weird but has made an enormous difference in the quality of my pain and it is easy to do. Just switch out your butter or other oils for coconut oil when you cook. Turmeric is an awesome antiiinflammatory herb that will make a huge difference as well. I would find a practitioner of some kind who will check your insulin levels…this can be done as a free insulin level no fasting or done as an HgA1C test. Insulin is one of the most pro inflammatory hormones in the body and if it is off..your inflammation will be too. And lastly for now… Is have your vitamin D level checked…it should b at least 50 and if it isn’t you need to b on high doses until it is and then it can be tapered down to a couple thousand IUs a day. This vitamin is being shown to b a big player in chronic pain, cancer, heart disease, diabetes…yada yada. Most practitioners will think 30 is adequate. It isn’t especially for those of us in pain. I hope that helps some and there is many more things that can be done…just let me know if you need more ideas.

          Reply
          1. BatyaSarah

            Angels123
            I think Linda is not able to connect us but maybe Lisa Pashnee?? I do notice magnesiuum and d supplements help I also had a mild heart attack six months after my mesh implant. I thought it was because I wasn’t on metformin and have type two diabetes. Now I think the mesh could have added to it esp. as it was eroding through my vaginal wall. So I spoke directly to Dr. Eselstyn who told me to stay away from most fats even olive oil so i don’t cook with it but he does say yes to a small amount of hemp seeds or flax but not daily. I have not been great at sticking to the diet but I use very little oil and never stir fry food any more.

          2. Angels123

            I think you should get another opinion about your chemistry…most MDs are not that great at understanding how nutrition really affects your health. If you have type two diabetes then it is probably sugar that is your problem with your lipid profile not fats. If you were my patient then I would recommend oils especially those from plant sources. Your body needs those to help with your problems with the diabetes and cardiac profile as well as your pain. Those with abnormal fatty acid profiles are in chronic pain. It is just the way it is but most docs don’t get it..do your own due diligence and educate yourself because you are your own best doctor in the end.

        2. DebCNY

          Hi – Linda has been out of town, but I think this post is where Linda talks about the supplements she uses. http://teapapers.com/bladdersling/2012/09/mesh-my-wellness-plan/

          Reply
  38. lavalinda

    You can prebook a shuttle and save money. http://teapapers.com/bladdersling/2012/11/mesh-removal-no-money If you ask for wheelchair service it will help you immensely so that you don’t have to stand in line and they will take you to the shuttle. You do not have to worry where you are going. You can read every cost here. http://teapapers.com/bladdersling/2012/06/mesh-dr-raz-u-c-l-a

    Reply
  39. lavalinda

    Batya Sarah We have all been there without being able to sleep because of pain. 8 weeks after it was removed I noticed one morning that I could finally turn onto my right side and I had slept all night. Yes, it is possible but remember it will be 3 months after removal before you begin to feel better. In the meantime begin a good regime of suppliments or you will have a harder time coming back. http://teapapers.com/bladdersling/2013/02/running-a-mesh-marathon Yes there are women who do get on with their lives, have sex again and live. You will have a year of healing and at first you will feel elated and then down. Don’t worry it is normal. http://teapapers.com/bladdersling/2012/12/mesh-removal-blues Just go with the flow and understand that this is a HUGE surgery and recovery. Make your friends and relatives understand this because many don’t. Print out the mesh removal blog and hand it to anyone who doesn’t get it. Make sure they do and if they don’t, move on without them. You deserve better.

    Reply
  40. Julie

    I had my surgery 2 years ago and haven’t felt well since. After surgery I wasn’t able to urinate for 6 weeks. I had a cath. Since I became anemic for a year and now have stage 3 chronic kidney disease. I am not diabetic or have high blood pressure. Has anyone else developed kidney problems after have the sling surgery? Also I have been on Toviaz becauae I still leak urine. My urologist just keeps telling me my bladder is mad.

    Reply
    1. lavalinda

      Julie I could go for 9 weeks after my original surgery and then waited 2 years 7 months to have it removed. YES they have developed kidney problems And you need to get it removed soon before you have fuill kidney disease. One woman I know is the same and she is having removal at UCLA next month. Other women have become seriously ill because of the same thing and if you get it removed before too much damage, it is reversible. Please take action soon.

      Reply
  41. Gina

    I had transvaginal mesh surgery Nov. 23, 2011. Ran a half marathon April 14, 2012 and had serious bloody diarrhea after the race which sent me to urgent care. I had a colonoscopy May 2, 2012 and all was clear except some inflammation near the rectum. Since my surgery I have experienced bloody discharge rectally after a lot of my runs. Finally I saw a sports medicine doctor and will now see another GI specialist but they believe this is all due to my transvaginal mesh surgery. This all makes sense to me now and I’m so scared! I’m 45 yrs old and I want to live life and not have serious complications of mesh removal. Do you know a specialist near the Greensboro, NC area? I’m so overwhelmed and so scared. Is there anyone on this site that has experienced rectal complications and were they repaired back to normal?? Gosh am I scared.

    Reply
    1. lavalinda

      Gina, I have to repeat again there are many surgeons everywhere but most cannot remove all the mesh and arms/anchors except those I have given here on this blog. I know this may seem impossible, but it is the truth and my aim with this blog is to make sure women are not further injured by going to doctors who cannot.

      Reply
      1. Angels123

        Gina…oh yes yes yes..rectal problems and bad! I was told I just had irritable bowel syndrome by the docs who put my slings in and in actuality when Dr Raz took my mesh out it had been placed incorrectly and was encased around my rectum…we are hoping that 3 years of the mesh encasing it hasn’t killed the nerves in the area and I go back for my 3 month visit next month to see how it it going. What I will tell you is I would b more scared to leave the mesh in you! It is likely you will have serious damage if you leave it. The only place to do it is UCLA and worth every penny…just get there and Dr Raz can tell you what is happening and fix it. I’m 43 and finally feel like there is a possibility of getting a life back where I didn’t before the mesh removal. Just get it out!

        Reply
  42. lyndi

    I have had consultations with two urologists, in addition to the one who did my original mesh surgery. I have been diagnosed with chronic fatigue, fibromyalgia, back problems, etc., and told that in no way were the symptoms I have been experiencing (excrutiating leg and groin pain) related to the mesh surgery that I had three years ago. I was even yelled at by one physician and told that if he performed surgery, I would be incontinent and that I had to agree with him that my leg pain was unrelated to the pelvic mesh. Another told me that he would NEVER perform surgery and wanted me to undergo pelvic floor therapy, that all my symptoms were related to my weak pelvic floor.
    I followed the advise on your blog, made the appointment with Dr. Rodriguez, made arrangements for wheelchair accommodations at the airport and took a $50 taxi ride to UCLA. They were son wonderful there. I hand carried my records (THANKS FOR THAT ADVICE). I was on crutches, so the very nice man at the reception desk walked the papers to me that I needed to fill out.
    Once I was in the exam room, I was treated with such respect. They did a brief vaginal exam and spent another 25 to 30 minutes perusing my medical records. Then Dr. Rodriguez came in and gave me her recommendation for mesh removal.
    My original surgery was three years ago and everytime I’ve gone to a doctor about the issues I’m experiencing my complaints are dismissed, it’s not their area, or they simply don’t know what to do for me. I was relieved to hear that, yes, nerve pain is an all too common side effect and that they see it all the time.
    Although Dr. Rodriguez cannot guarantee the outcome of the surgery, I truly believe that my condition can only improve. I have faith that things will get better for me.
    I cannot stress enough to plan ahead for wheelchair access. I flew Southwest and they were wonderful. They clear you through security and will even pat you down in the wheel chair if you cannot stand up. I brought my crutches, but only had to use them to get from the entrance to the plane to the first row of seats in the cabin. Everyone was so accommodating. They even let my son, who wasn’t scheduled to fly with me, accompany me to the waiting area for my flight.
    Thanks again for writing this blog. It’s is such a huge relief to know I’m not crazy. I had surgery and it damaged my body.

    Lyndi.

    Reply
    1. lavalinda

      Lyndi, This is so common and so very sad. It is a conspiracy to deny that this is happening to women and yet it is happening to thousands and perhaps the toll is truly uncounted. Please report yours to the FDA. All the women I have spoken to believe that they are well versed in what to tell women including never admit it is the mesh. It happens to all of us and we have lost faith in the medical profession because of it. Thank you, I am very glad you had a good experience at UCLA and your words here will give women the courage to go out there. It is the difference between night and day when you go to these doctors. Give yourself a lot of time to get well and never give up hope. Yes I too was nerved damaged because of the mesh and I still am. BUT I can now sllep since it was removed. I do not take any pain meds. I have learned to adjust my life to fit my condition and live every day with enjoyment. You will too.

      Reply
  43. Tracey Neubaum

    HeTHe ultrasouI need a doctor to do a total bladder sling removal and I live in Valparaiso IN. I going to write down the information of the ultrasound that needs to be ran in order to detect what they exact nature of the problem is.I am in so much pain, wish that Ihad never had this done, and wanting this out of me. I had a egular ultrasound of there bladder and reproductive organs a couple of days ago.Here, I was informed that this test cannot detect the mess.Well then, why is this the test that I was scheduled for? Thus is crazy! I just don’t want to feel this way anymore.
    So tired of having so much pain from something that was supposed to be this wonderful solution. It did what it’s was meant to do for about a year, then it was right back to the incontinence problems I went to fix.

