Mesh Removal and TV Adverts

For several days I have been working on spring hats ready to put them up for sale and although I can’t work for very long at a time due to so many problems caused by the mesh in my body, I know I have to keep going to make money for my expenses for mesh removal later this year.  As I work, I have heard and seen the adverts by lawyers about bladder sling mesh complications.  What I am always struck by is that there is never an offer for counseling or doctor referrals.  Of course I understand why. The law is the law, medical is medical and everyone stays to themselves.

However, if you are one of these women who are wondering who to go to to have your mesh removed, then you are probably afraid of who you can trust.  I don’t blame you at all.  For those of us who have been living in pain, the last thing we wish to do, is prolong the pain by choosing the wrong doctor to have it removed.  That is why, with the help of women who have already had their mesh removed, we’ve put together an information email to help you make your own informed choice.  Never let anyone take away your choices.  Don’t blindly trust, me included.  Talk to others who have experienced good results from removal surgery and are willing to help you through with both counseling and the all important, being listened to.   None of us are doctors.  All we are is a very small group of women willing to step up and give you help in whatever way you need it.  All you have to do is ask.

If you are a woman who had your sling in 2 to 5 years ago and you are breathing a big sigh of relief that you are still fine and doing well, I hope it stays that way for you.  I would not want any complications wished onto anyone.  However, please be aware that a growing number of women are contacting me, who had their sling in five or more years and suddenly feel symptoms of mesh erosion.  You know your own body.  You know when something has changed even if you are being told by your long time doctor that it could not possibly the mesh.  You have to take charge of your own life and go for a second opinion to find out exactly why you feel the way you do.  That means you have to go to someone who is trained in finding mesh erosion and has all the right equipment.  The symptoms you are noticing will not go away.  They will worsen over time and can stop you enjoying your life.  So if you are reading this and know that I am speaking of you, then all you have to do is contact me and I will do everything in my power to help you.

I am not affiliated with anyone.  I don’t get paid by anyone.  I do this because I have suffered so much by this product and still do so.  Someone has to help.  I care enough to step up to the plate.  I am here!

31 Comments

  1. betty

    This is wonderful and expresses my exact thoughts. Mine wasput in 2005 and inever had a problem (I thought) until 2011

    . BACK IN 2007 i HAD WHAT i THOUGHT WAS A utI AND WAS TOLD i HAD CYSTITIS WHICH i DID NOT BELIEVE.

    THINK THEN
    THE MESH WAS MOVING INSIDE ME
    AND IT WAS NOT
    UNTIL 2011 IT CAME THROUGH THE VAGINA.

    gOOD LUCK TO YOU AND i HOPE THE SURGERY COMES SOONER
    THAN EXPECTED. iT
    IS GOOD WHEN
    IT IS OUT

    bETTY

    Reply
    1. lavalinda

      Thank you for leaving your comment because every one left here allows women to decide for themselves how to get educated on mesh removal and believe in herself. I appreciate your comment very much because you have been through this. Once again. My sincere thanks.

      Reply
  2. Kathleen

    She is so right here. You need a second opinion to even contemplate putting the mesh in as well as when complications occur a second or third opinion is so important. There are so many issues to consider. Mesh is not an easy fix to prolapse or incontinence. Doctors have varying opinions. Not all Doctors understand the complications so many other women have had right away or even many years later. Not all have the expertise to safely take out the mesh if that is necessary and it usually is. Making sure you have the correct Doctor for removal is so important. When this has happened to you and you see the commercial after the fact is devastating. I think so much education on POP and incontinence is truly needed out there with the Doctors and the patients and most importantly the Medical Device Manufacturers to avoid this from happening in the future.

    Reply
    1. lavalinda

      Without you ladies leaving your comments to help all women, this blog would go wasted. Every woman must make her own choices as to what to do about her situation. However, she may be wondering where to turn. There is help here of course, but knowledge is any woman’s key to getting her life back. Read everything. Take it all in. Ask questions. Then and only then can you make an informed decision. It is your right!

