Mesh & A River Of Tears
This past week has been exceptionally difficult. As usual these days, ten to twelve women a week make contact with me to try to find medical help to remove the mesh form their bodies. The contacts that thrill me the most is the woman who finds me BEFORE she has this surgery. This past week it happened again. This is what keeping up this blog and learning as much as possible about medical mesh is worth all the time and effort that I put into it. It is usually the woman who before she jumps into surgery as instructed by her doctor, wants to know more what can happen to her. I was the same way two years ago for me, but other than warnings about the ‘old mesh that had been removed from the market’, and now all was supposedly well. Sadly women who had this so called ‘old’ mesh, are still coming forward with terrible symptoms, five to seven years after the fact and they never had a clue any more than the women like me who have the so called ‘good’ mesh. Sadly too late I have learned that none of it is good.
What made my week so bad was the realization that more and more young women are coming forward, their lives ruined, and their family life in jeopardy. It is bad enough when women in their early thirties are struggling with constant pain, and cannot work or play with their children. Often their marriages are on the down hill or already gone. Their young husband’s have no patience with a wife who cannot live a normal life which includes normal wifely duties, such as sex. Yes, with mesh in your body, there is no way you can have sex any more, unless you struggle through severe pain to try to keep your relationship. That’s why I am here writing this all down, because the medical world ignores what is happening to women and still keep putting in the slings and hernia mesh with no thought to the catastrophe they are leaving families, both young and old to deal with.
This past week two women made me go into a dark helpless phase. One was twenty-one when mesh was put in her body. The other is only thirty-one now and has been suffering for some time, only to be told it was everything else, except the mesh in her body. Women in terrible pain, both with two very young children. They aren’t the first in this situation to make me feel helpless and they won’t be the last. I get angry. Angry that very young women who should be concentrating on raising their young families, live in pain like this. Money is hard for normal young families. Throw this devastating medical injury into the picture when it was never about life and death, then my blood boils. How can these mesh manufacturers sleep at night. How can doctors be such puppets and keep doing this to women even though they know this is happening. The answer is of course is, it’s all about money. They don’t care about people.
It isn’t just the painful medical catastrophe’s that are left for couples, their children and other family members to sink into despair over. Insurance or not, medical bills pile up from multiple surgeries, both removal and reconstruction. Often the roof over these families heads are in jeopardy or gone. They are the new poor! The devastated, saddened and totally disillusioned families around this country, let alone all the others around the rest of the world. No, it isn’t just happening in America.
When I read their stories or listen to these women over the phone, who just want to talk to someone who knows their pain, my heart goes out. I hurt inside like you would not believe. I wish for a large lottery win to set up some kind of funding system to help them through. That won’t happen of course because my own situation is always teetering on where the next much needed money comes from, so even throwing one dollar away on a lottery ticket is a giant waste for me. I too have to prepare for mesh removal later this year. Even though I will at last be on Medicare at long last, it will not cover travel expenses, hotels and more. You can’t do this alone. You have to have someone accompany you. More money. More breaks in the people’s lives who give their time to care for you.
So if you find this blog because you are thinking about having bladder sling or hernia surgery, look for alternatives. Believe no one. If you are seeking a doctor who is competent enough to remove your mesh, send me an email. I’ll do what I can to help you. Thank you for reading my blog.