    Reply
    1. DebCNY

      HI Tracy,
      Unfortunately, it is not easy to find docs to do full removals. That is why so many women travel to UCLA, myself included (and I live in NY). The test you are talking about, I think, is the Translabial Ultrasound. This is common practice in UCLA, but it seems most other docs don’t know about it. You can find information on it here: http://teapapers.com/bladdersling/2012/09/mesh-removal-the-translabial-ultrasound/

      Your story is all too common, I’m afraid. I believe this post might help you with info on UCLA and why people go there…
      http://teapapers.com/bladdersling/2012/08/so-much-hope-for-mesh-removal-surgery/

      Deb

      Reply
  44. Stacie Gates

    Have had nothing but trouble since my mesh surgery November 15, 2011. Pain, and burning in my left groin and down left leg. Severe pain in my left abdominal quadrant. Always feel bloated there too. Ultrasound and CT scans were normal. I need a doctor to help me in OKLAHOMA. PLEASE!

    Reply
  45. Judy

    I had a bladder sling put in June 2012 along with a total hysterectomy. I am now having low back, leg and groin pain along with UTI’s. I had some bleeding the other day after my yoga class. As many women have stated having sex has been non existent since my surgery. It just hurts too much.
    I live in SC and was wondering if you have a recommendation for a doctor on the east coast. Going to UCLA is not out of the question but I was wondering if you could email me with any doctors names that you would recommend.

    Reply
    1. Kuntry Girl

      I to live in SC! My OB/GYN told me he was building a hammock around my bladder when he done my hysterectomy in 2009. He never told me any side effects, or offered any other alternatives let alone that it was a medical device or even mesh!!!. I was only 28 years old when this happened!! I finally got my records from the hospital and found out I had a Mini Arc! I have since had what I thought was going to be a mesh removal surgery but the surgeon was only able to remove about 2cm of mesh!! That’s it! So now I am worried as to where did the rest of it go?

      Reply
      1. lavalinda

        Kuntry Girl. Read this post and get the help you need http://teapapers.com/bladdersling/2013/12/meet-dr-veronikis-a-great-surgeon/

        Reply
  46. Angels123

    This reply is for Judy and Stacie…
    There is really very few docs who will even attempt a complete removal. If you are able to find one who says they will remove it most likely they plan to leave at least the arms of the mesh in if not more. I had a doc tell me he would take my first mesh kit out because it was eroding and put a “better” one in. This was before I knew better and I let him. What he actually did was spend 10 minutes dissecting out a 1 cm sq inch piece so he could call it an excision…and yes they can do that..and put a new kit on top of the old one. Once you are under anesthesia your life is in the hands of the surgeon and they get to make decisions for your well being while you are asleep. These decisions affect the rest of your life and if you have chosen a doc who really doesn’t care then your results could be worse than what you already have. Read the blog on why to go to UCLA…it gives you the information you need to understand why that is the only place that removal can be done safely and judiciously. Even an attorney dealing with these cases told me that if she were in our situation she would have Dr. Raz remove it as well. That he had the best outcomes of the clients she worked with. Understand what you set yourself up for when you try to find an alternative to the best in these situations. None of us want to be worse but that is exactly what can happen if you aren’t careful. Good luck to both of you!

    Reply
    1. lavalinda

      Thanks Angels. Yes we are alive and doing so much better because of the decision we made and the struggle both financially and emotionally that we have to do in order to move forward. It seems crazy and it seems really hard but the alternative is so muh worse.

      Reply
      1. Angels123

        Yes we are Linda! There was only one way back and I’m so grateful I trusted your recommendation and went to UCLA. What is truly crazy is that doctors know what they are doing yet continue to do it anyways…it is so disheartening. To me getting my life back was worth any debt I had to incur..any price I had to pay because there were no other options and life before removal was not livable. We both have the hope of living a life again. It is an experience feeling like I’ve been given a second chance of life. Now to finish healing and get on with what we are here to accomplish! Love to you Linda..hope all is healing well.

        Reply
        1. lavalinda

          Angels we are the luckiest women on earth because we could go to Dr. Raz. I never stop counting my blessings.

          Reply
          1. Angels123

            Amen!

  47. Betsy Lindberg

    Do you know of a doctor in Washington state who can remove slings?
    I have been in agony for four months and cannot imagine living (or trying to exist) for years like this.

    Reply
    1. lavalinda

      I am sorry Betty, no. The only doctors who can save you are those in this blog. I know this sounds crazy but it is the truth. A truth learned after three years of listening to women who have gone to many doctors. http://teapapers.com/bladdersling/2013/02/mesh-is-a-journey/

      Reply
  48. Betsy Lindberg

    THank you for your reply. I have read so much of your website, researched UCLA and am calling tomorrow morning to set up and appointment for a consult.
    I do have another question. If it should take months to arrange a consult and then a surgery with Dr. Raz, would you and the many other women who have been through this feel comfortable seeing either of the other two doctors at USLA mentioned in your website?

    Thank you so much for your help and the support on this site. Both my husband and I are so grateful for it.

    Betsy

    Reply
    1. lavalinda

      Yes I would. I know MANY women who have now had removal by both women doctors.

      Reply
  49. connie gayer

    I had my sling put in, in 2006 and i am starting to realize that some of my problems i have been having are possibly caused by the mesh. 1yr. after i had this surgery i started hurting in my right side. I went back to my Dr. and asked her about this and she said it had nothing to do with the sling. Then i started having some pain in the rectum and pelvic area, and started bloating and had an extreme amount of gas. I went to a urologist and asked him about this problem and he said i had some erosion and would have to be given hormones for the rest of my life. I asked him if he could remove the sling. He said no, that if i didn’t stay on the hormones he would have to do partial surgeries and this would be painful. So i started taking those and they did help for a while, but now i am starting to cramp pretty constant. I went back to the urologist and he said that he could remove it, (which was a red flag to me that he didn’t know what he was talking about). He said that i had the less invasive one and that i should put up with the pain. I told him i was looking into a Doctor that could remove it all , and he seemed to have gotten a little agitated at me. So ladies do your own research and go with your gut. I am going to see Dr. Raz in july of this year for a consultation. Do these sound like symptoms are related to the sling?

    Reply
    1. lavalinda

      Connie what you are experiencing is very common. I would not be surprised if mesh may be eroding into your colon. I am so glad you are going to go to Dr. Raz. Poor man will never retire.

      Reply
      1. Angels1234

        Yes…I find it very telling that a man who should be on the golf course enjoying retirement is choosing to do a job that no one else wants to do. That is the kind of wonderful man he is…playing cleanup after other doctors when he should be playing golf. There’s a spot in heaven reserved for him already I am sure!

        Reply
  50. Rolonda

    I had the bladder sling done about 3 years ago. Not to sure about that because I had like 4 surgeries in about a year and a half. I was just wondering a few things. I have noticed lately( well for the last 2 years) that it hurts to have sex. It feels like my husband’s penis has sandpaper on it. I know it is not him. Also my vagina hurts where the mesh was put in. Is this normal? Will it ever go back to the way it should be?

    Reply
    1. lavalinda

      You have erosion Rolonda, and this is common with mesh. It will never get better, only worse. It would be best to go to a competent doctor at the link I provided. Do something before you are taking extreme pain meds.

      Reply
  51. Rolonda

    I went to the doctor that put it in and she said that everything was fine.

    Reply
  52. Chelsea

    Hi, I had the mesh put in when I was 36 years old, it worked fine for about a year and then the problems arose. I have 4 children aging in range from 3-16. I am in complete misery. I don’t feel the same anymore, this has become a huge issue in my marriage and also my relationship with my children. I do feel a hermit, I have absolutely zero ambition or zest for life. I am scheduled to have partial removal on May 24 and am now reading this information and am canceling my surgery. My question to you is this. It is easier and quicker to get in with Dr. Kim or Dr. Rodriguez, should I just schedule with them or wait to get in with Dr. Raz? I have already met my out of pocket for the year Nd would prefer to have the surgery done in this year,if possible. Unfortunately the soonest consultation is in August with Dr. Raz and his surgeries are scheduled for 6 months out. What is your opinion? Thanks Chlsea

    Reply
    1. lavalinda

      Chelsea because you are so young I am going to send you a private email which will include a nurse who can answer your medical questions.

      Reply
  53. dj.newbie

    I am suffering something awful. I don’t function at all anymore; I believe it has to do with two transvaginal mesh implants. Do you know a good doctor in the eastern TN area that can help me and possible see about removal.

    Reply
    1. lavalinda

      DJ we wish we did. Unfortunately we don’t. We have done plenty of listening to others and those in your State are like the rest of us. They make a trail to UCLA.

      Reply
  54. dorothy

    I am having significant back pain and well as groin pain. Also difficulty urinating especially in the AM.
    Had the mesh sling inserted in early February but operative report does not state which sling was used.
    I am 74 and in very good health otherwise and wonder if the pain could be connected to rejection of the sling.

    Reply
    1. lavalinda

      Dorothy, you have all the classic signs of complications. This will give you another place you can look to find your sling information.