      Reply
  3. Kathleen

    We love you lavalinda. Keep writing!

    Reply
  4. Shannon Pettit

    Help I had my surgery 3 years ago, and I grow scar tissue like weeds, I have had 2 major surgeries to correct the scar tissue, but now am dealing with the awful effects of the sling. Lots of pain in my lower back as well as with sex. Can the sling be removed, is it an option?? Going to my gyno on Monday. ugg

    Reply
    1. lavalinda

      If you go to the right surgeon, yes it can. I will send you a private email with information and support groups.

      Reply
  5. Bobbie Jean

    I had a min-arc put on my urethra summer of 08 and another on my bladder fall of 08. Immediately After the second surgery. I began having alot of complications. Including a severe infection of ” Acinetobacter baumannii”. Along with having a catheter for many weeks. To my immune system shutting down and being hospitalized. My marriage fell apart and we divorced in 09. Things calmed for awhile or maybe I just didn’t notice as much. With my divorce and the death of my brother. Then in December 09 I began having bleeding and what felt like a razor inside. I examined myself and felt the mesh inside. So I went to the hospital. Where they admitted seeing the mesh but said it hadn’t perforated my vaginal wall. Ok I thought it was self explanatory. That if they saw it. Obviously it wasn’t were it should be!!! They wrote me off as crazy and referred me to a OBGYN. Which wouldn’t see me. Because after my divorce I have no insurance. I called the original Urologist(which us #1 in my home state) and he would only see me if I had $500 cash up front. So that wasn’t possible either. So I’ve delt with the cutting, stabbing, burning UTI’s, extremely painful sex and emotional issues. I remarried in October 2010. Shortly after (Dec 2010) things started to get alot worse. For about 5 months sexual relations have been excruciating. My husband says I make excuses and guilts me into sex. Which I literally cry through and bleed after. So this marriage is falling apart as well. The last month I’ve noticed leakage,burning and an unusual smell at times. So I examined myself. I try not to often. I honestly try not to think about it. Because after many phone calls etc… I realize their is nothing I can do. So I don’t mention it. My husband rolls his eyes with sarcasm. And it just upsets me. I’ve read so many stories and seen photos. That are much less than what I see inside me. Where woman have had many surgeries and major complications. Anyway so I examined myself and found the mesh almost sticking out my vaginal opening. I’ve had alot of scarring for awhile but now it’s so severe. That it fills my vaginal opening.(explains sexual pain) And the worst thing is. I know my urethra or bladder is perforated. Because my urine flows out my vagina and only drips out of my urethra. Also something is severly not right up inside me. I saw the mesh and it’s the culprit of the smell and burning! I also fear that my bowel issues are related. I know this has been very graphic but I do not know what to do. This has to end! I had it put in when I was 28. I’m now 31 and can’t believe all of this. Please someone help me!!

    Reply
    1. lavalinda

      Your story is sadly terrible and I have sent you private emails to see if I can offer you continuing support and help. Both me and two other ladies will be glad to help you in any way we possibly can. We really care.

      Reply
  6. Leslie Winslow

    I had my original mesh surgery last year in Jul to correct a prolapse. My Dr also decided I needed a bladder sling even though medical tests did not show a need. After my first surgery I experienced severe pain in my right leg and underneath my right buttocks. I felt like I had a tourniquet across the middle of my lower abdomen with constant pressure on my bladder and I had a constant urge to urinate. It felt like I had a severe UTI all the time. My Doctor insisted my surgery was a success and told me my “discomfort” would decrease given time. Fast forward to Dec and I am at another OB-GYN for removal of the mesh.

    The new Doctor says the mesh has been anchored on a nerve and that is why I am in so much pain. I scheduled removal of the mesh as soon as possible, 30 Dec, and asked about removing the bladder sling as well. The Doctor did not think it was a good idea to remove it at the time. The surgery went well, I thought, but I am still experiencing pain and the bladder discomfort has now escalated to me having to self-cath. My prolapse has returned and I think it is time for another Doctor. I am very discouraged at this point and I just don’t know what to do. My husband wants to sue everybody but even that is a nightmare. Lawyers are not trustworthy and how would you know how to find a decent one willing to represent you. All of them want 50% of settlement monies or more. I have lost my future over this. My job, my intimate relations with my husband and so far any forseeable quality of life. I don’t know if you can help but it sounds like you can at least sympathize, unfortunately.