      Reply
    2. lavalinda

      Dorothy, mine was not on the operative report and I wrote this blog to explain where it was. http://teapapers.com/bladdersling/2011/01/report-to-the-fda You have all the classic symptoms of mesh complications.

      Reply
  55. Sandy Mangen

    Am looking for an experienced dr. in Ohio to remove a piece of mesh that has poked its way into my bladder. A calcium deposit has formed on it and was removed by a urologist in Jan, 2012. He pushed the mesh out of the bladder in hopes the bladder would heal over it. Found out in May 2013, that the mesh was back inside.

    Thanks.

    Reply
  56. Kebab

    I had lots of problems when I saw my doctor. I underwent a hysterectomy in 2007 to correct pelvic organ prolapse and stress urinary incontinence. I had propylene mesh implants to hold up my vaginal wall, rectal area, and a bladder sling. I have had several troubling things happening in the past year that are beginning to make me wonder if there is a problem with the mesh. I have developed Interstitial cystitis and rheumatoid arthritis. I often feel tired and have developed frequent upper respiratory ailments with laryngitis. I have also developed asthma. I am always constipated and sometimes my legs begin to feel weak as if they are about to give out. I get nerve pain that comes and goes. Sex has begun to be uncomfortable and I have less desire for it. I have bouts when I feel like I am going to lose all control and urinate all over myself, this comes and goes at the most inconvenient times. I get bloated and have gas constantly. I don’t have any pelvic pain other than the discomfort that has started during sex. I have had several bouts with a fishy odor. I went to my gynaecologist who told me that I had a bacterial infection. When I asked her about the mesh, she did a physical exam and told me that the mesh was fine. I am just wondering if any of these things could be attributed to the mesh this long after my surgery. Could my systemic problems be just the beginning of more problems? Where would I go in Florida to find out? I live near Tampa.

    Reply
  57. Kebab

    I had all the cyles. Have loads of mesh inside. Avaulta. Have a bladder sling. I had a hysterectomy in 2007. Recently developed: rheumatoid arthritis, interstytial cystitis, IBS. I get bloated, constipated, and have gas constantly. I get recurrent upper respiratory infections and laryngitis. I have also been diagnosed with asthma. I have times when I feel like my legs are going to collapse underneath me for no reason. I also have flairs when I feel I am going to lose all control over my bladder with no warning. Sex has become uncomfortable. I have not felt real healthy for several months now. I am beginning to wonder if all these frequent illnesses may have one common denominator. My GYN. did a vaginal exam and said that nothing was wrong with the mesh. I guess I just want to be sure. Is there anyone you recommend near Tampa?

    Reply
  58. Kebab

    I had all the cyles. Have loads of mesh inside. Avaulta. Have a bladder sling. I had a hysterectomy in 2007. Recently developed rheumatoid arthritis, interstytial cystitis, IBS. I get bloated, constipated, and have gas constantly. I get recurrent upper respiratory infections and laryngitis. I have also been diagnosed with asthma. I have times when I feel like my legs are going to collapse underneath me for no reason. I also have flairs when I feel I am going to lose all control over my bladder with no warning. Sex has become uncomfortable. I have not felt real healthy for several months now. I am beginning to wonder if all these frequent illnesses may have one common denominator. My GYN. did a vaginal exam and said that nothing was wrong with the mesh. I guess I just want to be sure. Is there anyone you recommend near Tampa?

    Reply
  59. Lisa Duncan

    I have every complication for the Bladder mesh implant as well as 2 pelvic implants……

    I am so sick I just want to die………I can’t eat or poo, or anything normal that any human being would enjoy doing……..I can’t lie down for too long or stand for too long, or sit for too long……..
    Truthfully, most times I just pray to GOD to take me….And then I think I am going straight to HELL, because I a vision of Jesus dying on the cross…
    Every day my Dr calls with a new name of an illness… Addison’s Disease etc.
    Please someone give me the name of a Dr. that will help me……I am so DEPRESSED and SAD……….SOMEONE PLEASE HELP ME……..

    No Doctor will help me as I have………….. NO INSURANCE……………..

    Reply
  60. Michele

    In 2006 I had a total hysterectomy and a TVT bladder sling inserted during the same surgery. I had stress incontinence and had been told by 2 different urologists that the bladder sling was the best remedy (I had already tried pelvic floor therapy, which did not work). The sling initially worked and I was leak free. However, my Interstitial cystitis, which I had already been diagnosed with about 10 years earlier, became very painful and made it impossible for me to function. The urologist treated me with the usual IC treatment, DMSO placed into the bladder weekly for several weeks. Another very uncomfortable procedure.

    My IC eventually went into a remission but I began to “leak” again. It wasn’t stress incontinence or urge incontinence (which my doctor kept insisting I had). I was treated with medications, none worked. I had several cystoscopys and other bladder tests, all of which revealed nothing. I always had blood in my urine which again none of my doctors could find a reason for. At one point I was bleeding vaginally but since I had a total hysterectomy I had to have ultra sounds and a biopsy to determine the cause. Again no cause. I began to have leg and groin pain, but since I also had fibromyalgia, the pain was attributed to the fibro. I never even considered that my pain could be caused by the mesh and my doctor certainly never suggested any connections.

    It wasn’t until about a 1-2 years ago when a family member told me that they had heard about complications from mesh. When I went to my urologist to discuss my concerns, he dismissed them and insisted that my mesh was not among the ones that had been recalled. When I pressed further, he became annoyed and guarded, telling me that he had placed many mesh slings over the years and there had been no other complications or complaints from his female patients. I had specifically started seeing this doctor because he was an expert in IC treatment. I had always liked him until that day when he dismissed me and made me feel like I was crazy. He told me to go to a gynecologist for the pain I had during intercourse, which again he insisted was not from the mesh.

    I found a uro/gynecologist who started treating me with vaginal hormone cream, and pelvic floor therapy, neither of which helped the pain during intercourse. The doctor tried to tell me that he didn’t think it was the mesh causing the problem even though he could not tell me why I was having the pain. I told him I know my body and know that the pain I feel was coming from the area where my mesh was located. My leg and groin pain was getting worse which he also said was not related to the mesh. When I asked him about removing the mesh, he said he could only remove part of the mesh, the part in the vagina. He could not remove the mesh in my groin area. I never knew or was told that the mesh had been anchored in my pelvis. He also told me that I could have more complications as a result of trying to remove the mesh. I felt like he was trying to dissuade me from having the surgery by telling me all the things that could go wrong during the removal.

    Also during this past winter, I became very ill and had many tests and blood work and several doctors trying to find out what was going on. I was eventually diagnosed with an auto immune disease, Sarcoidosis. I definitely believe that this was a direct result of years of inflammation and/or infection caused by the mesh being rejected by my body. I have found some info on the web connecting mesh implants with auto immune disease, but of course every doctor I asked insisted there was no connection.

    I decided I was not going to return to my uro/gynecologist for the surgery and started my quest to find a doctor who was experienced enough to remove all of the mesh with minimal complications. During my web search, I found your blog which has definitely helped me realize that I am not crazy or a hypochondriac. Thank you for that. I had heard about Dr. Raz during my research. But I also found 2 other surgeons who are supposed to be experts in mesh removal who have offices in Atlanta and Los Angeles. I have contacted them and they have received all of my records from my past doctors and the hospital. The doctor reviewed my file and recommended that I have the mesh removed, all of it including in my groin. The cost is expensive since they are not in network and they want to be paid before the surgery. The one thing I did like was that when I go down to Atlanta for the exam and consultation, they can schedule the surgery for the next day. I was wondering if you have heard about these doctors. I have read reviews from many patients who were all happy with their entire experience. I’m not sure how I’m going to pay but I don’t think I have a choice anymore.

    Reply
    1. lavalinda

      Michele I will make contact with you.

      Reply
  61. Juanita

    I would love to talk to you about my issues. I could really use the advise. I hope I hear back from you.

    Reply
    1. lavalinda

      I am sending you an email now.

      Reply
  62. Juanita

    I am 32 yro. I am miserable and lost truthfully. I don’t know what to do or where to go yo get answers. I am thanking God that I found this blog. But I’m still lost. I sound as pathetic as I feel I’m sure. But this is just horrible. Im to young to be having so many problems and so much pain.

    Reply
  63. Donna Pomeroy

    I had a mesh implant during the late 90’s. I have such awful leg and groin pain and have been wondering what happen to the mesh because I know it is no longer supporting my bladder. Do you know of a dr. in Michigan or Wisconsin?

    Reply
    1. lavalinda

      Donna, I wish I could tell you there was a doctor who could remove it safely in your area, but I can’t. Please give yourself the best gift. Make plans to go to UCLA. You deserve it.

      Reply
  64. Mary Beth Flynn

    Wow, I am so saddened by all of this. I had a Mersilene mesh sling put in in 1998 which was a mesh designed for hernias but many docs also used the Mersilene mesh for bladder sling surgery. In the end of 2008, I started to have some problems and entered the hospital in Jan 2009 for a biopsy and was told I had a abscess mass that was too involved to be surgically removed so I was put on a PICC line and did IV meds for quite some time. I was out of work for 4 months and the mass was reduced and no longer an issue. In Aug of 2009 was the first time I had a UTI and continue to have them which is not a party. Anyhow, then in Oct 2010, I re-entered the hospital to have kidney stones removed and developed another type of infection which once again I needed a PICC line and was out of work for little over 2 months. In early 2013, I started to have some bleeding and at 55 years of age was surprised as I haven’t had a period in over 5 years. I also had some lower back pain and thought that I might have a kidney infection or kidney stones again. Lo and behold, after seeing my urologist, I went to see my gynecologist who did a pelvic and she could immediately see that the mesh was eroding. Headed back to see the urologist and he said he would need to remove only the eroded part of the mesh. I proceeded to let him know I was going to weigh my options and had an upcoming appointment with a urogynecologist. I reside in Rhode Island and recently had an appointment with a urogyne, a Dr Cassanra Carberry and she said the entire mesh needed to be removed. I did let her know she was not my first choice of docs but my first choices were unable to see me until the end of November. I wanted to see either Dr Charles Rardin or Dr Deborah Myers. Dr Carberry said that actually she is going to involve both of them. Dr Carberry is sending me for one more test which is on July 12, 2013…a Cysostomy. After that is done, they will schedule surgery. I am not sure of where you have posted a list of docs that do the removal but I am curious if any of these names are part of that list. I appreciate anything you can offer to me on this. Thank you, May Beth

    Reply
    1. lavalinda

      Mary Beth, we once had a list and after we heard back from women who went to these doctors we revised it. Now there is no list because of so many who cannot remove the anchors or long term mesh. First if you go to any doctor this is what you need to ask. http://teapapers.com/bladdersling/2012/02/questions-to-ask-before-mesh-removal Second, be kind to yourself and go to the one man in the world who can remove long term mesh. He is worth the effort of the wait and all the travel expenses.

      Reply
    2. lavalinda

      Mary Beth we no longer have a list due to women who went to the doctors we had on the list and they did not fare well. Be kind to yourself. Don’t go anywhere else but here. http://teapapers.com/bladdersling/2012/08/so-much-hope-for-mesh-removal-surgery

      Reply
  65. lavalinda

    Mary Beth I just wrote this blog this morning. I am witness to huge transformations of women who come her to UCLA. http://teapapers.com/bladdersling/2013/07/my-fascia-sling-surgery-part-twenty/

    Reply
  66. Jennifer

    I am not sure if its the mesh I am having issues with but I have many Bacterial infections, they are UTI’s and Vaginal. I am always sick with one they are nonstop now I am on permeant antibodies for it. I can’t have a cycle or sex not that I ever want to anyway and I am only dating here in there you would think a woman age 32 would have a drive but no I don’t and if I ever do I never can get anything out of it nor does it feel right sometimes is painful. My cycles are horrible I feel like a knife is stabbing me and its worse when I have to go #2. I started peeing blood back in March and became very sick with flu like. I had my mesh done Oct 2006. I have had pains but I thought it was due to after child birth with my daughter. I have many health issues now and sick of being sick the VA isn’t in any rush they just treat the issue as they come up, I am actually in the ER once a month. I have no energy and the think its an issue with my blood since the birth of my daughter I have had anemia. Anyone have any information to get the doctors to run whatever test to rule this out? I am desperate…

    Reply
    1. lavalinda

      Jennifer, what you are describing could be the beginning of kidney disease. Please ask for a urine culture test done. I don’t know where you live or if you have insurance, but getting the mesh out of you is imperative. I will ask a friend if she will call you because she worked in the medical field before mesh injured her. You are far too young to lose your life over this.

      Reply
  67. Tabitha Cross

    Hi I live in Terre Du Lac Missouri. And I am extremly scared literally believe I’m dying slowly. Had bladder sling back in 2004 I didn’t go in surgery for it nor was I aware of this imperticler presur being done, was just going in to have my ovari scraped an was not told till my six week check up. I have been having side affects years ago didn’t think much of them but I bleed nearly 20 days out of 30, I pee blood, I poop blood, I’m getting where I can’t hold my bowels my veins in my left leg swolls tremendously at times my foot turns black which I’ve suffered bloodclots in I have a knot in my belly that gets the size of a baseball an surfer sever headaches now starting to notice blood in my nose an throat yes it sounds totally unbelievable but very true have no insurance no help an I’m a mom of two boys 13 an 17 and I’m only 34yrs old someone please please call me if can help me save my life don’t have acsess to internet — ——- PLEASE HELP

    Reply
  68. zoey thompson

    Hello. I am sitting here waiting for a call to get me in to see my surgeon as yesterday I visited my local Dr who was present during my surgery July 22 . And they mentioned my body might be rejecting the sling and other things put in to hold my vagina in place. I am experiencing severe pain and can feel a tube inside my inner thigh at incision site that was not there before. It is very painful. I am running a fever again.. Did have uti infection as well as catheter as I was unable to urinate at first. I am still unable to completely empty my bladder. I am very afraid especially after reading this site. Would appreciate any help or advice you can offer.

    Reply
    1. lavalinda

      Zoey I have been in touch with you and hope you made an appointment at UCLA.

      Reply
  69. Sandy

    HI there, I am in Canada and had surgery 3 years ago. I have problems with painful intercourse and it also appears to have brought on uti intections and painful bowel movements. I cannot use tampons any longer and have vaginal pain randomly.
    I am 48 years old and this has had a significant impact on my self confidence as well as my daily life. My husband has been very understanding of the situation, although I often wonder how long men can handle knowing that this could be a life long thing.
    Any information you can send me or share with me would be greatly appreciated, this has resulted in depression and I have set up an appointment to discuss having it removed. I am concerned that it may not be able to be removed as I seem to recall the doctor stating that the mesh grown into the body. ( should have scared me off then, but was so anxious to not leak on a regular basis, that I was desperate for relief)
    Thanks in advance for any help, I really appreciate it!

    Reply
    1. lavalinda

      Sandy I will put you in touch with another Canadian woman you can talk to.

      Reply
  70. Bobbie

    I am a 66 year old Canadian competitive pro-am ballroom dancer who had TVT-S surgery 3 years ago. Have had erosion with revision surgery and subsequent erosion and increasing right groin pain. A third surgery to “remove” the mesh was performed and when asked if he got “all” the mesh the surgeon answered , “no”. Since that i complained of increasing pain, and further erosion that I could feel but surgeon said it was scar tissue.
    3 months ago I had a Burch Procedure and Posterior Repair that has been apparently successful. The surgeon stated he found more mesh and removed it from left side (it is the right side where more and more debilitating pain is felt).
    I have had to stop dancing due to the severe and still increasing pain in groin, and now down my leg.
    Am booked for Translabial Ultrasound and MRI soon and hope to follow-up with total removal.
    I would appreciate if you would send any information for surgical resources in Ontario, Canada. I will go farther afield to see an experienced surgeon but will need names and contact information.
    I can’t imagine having to give up my dancing forever and am keeping positive in hopes of regaining pain-free movement!! Thank you for any help.

    Reply
    1. lavalinda

      Bobbie I am going to put you in touch with a fellow Canadian. Some Canadians are getting their government to pay for them to go to UCLA.

      Reply
      1. Bobbie

        Thank you so much! I appreciate your help more than you know.

        Reply
  71. Laurie

    Hi There,
    I am in Illinois and am a “regular” at Mayo- I have been diagnosed with a “rare” autoimmune disease ( it affects my pain and my brain) I am researching the possible TVM connection. I had a TAH, a vaginal vault lift, a rectocele repair, and a bladder sling put in Oct 2011. do you know of any Dr.’s in IL or at Mayo Clinic (MN) that specialize in rectifying this problem? I am at a loss– my whole life has been turned upside down and I take major pain meds every day just to get through …..I had never even thought it could be from the mesh… this is terrifying!

    Reply
    1. lavalinda

      Laurie I am going to send you a personal reply that may help you.

      Reply
  72. Wendy

    Hi I will try to keep this short, I had surgery in 2008 in Winnipeg mb. I had a prolapsed vaginal wall, the Dr told me that I needed surgery and there was this amazing new mesh. He did not talk about and other recommendations, just straight to the mesh. I felt okay and felt lucky that there was this new product. Within 6months the mesh had eroded through the vaginal wall and had surgery to repair it. Within 2 months the vaginal wall prolapsed, after talking to my surgeon he advised me to wait as long as I could before having another surgery. I also was unable to have intercourse. So I had to live with the pain and slowly I was unable to do things without extrem pain. I moved to Alberta and was experiencing nerve pain in my right leg and the mesh had shrunk and it’s hard to explain how it feels but I feel like I have a prickly tampon in that makes it uncomfortable to sit for long periods, going to a theatre is too long and walking I have this heavy pain in my groin and feel pain in my right leg and find that I can hardly lift my leg to take another step. So I get a family Dr in AB and I asked to be referred to a specialist to help me, the Dr told me that I’m going to have a hard time finding one that will see me because of this mesh. One and a half years later, I found a name of a dr in Calgary where I live and had them send a referral. I got in within 2months but I feel that he really doesn’t want to do the removal. He said that he will not be able to take the arms out. He has me now waiting for 2 months to see his associate. I do not feel comfortable with him already saying that he will not be able to remove it all. I haven’t been working for 6 months because of other symptoms. Chest pains, which was ruled out with testing, I have a thyroid problem, it had being going up and down, high as 18 and as low as 2. My blood pressure is so low that I feel faint when walking or when I’m hot. I have cold and hot sweats which are not like my hot flashes. When doing activities I sweat and have no energy. Just having a shower plays me out and I have to rest before I came finish doing my hair. My vision is blurry whe walking around, my eyes were checked nothing wrong there. I am so depressed that I have a hard time getting out of bed and just want to give up. I have had enough and I do not know what to do. I’m single and worry about finances and cry all the time. The Dr increased my antidepressants 2 or 3 times and now I feel numb inside no motivation no will to live. I am seeing someone for that, but I know that my depression is situational. I am tired all the time. I would like you to email me and I would like to know if you have heard of the Doctor. I want to just have the surgery and get on. Helpless