    Reply
    1. lavalinda

      I have sent you two private emails and they bounce back. Do you have another address so I can send you support and information you need.

      Reply
      1. Leslie Winslow

        Lavalinda,

        I have wondered why I didn’t hear from you. I will send you my aol email. Spam might be sending it back. Please try again. I am scheduled to see another Dr at the same office on Friday and I am praying to get a different answer. I am in so much pain every day and I am so afraid all the time. Is this going to be my entire life now? Wondering from Dr to Dr begging for someone to fix a problem created by some greedy Dr’s and a medical supply company?

        Reply
  7. Linda Romero

    My story is the same. I had a total prolapse repair. Nothing indicating I needed the sling but she did it in case. From the very day of surgery I have had back pain, inability to have bowel movements chronic uti’s and bacterial infections. I finally found a gastroenturologist that did bo tox in my rectum and lower back 4 sessions every 10 weeks. The rectal spasms are better but not the back. I have been on macrodatin for 7 months and take milk of mag daily to go to bathroom. My new euro gyn reccomended I read a cognitive behavior therapy book. Fuck her I’m a licensed therapist and if I was searching for answers I woould not be dropping thousands of dollars. I would fix it myself. I had a cystoscopy showed nothing. I had follow up uds nothing. The only real sign is constant spasms. I made the decision to remove. My insurance covers mayo, dallas and UCLA where there seems to surgeons that have experience. Wanted Miklos/Moore but insurance does not cover. If you have surgeons thay you have heard are skiled I am desperate to fall in the hands of someone that knows what they are doing.

    Reply
    1. lavalinda

      I have to send you a private email to help you. I hope I can help.

      Reply
      1. Linda

        Can anyone give me a name of a good dr. who has experience at removal…right now I’ve been to cleveland clinic 2 times with no answers…I need the mesh removed. I appreciate any help…Thanks Linda.

        Reply
        1. lavalinda

          I will send you a private email to try to get you some help.

          Reply
  8. Sherry

    I need someone to write me so I can talk to you about my erosion of t sling mesh into my bladder.

    Reply
    1. lavalinda

      If you email me your phone number I will call you.

      Reply
  9. Norma

    I am really getting scared. I have been having symptoms all this year, including, painful sex, leakage, pains in lower belly, and left side of belly. I feel like I’m coming down with a UTI every day. I have had one two months ago along with a bacterial infection of the bowels. It does effect the bowels. I feel like I have to go all the time, no matter how often I go. Lots of constipation no matter what I eat or take. I am calling my doctor today that put it in along with another doctor (a urologist) and see what she says. I have had the lower back pain too. I have told my doctor at my regular yearly checkups that sex is very painful, even when she examines me, it is very painful. She tells me everything looks good! It’s getting very frustrating. I feel for the supportive husbands out there who are dealing with this because of what we are dealing with. I need to know if you know of anyone in the Portland, OR area who does the removal successfully. Thanks for listening.

    Reply
  10. Kelly

    Can you please contact via email when you get a chance. I have a lot of questions!!!! Thanks for this vey wonderful website for women to help find answers!!!

    Reply
    1. lavalinda

      I will. Please understand everyone that I will not be available from early October for some weeks, due to the fact I will be having mesh removal.

      Reply
  11. susan

    I had a bldder mesh done when I had my histerectomy on july 3rd 2012.At my 6 wk check up,I was cleared for sex.My husband feit something sharp poking him.he felt inside,and sure enough there is something there.i have a dr appt. on monday,aug 27th.I want the mesh removed.Im so scared my gyn will want to trim me in his office.I dont want to screw around with this. I want it fixed now,or removed now.Any advice?