    Reply
    1. lavalinda

      Wendy Many Canadian women are travelling to see this doctor http://teapapers.com/bladdersling/2013/12/meet-dr-veronikis-a-great-surgeon

      Reply
  73. lizzy

    I was implanted with vaginal mesh and a bladder sling.i was supposed to get the traditional for prolapse. I woke up in extreme pain.i have suffered for going on 5 yrs.the doctor refused to take it out even when the mesh stuck to the bladder.she just reached in and pulled it off. I thought I was going to die.she told me to handle my pain issues.that she will never remove it.i turned her in nothing.now shes running a clinic here in my area stating she helps people with this.she ruined my life.i had a partial was told all removed.found out didnt even take 2 inches out and thats it.i started having pain then couldnt walk without assistance. Now I am in a wheelchair.no doctor here will help me.my gyno dropped me because of it.i hurt all the time.depression .no sex life.infections.several doctors told me deal with the pain .it cant be removed.other wanted me treated for depression and why I am so upset over this.i know my body this stuff is causing me damage but my pleas go on deaf ears.i cant be there as a wife a mother a grandmother.somedays I think of ending it all.no one here cares.theres one in california but I cant afford that.it takes 3 trips.i wont put that financial burden on my family.we have enough right now.insurance is fighting us right and left.sometimes I just wonder if its worth it.i am a donor.i would help so many than drain my family anymore.both of these doctors didnt know what they were doing.but the first one knew she wasnt supposed to put that in me.i told her that.she did it anyway and has no regrets she destroyed me.no help here for me.i pray others do find it.God be with you all.

    Reply
    1. lavalinda

      Lizzy there is always hope. I will email you.

      Reply
  74. Hilda Morris

    I have a mesh that is exposed and all bunched up the doctor said.. I am looking for a doctor to remove it in Macon Ga. Can’t drive no where else.. Please help .!

    Reply
    1. lavalinda

      Hilda, I wish I could give you someone close to home because I understand what you are going through, but please read this blog to understand why choice of surgeon is the best thing you can possibly do to help yourself. Beg someone to take you. He is not too far away from you. http://teapapers.com/bladdersling/2013/12/meet-dr-veronikis-a-great-surgeon/

      Reply
  75. Lori

    I am both concerned and embarrassed. I had a total hysterectomy done December 2012 with a mesh sling “installed” because of bladder leakage. Since that time, I have had UTI (for at least 8 months in a row). I am single, in my 50’s and not sexually active. Since this time, I have started taking cranberry supplements instead of antibiotics. Figured long term of that and if I got ill later, nothing would work for me. I had recently recovered from severe bone infection in a leg due to a fall & shattered the entire bottom leg bones. I went through additional surgies, pic lines, home iv injections – don’t think this doctor REALLY understood why I was concerned. Now I seem to be dealing with another issue even more embarrassing – haven’t even bothered going back to the gyne again. I get severe itching in my pubic area on the outside that can just about drive me crazy at time. Could this be related to the sling?

    Reply
    1. lavalinda

      Lori the itching I am sure is from antibiotics you have taken. You need to get the mesh out before it does permanent damage. If you can go to him perhaps you are near this doctor. http://teapapers.com/bladdersling/2013/12/meet-dr-veronikis-a-great-surgeon/

      Reply
  76. Beth

    Thank you for this site! I came on looking at the suggestion of my RN sister. Since 2009 mesh surgery for SUI and POP, I’ve had issues of STILL having SUI and increasing left hip/abdominal pain going down the leg at times, pain sitting and not being able to lay on my left hip in bed comfortably. I occasionally get pain on the right side also but mostly left. I’d like to investigate whether almost 5 years of pain is from the mesh still inside me. I am in Seattle. Can you recommend a doctor here? If not, I will pursue UCAL and Dr Raz. Thank you SO MUCH! I am so grateful.
    Beth

    Reply
    1. lavalinda

      Beth we wish we could do that but I am sorry to tell you that the only doctors I now recommend is UCLA. Yes it is hard and a long way from home but first you will find them to be caring and knowledgeable about mesh removal. Second they will not repair you using mesh again.

      Reply
  77. Nancy

    I live in Claxton, ga. near savannah and also near Augusta and Atlanta. Since 2004 I have been going through chronic pain in my lower and upperback and my hips down my left outside of my leg all the way down to my ankle almost. I don’t know if it is from this sling or my sciatica, But I would very much like to know what doctor to go to see if my sling is mesh and or if it is causing me tons of excruitiating pain. Sincerely, Nancy

    Reply
    1. lavalinda

      Nancy I can only recommend doctors I and many other women went to for removal. Look to the right for the link ‘So much hope for mesh removal”. Find out the type of sing you have and learn all you can.

      Reply
  78. Natasha

    Hello! I am looking for a physician to remove my mesh bladder sling that has a lot of experience performing this type of surgery?
    Any advice would be greatly appreciated!
    Thanks a bunch!

    Reply
    1. lavalinda

      Natasha the only doctors I can recommend are Dr. Raz at UCLA and his associates. On the right side there is a link to the blog about them.

      Reply
  79. Karen Collier

    Hello, I am a Canadian victim too. I have had the Mesh Sling put in 2 years ago, going on 3 years. I don’t know what to do if I should get it removed???? so confused but I have been in pain since I have had it put in and my hands an legs are breaking out is it from the sling?? Is it worth getting it removed? HELP

    Reply
    1. lavalinda

      Karen I will refer you to someone up there who will tell you the truth. She had hers removed. What you say about breaking out has happened to many. Your immune system is compromised due to the mesh.

      Reply
  80. Vivian

    What r the symptoms? I had a mesh bladder sling almost 1 year from today? For the last month I feel awful. Can’t really explain, hurt all over, joints ,lower abs on left side. No energy. But can not pinpoint any thing in particular? Not used to feeling like this, can u give me some input.? I live In Indiana, any contact? Thanks.

    Reply
    1. lavalinda

      Vivian you could be having an immune response from polypropylene but you will need to find someone who has an open mind. I don’t know if you have any rash on arms and legs. Many women have found doctors who believe this has happened to them and it may be someone who deals with arthritis.

      Reply
  81. Susan Murphy

    Dear Kind Soul,
    Will you PLEASE help us find a doctor in Ontario Canada, or anywhere in Canada, who is the best person to remove a Sparcs urethral mesh sling? My mom, who is 73, had one put in in 2006, and is suffering terribly with pain and possibly urethral erosion (we are awaiting ultrasound, and yes we will get a Trans-labial ultrasound!). I am so sad to see her go through this and it looks like we haven’t even begun. But with a good referral, we will do what it takes.
    Many many many thanks in advance,
    Susan

    Reply
    1. lavalinda

      Susan I will put you in contact with a Canadian woman. Please take her to UCLA because at her age, don’t risk going anywhere else. I know things I cannot say here.

      Reply
  82. alexius

    Thank you for all you’re hard work .
    my life like everyone else who got thi mesh has only a small resemblance to my life before the mesh .
    i live in Alaska and i can’t find any Dr in the state besides the Dr who put it in and i really don’t trust him .
    People in my community want to support a trip to Washington if there are any Dr there who could help . it has to be Washington or some state that can take Alaska medicade. can you please use your expertise to help find a dr who fits those parameters . thank you for all your hard work .

    Reply
    1. lavalinda

      Alexius women are flying in to UCLA from Canada and all over this country. I have been trying to find doctors who won’t injure women more and will take those in so much need of help but you cannot imagine the horror stories I hear and I cannot send you to someone who will hurt you. You can try doing a fund raiser and you can travel free if you can raise the money. I will give you a link to help. http://teapapers.com/bladdersling/2012/11/mesh-removal-no-money Maybe a church or someone you know will help you.

      Reply
  83. Carol J

    Hello.. I just came across your website and thank God I found it and found you. I am 45yrs old. I had what the Dr. Called a partial hyesterectomy 2005 – 2006 (they said partial cause they left my ovaries). When I went in for surgery my Dr’s partner was actually the one performing the surgery cause of a family emergency with my Dr. I was so desperate to have the hysterectomy I proceeded. My Dr already made me aware in the pre-op consultation that my hysterectomy could not be done vaginally cause my uterus had been knocked up around my tonsils and they would have to open me up to do the surgery. After I woke up in the recovery room the Dr came in to ask how I was feeling.. I was drugged how does he think I would feel.? Then he proceeded to tell me that while he was in there HE DECIDED to go ahead and tack up my bladder. There was never any discussion about tacking up my bladder. I never gave permission for them to tack up my bladder. I just read a couple of days ago that the way they tack up the bladder is with a mesh / sling. I had no idea!!!! I never knew I had a mesh / sling. I NEVER had any bladder problems whatsoever prior to this procedure. Once I was healed I noticed that I was having to urinate more often cause I could not hold it like a I could before the surgery. I assumed it was because it was in place and more sensitive. Even up until the day before the surgery if I needed to I could hold my urine all day. (which I only done when I was on the road for long periods of time). Since the surgery I have a lot of infections, I have lower back pains and over the past couple of years I have been dealing with a very strong order especially when I urinate and even worse after intercourse and high ph. Once again I assumed this is because I no longer had a menstural cycle and my system was not being flushed monthly anymore. Over the past few years my general dr, has been running test due to various symptoms. Things he has been checking for is MS, Lupus, other auto immune issues and everything came back negative except my C Reactive Protein was so high it was off the charts. Plus without over eating, or changing my eating habits or lifestyle since this operation I gave gained right at 100 lbs with no explanation. I don’t know if this is related or not but I wanted to provide you with all of my information. My obgyn moved her practice to another state and that practice / group of Drs disbanded about 2 years after my surgery. I never looked for another obgyn cause my primary care Dr. said I no longer needed one cause I had this surgery. Now after reading all of this information I know I desperately need an obgyn or urologist or both. After reading all of your information I will be contacting the hospital records department to obtain my medical records.

    What I need to know is; What exactly do I need to ask for to make sure I get everything I need? Also, I desperately need to find a new Dr. With experience, knowledge, can preform test etc. In the Birmingham, AL. area. I want this thing out of me if there is anyway possible. I also need to know what questions I need to ask the Dr. and exactly what I am looking for in my medical records. I hate that I have to pay for copies of my records but I need them and I will do what it takes.

    I would greatly appreciate any and all assistance and information you can provide me. Thank you so much for everything you are doing to help women in this situation. It is greatly appreciated more than you will ever know…

    Reply
    1. lavalinda

      Carol you need the operative notes and view them before you buy. The product name and number should be somewhere on that but if not check the nursing notes. I will be back in a moment and give you a link to explain a bit more. Mine was not on the operative notes. You don’t need to spend money on other things and if the info is on the operative report you only need that.

      Reply
    2. lavalinda

      Carol this blog should help you get the information you need. If you need more assistance, let me know and I will do my best to help. http://teapapers.com/bladdersling/2011/01/report-to-the-fda/

      Reply
  84. Tammy

    I had surgical mesh implanted in my lower abdomen to help prevent returning adhesions after a hysterectomy for endometriosis. Except the Dr. that performed the hysterectomy left my right ovary which caused the endometriosis to return. I did not go back to him. I saw a much better Dr. who upon just an exam alone, knew everything I was going through. This was 17 yrs. ago.
    For the last 3 to 4 yrs. now I have been having extremely painful intercouse, bleeding included. I know I need to see my gynecologist about this, and have the mesh removed. But, I also have fibromyalgia, and I wonder if this is exaggerating my condition. I’ve been searching for answers, and haven’t found any in that regard yet. I’m just hoping that I can have surgery locally, I don’t want to have to be out of town in the hospital. This will make surgery #9 for me. Fun.

    Reply
    1. lavalinda

      Tammy yes it is exacerbating your condition but if you let someone do anything to you locally you will be so sorry, none of us wanted to fly out to UCLA but I just received this from a woman who did.
      “I am doing SO well! I cannot wait to fill you in. Going to Dr.Raz will go down as one of my top 10 decisions I’ve made in my life.
      It has been a brutal recovery. However I’m reaping the reward as of the last week or so. My mind keeps getting sharper. My body is healing I think very fast after what I had done.
      I will never be able to think you enough for that last final push over the edge to becoming mesh free. As seemingly unimportant as this sounds. I can finally sit square on my bottom, for the first time in over two years.
      I have started back walking. I did three and a half miles today. Slow and steady progress is amazing!!! As long as I’m headed in the right direction lol!
      I’m getting closer to starting to think about how I can be of service to other woman who have found themselves in similar circumstances as I did over the last two years. I will let you know as soon as I can do something.
      From the bottom of my heart thank you for all that you Linda and the other ladies who emailed me have done to help me change my life for the better”
      Tammy we all know what a huge decision this is but the choice is yours.

      Reply
  85. Pam

    Do you know of a doctor in Atlanta? I recently saw Dr Moore of Mickolas and Moore for my mini arch sling. I have bladder erosion and a calsification stone!! 2nd btw. Very painful!! He showed me how the procedure is suppose to be preformed with the skeleton of a pelvic, a hook needle and mini arch sling then showed me “how easy” it would be to attach it the sling to my bladder instead if my pelvic wall. He assures me he can get all of the mesh out. It bothers me he said he didn’t need digital equipment to see it but said if it would make me feel better he wod have one in the OR during the procedure and use it if he needed it. It also bothers me that he still implants this crap in people. I am ticked off that he thinks also that it is “easy” to make a mistake!! Oh and one last thing he also said he could do all of theis laparoscopically and vaginally!! Would you use him??

    Reply
    1. lavalinda

      Personally no I would not. Read this. http://meshangelnetwork.com/2014/06/mini-arc-system/

      Reply
  86. Brandy

    I am looking for a dr in PA to assist with a exam and removal. Do you know any in PA or who is the closest? I have been blown off by several dr’s regarding this issue. I had the mesh implant in 1997 for a hernia repair and have had problems since. Approximately a year after the initial mesh implant I had to get a “foreign object” removed from herniated area. I believe it was a staple that was removed. I continue to have pain but have just left it go; however, the pain is getting increasingly worse. I would also like to add that I have severe stomach issues and the dr’s have not been able to determine what is wrong. I am testing next month for possible overgrown bacteria. If I do have overgrown bacteria then something is contributing to the overgrowth. Have you ever heard of this being a side affect? I would like to note that when I am really sick with stomach issues, the dr gives me a dose of antibiotics and I feel better for a few months. I am be beginning a dose of antibiotic at the beginning of each month, in which I am hesitant to take due to weakening my immune system. I am concerned my stomach issue has to do with my hernia. All my stomach pain is in the side the hernia was repaired. I did have a procedure to fix my intestines in the past and that dr told me I had a ton of scar tissue. I do not know what to do anymore because I can not get any answers about my stomach and hernia. Please help!

    Reply
    1. lavalinda

      Brandy At the top of this blog is a link for doctors and one is for hernia repair. Yes, hernia mesh is responsible for so many problems, but the good news it (if there is any) it is not as invasive as pelvic floor mesh and removing it is much less trauma on the body. BUT… you need a qualified doctor who can repair you without more mesh. I am trying hard to find more doctors all over the world who will repair without mesh and if you learn of any others please let me know. Hit the link at the top for a drop down box. There is hope so don’t give up. I will contact you.

      Reply
    2. Parker in Bhm

      Brandy, did you have your sling removal surgery, & if so how did it go & how are you feeling now?

      Reply
  87. Sabrina

    Know a doctor in Michigan? My doctor sends me all over and everyone thinks Im crazy… Im starting to feel I am

    Reply
    1. lavalinda

      Sabrina sorry I cannot recommend one.

      Reply
  88. Katherine

    I had a ams monarch transvaginal mesh implanted Feb 2008 and currently live in Oklahoma. I having all sorts of issues with mine plus I am having trouble finding a doctor who will remove it.a doctor in Oklahoma city Oklahoma said I wasn’t eligible to get it removed and said it would be worse if I took it out .but its very painful and like I said I am having issues with it
    I need advice and help asap.
    Plus only insurance I have is state insurance and medicare
    If anyone can help me in would so appreciate it thanks

    Reply
    1. lavalinda

      Katherine I wish I could give you someone but I know Oklahoma women who suffer and they all travel to UCLA. It seems putting it in is so easy for everyone but removing it is the hardest thing to do. So every day I wonder why they still do it. I hope someone comes here and gives you a good name.

      Reply
  89. Tracy

    I had Bladder sling surgery in June 2014..I am 53.From the morning I came home I had severe hip and leg pain,esp my right leg..I walk crippled,limping every step I take..Its awful.It is now Dec and my pelvic and hip pain continue.Some days are worse than others.I cannot sit or stand for any length of time as it only makes my symptoms worse.I have gained over 20 lbs..I have never weighed this much my entire life, even during a pregnancy.I believe I have edema as my feet ankles and legs, even my abdomen is swollen., and I mean swollen.I also feel as if I have bands around my upper legs,a tight feeling..achey and painful.I went back to my urologist 2 wks ago and she says these symptoms are not from my surgery and even asked if maybe I had arthritis in my hips.Funny I didnt before this procedure was done.I am in the process of trying to get my operative report and to find another doctor to get a 2nd opinion for these complications.I am very scared,wondering if my body is rejecting the mesh.My friends have suggested I go to the ER, but I have no insurance now…Long story..All of this is really starting to affect the quality of my life.I also have fibromyalgia, for over 15 yrs, wondering if all of this only aggravates the symptoms of that.Any suggestions and advice would be greatly appreciated..I am in Florida..