    Reply
    1. lavalinda

      Yes, first NEVER let anyone trim it. Small pieces can break off and travel and cause injury to other areas. Then get that list of questions and take it. Also ask if if has the translabial ultrasound and KNOWS how to use it. If he looks bewildered or does not answer any questions, stay calm and leave. Then do everything in your power to go to UCLA.

      Reply
      1. susan

        thanks for the advice.do you think that it could be totaly removed?(because ive not had it for to long )Im going to ask for surgery to remove it,or to remove a big enough peice that it wont come through the vagina wall agian.I only want to be normal agian,and to have a sex life with my husband.Its the least I can do for my husband. He has been so good to me.I have ms,he has been my life.when I had my hister,I had a bowel obstruction 4 days later.I was in the hospital for 15 days.had another surgery,had a pick line.anyway,my husband was there everyday.I just want to be ok.thanks for your help.

        Reply
  12. susan

    can I ask you what will a translibial ultrasound be? I know what a ultra sound is.

    Reply
  13. lavalinda

    Finding a doctor who will agree that is NEEDS to be removed this early will not be easy, so you will have to work at going to someone who can do the translabial ultrasound and READ it to see what is happening inside you. Even though we put this out here, we have discovered that so many cannot read it even with Dr Raz emailed instructions to the doctors. IF you can afford to go out to California, go. We now know that Dr Larissa Rodrigues also at UCLA has helped other women and can remove it all. You can get an appointment sooner than with Dr Raz because he is booked up for months. If you have a problem with your insurance, fight to go. Many women have and won. You can get a patient advocate to help you. We know that there is an extreme lack of doctors who can completely remove it. It will save your insurance company a LOT of money to send you to one who can do it in one go and will not leave you disabled from nerve injury. Who you choose to remove it can make the difference of having a future or not. Now you must make an informed choice and do what you can to get your life back. Once removed you may need reconstruction because of incontinence and they do that too. WITHOUT using mesh.

    Reply
    1. susan

      thankyou so much.two more questions,will insurance pay to have the mesh removed? I have regence and medicare.Also do you know any good drs in the slc ut area?

      Reply
    2. susan

      thankyou.do you know any good drs in the slc ut area?

      Reply
  14. lavalinda

    If anyone reads this and wonders what a translabial ultrsound is, please read my blog dated February 24th 2012 titled Mesh Complication Education. YOU now have to educate yourself to get the help you DESERVE.

    Reply
  15. lavalinda

    You should understand that the only ones who can answer insurance questions is Dr Raz’s office or any doctor’s office you choose. I know they take Medicare because it is what I have, but I also checked on the type of suppliment insurance they took to make sure they took it as soon as I was eligible for Medicare. Go for the best one possible so that the bills will not come in after you have had surgery. If you are on FULL disability Medicare, yes, they will take it. If however you are only on the first stage of disablity, where you can only go in your own State, you need to fight to get on full disability. The best way to fight for it and fast track, is if you are hospitalized, ask for a patient advocate and beg for their help. Give them this blog address to read what is happening to women. You need to explain to them that if you get the wrong doctor who will only partially remove it, frankly you will not get better and often worse.
    As for recommending any doctor anywhere else, I cannot help you. We kept up with women who came back to us after removal surgery, only to find out full removal was not done, even when they were told it was going to be done. So you need to go to UCLA and ask all the questions you need to know. No doctor can guarantee there will not be any damage. You need to know how much mesh is in you (many women have more than they knew) and you can get that from your hospital records. The doctor who did your surgery will not have it. I already wrote another blog on where to find it. You must ask all the questions we put here on this blog. They were written by others with more experience after mesh removal. No one can do it for you.
    Please, please for the sake of all women, report what has happened to you to the FDA. They will think this is rare if you don’t.

    Reply
    1. susan

      thankyou very much.I will report this to the FDA.Its crazy how many women are going through this,and that its still avalible.It makes me sick.I will let you know how my appt goes on monday.

      Reply

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