    Reply
    1. lavalinda

      Tracey you may want to get your kidneys checked by someone as this does not sound good. Perhaps you can get Obamacare soon. Yes mesh does all this to women and after it is completely removed most women do not have the serious symptoms. Try to see if there is anyone in your State who will see you while you wait to get insurance.

      Reply
  90. Katherine

    Hi – do you have any information of doctors in the Boston area. My troubles began 1 year after having mesh impacted with the past year being unbearable. My urogyno says I should not have it removed – she is strong about this. This pain in unbearable – she has given me every urinary protocol and nothing has worked. Are there surgeons in Boston that are skilled at removable? Please help.

    Reply
    1. lavalinda

      Katherine you will have to travel if you want to get better. Click on the link at the top saying doctors and view pelvic doctors. Your uro is an idiot and it no good at her job. It is your life not hers and she will not admit any wrong doing. Go out to California.

      Reply
  91. lisa

    My mother had a mesh placed and now has fibromyalogia! It all started six months post operation! Need help! Will removal help

    Reply
    1. lavalinda

      Lisa I believe it will if you can take her out to California and make sure it is all removed. The link for doctors is at the top of this blog under pelvic doctors. You need to take her records when she has her first consult. Many women have a bad reaction to mesh.

      Reply
  92. Kelli

    I found the post and saw that it is still being moderated – thanks

    Reply
    1. lavalinda

      I am sending you an email.

      Reply
    2. lavalinda

      Kelli I used your story to help others in your situation as you wrote about your horror so eloquently. There is a comment on there from a woman in your State and you need to read it. This is that blog. http://meshangelnetwork.com/2015/02/a-da-vinci-horror-story/

      Reply
  93. Elizabeth

    I had the TVT Aris put in last January 2014 and everything seemed good for 10 months until I started having pelvic pain. This pelvic pain continued for several months and got worse with sexual intercourse and as the days gone by further the pain increased. I saw my original urologist and she examined me (Vaginal Exam) and said everything looked good and that perhaps my pelvic floor was weakened and needed to be strengthened with exercise’s with a physical therapist. This exam did not convince me, as the days gone on it got worse so I decided to see another Dr. to get a second opinion. This Dr. did a vaginal exam and a few tests during this exam and he didn’t seem concerned about the mesh eroding but he was puzzled as to why the Dr. decided on the TVT for me since my incontinence was caused by childbirth. My bladder is only partially lifted by this surgery and is straining the rest of my bladder from my understanding, which is causing the pelvic pain. He doesn’t want to put me through another surgery I just don’t know how long I can live with this pain, I’m only 24 years old. All the suggestions and advice would be certainly helpful and appreciated.

    Reply
    1. lavalinda

      Elizabeth I don’t know what your insurance and financial situation is but look at the doctors link at the top of this blog and travel. You are far too young to not get the help you need. Dr. Rodriguez trained by Dr. Raz or UCLA doctors CAN help you. I know it is hard to go far from home but this is YOUR LIFE so do it.

      Reply
  94. Deanie Gebhard

    Hello!
    I wanted to get your thoughts. I had surgery Dec 2012 for uterine prolapse, cystocele and rectocele repair. I had the uterus removed. TVT, and sacral colpoplexy performed. I am now 52 years old. In October 2014 I had my first ever yeast infection . Immediately after that I experienced a horrible vaginal discharge that was so thick it would not wash out on its own. It started to become lightly blood tinged at times. I saw my primary care Dr for other issues and mentioned this. She gave me one tablet to help with the “prolonged” yeast infection, which of coarse did nothing. I had my routine Pap smear Dec 2014, mentioned it again. There were no abnormalities in my anatomy and she tested for bacteria and yeast, which were negative. She wanted me to start on estrogen cream to see what happened. I honestly only did that for a couple weeks. Then Jan 9, 2015 I experienced severe sacral pain which got worse throughout the day to the point where I couldn’t walk, sit, or lye down because the pain was so bad.it even hurt to touch the outside of the skin. I had no falls, trauma or anything. I went to urgent care the next day because of the pain, was given Vicodin and told my x ray was normal (which I knew would be). I mentioned the discharge I was still having because I felt it was related, but it was ignored. The discharge started to subside after about a week, I called my Uro/GYN that did my surgery and finally got in 3 wks later which was yesterday. I feel like I am prolapsed a bit again but he says that everything is in place, I have had severe pain randomly off and on since Jan 9,2015 from sharp pelvic pain, buttock pain, hip pain, pain and weakness down my legs and rectal pain. It’s all so random and off and on. He pushed on some areas inside that were terribly painful, he said that was pelvic floor muscles? He said there were no signs of erosion but that. May have a slight bacterial infection in the mesh. He started me on Flagyl and wants me to do physical therapy for the pelvic floor muscles and restart estrogen after the antibiotics. I’m not convinced of this is gnosis. All this sharp pain cannot be from weak pelvic floor muscles? What are your thoughts?
    Feeling like a hypochondriac….

    Reply
    1. lavalinda

      Deannie you are showing all signs of mesh complications but they will keep giving you drugs and pretend it isn’t the mesh. Please give yourself a break and get out to California and go to a REAL doctor.

      Dr. Rodriguez
      Lrodriguez@med.usc.edu
      http://www.keckmedicine.org/doctor/larissa-v-rodriguez/

      Shlomo Raz, MD
      Frank Clark Urological Center
      200 UCLA Medical Plaza Suite 140
      Los Angeles, CA 90095
      (310) 794-7700

      Dr. Ja-Hong Kim
      Assistant professor of Urology
      310-794-0755

      200 Medical Plaza Suite 140

      Reply
  95. Ginger Tupper

    I have problems with gut pain, pain when I cough that doubles me up and I would like to see another dr about the sling. I went to one he did the bladder holding water test and said I was fine. He had an attitude about the legal suits over the sling that was unprofessional and I would like to have relief from the pain. Do you have a Doctor in Phoenix or Chandler, Arizona please. Thank you.

    Reply
    1. lavalinda

      Ginger. Honestly I personally cannot recommend one I did not use and that is Dr. Raz at UCLA but there are a few doctors if you click on the doctors link at the top of this blog, who say they don’t use mesh, but I know nothing more. Some women in your area went to Dr. Twiss.

      Reply
  96. Nicole

    I need some advice about pelvic mesh or just someone to talk to. I’m torn the gyno who put mine in 2011 says that she can take it out. But I’m just not sure reading stories about doctors trying and failing. I already made a appointment with Dr. Raz for June but they also told me I can make a appointment with dr. Kim if I can’t wait. I’m a mother of 2 and recently I have been having trouble eating and my bowels have been off. I’ve been to every doctor, blood test,ct scans,you name it trying to find out what is wrong with me because I’m losing weight fast and it’s scary I want to be here for my children. I told my husband I feel like my body is fighting something I even have pelvic pain and I thought it was a UTI because I was getting a ton of those last year. The urologist says my bladder is fine and no uti but I guess whenever I leave a sample with doctors they always find a small trace of blood. But my kidneys are fine too so I’m thinking what could it be. All of a sudden my body was reacting to prescription medications that I was taking and I’m fully off all of them. When I had my pelvic mesh and sling for my bladder put in 2011 I also had my uterus pulled out because it was prolapse. My gyno said she had to reconstruct my wall and put the sling and mesh in to hold everything up.I’ve always had pelvic pain but I was told it was scar tissue and eventually they took out my ovaries saying it was the large cysts on them causing pain. The way I feel they say it’s my menopause and that the mesh I can’t get allergic to or my body isn’t trying to reject it. She wanted to put me on pills and said yeah you can take out your sling but I’m not sure your going to get it all out by anyone and you were so bad your still going to prola5and you can use your own tissue but it was already thin when I went in the first time and you’ll just have a failing rate because I’m young and the prolapse will keep coming and eventually scar tissue will be so bad that I won’t be able to do anything. I don’t know what to do I’m so confused and I don’t know if I should take it out or not.

    Reply
    1. lavalinda

      Nicole this sounds like the mesh is in your bowels or there is an obstruction but it is just a guess. I know you are very scared and I am going to send you a note.

      Reply
  97. Nicole

    I forgot to mention I’m 32 years old and got the surgery when I was 29 that’s why she put the mesh in because I’m young

    Reply
    1. lavalinda

      I sent you a note and I want you to know that far too many young women have mesh and it should never happen to anyone.

      Reply
  98. Doug Bean

    Hello and thank you for all you are doing to help the many many mesh injured women and men suffering all over the U.S. I however am a 42yr old male, who had a right side inguinal hernia repair using the BARD 3D-Max mesh prosthesis. It has been 31months since my operation and on day four, post-op I felt the mesh slide/move downward inside of me. Only an adhesive was used to keep it in place and that has been proven to not be effective. But that isn’t really the issue. The mesh is. I was fortunate to have be interview and have my story published by Jane Akre but still after 31months I can not find a Dr. in New England (I am in Maine) that will say it IS the mesh. I have consulted with a Dr. Petersen in Las Vegas over the phone, he reviewed my medical records and talked with me about my symptoms, after which he told me that I most certainly do need to have the mesh removed- but he because it is only a phone consult he won’t order any ultrasound or mri for me to see where the pieces of mesh have migrated to. And I have been living with feeling it move through me causing distention, a mesh fiber to come out through my belly/skin 2x;s another one is coming out now, and 9 partial intestinal blockages as well as 5 total digestive system shutdowns in just the last year alone. If any one of the partial intestinal blockages I’ve had were total blockages- any one of them could have killed me. I have seen so many doctors now I have no where else to turn and I am scared. I am a single Father to a beautiful 8yr old daughter and she needs her daddy. But I am basically bedridden since this all went bad… And I thought Dr. Petersen would be the one to help me, but how can he say that I DO need to have a complete mesh removal after I told him about all five places or hard lumps that have formed inside my intestines while slowly moving through me like a ball of razor blades or a spiked sea urchin. The mesh started to disintegrate and migrate within 2weeks post op. And his mesh removal process in in office… How do you do a day surgery, what I would consider to be an invasive procedure, cutting me open from sternum to pelvic bone and have it be in an office, not a hospital and be expected to go back to a hotel after the procedure without anyone to look after you. Plus why would he not even being willing to order an ultrasound test to see what he is going inside my body to find and remove? Please if you can help me in any way I would be forever grateful. I have lost the last 31months of my life completely. I will share my story with you to give you an idea of the craziness I have gone through up until last fall when it was published. And since it was published, I have only continued to get worse ever since… And even Dr. Petersen told me during our phone consult that the longer I go with out getting the mesh removed the more & more damage it will continue to do to my small intestines, spermadic cord, bowels, nerves, etc. He also said some nerve damage may be irreversible at this point. I also have incontinence issues as well as many other nasty things going on that I will just let you read about in my story instead of writing it all here. Again, I thank you for taking time out of your life to read my message and if you can possibly reach out to me with any info on finding a Dr. who is willing to stand up and say the mesh IS the problem I am here and going no where fast. Not sure I want a surgeon to cut me open without knowing what exactly he is going in to remove and where it all is… Many blessings to you and, Humbly, I thank you. ps. I will actually wait until you respond instead of posting the link to my story here as I am not sure if that is how you want the site to be. I think I read somewhere that you don’t post personal information in these blogs. Kindest Regards!

    Reply
    1. lavalinda

      Doug there are a few mesh removal doctors on the following blog but you may also contact Dr. Raz and I am going to send you an email now. These are the only doctors I know of and some may or may not remove it, but you also need to be repaired without mesh. http://meshangelnetwork.com/doctors/non-mesh-hernia-specialists/

      Reply
  99. marg gander

    I had TVT surgery in February 2011 at the Credit Valley hospital in Mississauga. One year ago, I began having severe groin pain in the right groin that also shot down the front of my leg and down the outer side of my knee. My doctor ordered x rays on both hips. My right hip had significant arthritis and my left hip some. I am currently in Myrtle Beach and there is an ad every 5 minutes on the TV for class action lawsuits against the manufacturers of the TVT mesh and other mesh for full bladder lifts. My question is, why is this not known in Canada and why aren’t surgeons calling back their patients to have a Trans Labial ultrasound to check if there are problems. Is our system in Canada into guessing games by the patient?

    Reply
    1. lavalinda

      Marg I am going to email you.

      Reply
  100. Hannah

    I live in Kingsport, TN and mesh has protruded into my vagina. My PCP said it must be removed. I also have numerous other horrible issues as a result of this mesh surgery. Is there a good board certified urogynecologist jn Tennessee? I’m scared.

    Reply
    1. lavalinda

      Hannah no there is not. You may not want to believe me and I completely understand but I know many women in your State. Some had partials and those who could went out to UCLA. See the doctors link at the top of this blog.

      Reply
    2. beth

      Hannah, I am in Tennessee too. 2 hours away from you.. there is no one in Tennessee that can help you.. they will lie to you. I promise I truly know this. I had sling put in 2011, started having problems 3 months later, continued to get worse, with multiple problems, I found out July 2013, that the mesh was the problem, I’ve had many surgeries here (Bad Bad) do not have any revision surgery.I have seen several doctors here,none of them have believed me. Even when I went for my surgery clearance for Dr Raz, my family doctor still doesn’t think it’s mesh. It is so sad. So depressing. Read all you can here on Mesh Angel network. Linda has helped me so much. Go see Dr.Raz at UCLA. I seen him in January, he will be removing ALL of the mesh in May.. i am counting the days. HE gave me Hope. Linda gave me hope. I am so Thankful to linda.

      Reply
  101. Hannelore Gant

    i live in Charlotte NC do you know a doctor that can safely remove my sling, i need it soon. thank you for your help have a blessed day

    Reply
    1. lavalinda

      Hannelore No I am sorry I cannot recommend a doctor who can safely remove all the mesh including the anchors which is how it is attached. There are other doctors on the doctors link at the top of this blog but you have to ask questions for your particular type of mesh.

      Reply
  102. KRISSTEE

    CAN YOU EMAIL ME A LIST OF DR THAT CAN REMOVE THE MESH OR IS DR RAZ THE ONLY ONE?

    Reply
    1. lavalinda

      Krisstee there is a link at the top of this blog for doctors, but make sure you know what type of mesh and ask a lot of questions before you go for surgery.

      Reply
  103. Michelle Croley

    Hi , my name is Michelle and I live in Blountstown Florida (panhandle). I have had surgery several years ago with the mesh put in for on a prolapsed uterus , bladder and intestines. I have no medical insurance and need to know how much removing this stuff may be . I am very scarred and do not know what to do . I am 41 and have daily nausea (its hard to eat),sometimes discomfort, abdominal spasms ,pain in my torso and back. I also have interstitial cystitis a immune disorder that affects the bladder among other things . Please help me as I am in need of a excellent Doctor and need to come up with money for this. Thank you. Sincerely , Michelle

    Reply
    1. lavalinda

      Michelle I am so sorry for what you are going through but what you have said is very common. You should get a urine culture done because it sounds like serious infections. It will probably run around $30.000 but go to Dr. Raz.

      Reply
  104. alice dhen

    I am writing this for my mom…she is 67 and lives with me. She had this surgery about 5 years ago while hhaving a hysterectomy. It was supposed ti help with mild incontinence. Now she lives in a diaper and the stupi thing is nowhere to be found. She has had several battles with ecoli in her bladder that included weeks of daily IV antibiotics.she’s had unsuccessful surgeries for leg and back pain, is on anti depressants and has basically given up on life. I don’t know if it’s all related but it’s the saddest thing I’ve ever seen….she’s just waiting to die.this once vibrant energetic super hero of a mom is falling apart in front of me….i just want my mom back.

    Reply
    1. lavalinda

      Alice can you get her out to UCLA to Dr. Raz? I will contact you.

      Reply
  105. Parker in Bhm

    Is there anyone on this blog who lives in Alabama who’s had sling removal surgery? Who was your surgeon & which hospital did you use? How did your surgery go & how are you feeling now? Is there anything you would do differently? I’m sure my groin pain is connected to one of my slings but none of my doctors can find the cause.

    Reply
    1. lavalinda

      Parker many women travel from your state out to UCLA. There is good reason.

      Reply
  106. Lila Davis

    Any recommendations for a doctor in Mobile, AL

    Reply
    1. lavalinda

      Sorry Lila I hate to hang you out to dry but I know many women from your State and others surrounding you and I cannot recommend any. I live in Texas and we don’t have any either which is why I flew out to Dr. Raz at UCLA.

      Reply
  107. beth

    LADIES,

    Linda is typing the truth… Dr Shlomo Raz at UCLA can HELP YOU! He removed my mini arc sling mesh 6 weeks ago.. I was deathly ill for 4 years..I am so much better. I found Linda and this blog one year ago. she has helped me and family so much. GET AN APPOINTMENT WITH Dr. Raz, then read this whole blog..You will learn so much.. I am 42 , I live in TENNESSEE. there is no one in this state that can help you. Ladies, Do NOT waste your time and energy on trying to find a local doctor to help you. please do not have any partial removals, or clippings, that makes your problems so much worse.
    fight and research all you can!
    thank you linda 🙂

    Reply
  108. Nancy

    What do you do if you think you had a mesh implant? Good doctor in Midland Texas

    Reply
    1. Linda (Post author)

      Nancy how long ago was it? There is a blog I wrote about medical records law and I will get it for you. http://www.meshangels.com/medical-records-law/ so try to get them if possible, other than that go out to UCLA for consult and ask if you can make an appointment to have the translabial ultrasound done. This will show if mesh is there or not and if not they will not put you through surgery. I know someone who this happened to. Sorry forget doctors in Texas.

      Reply
  109. Terry

    I had mesh repair surgery for a incisional hernia 10 months ago and my life has become almost non-existant. 24/7 pain, constipation, so tired I can hardly move out of bed each day. Call the surgeons office to make an appt and was told these aren’t related to my hernia repair and to make an appt with my family Dr. Made an appt with her and she says it’s the mesh. Please tell me a Dr in Greensboro or Winston Salem NC that will remove this monster from my body and give me my life back.

    Reply
    1. Linda (Post author)

      Terry there is a lawsuit going on right now for a type of hernia mesh. It is called physiomesh. Get in touch with a lawyer.
      This man can remove it. https://www.healthgrades.com/physician/dr-bruce-ramshaw-x6wpd

      Reply

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